anyone ever have Cancer?

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WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 11/14/2009 3:19 AM (GMT -7)   
If you have had cancer, What medications are you using to treat your crohn's? So many of the medications are iffy if you  have had a history of cancer since so many of them list different types of cancer as possible risks.  I have a history of having a  malignant melanoma about nine years ago and have totally stayed away from anything stroner than pentasa,prednisone and entocort.  However, I had a resection almost two years ago and my scope this week revealed that the crohn's is moderately active again at the anastamosis site.  I am now faced with making the decision of going to one of the immunomodulators but the risk of cancer scares me so much.  My GI says she will not do Remicade as she has had a patient in the past that their cancer returned soon after starting the medication and it is not a risk she will offer to me.
 
If anyone has advise on this it is much appreciated, this is a very difficult decision to make.  I have two young children to care for and feeling good again would be great but the cancer risk makes it difficult.  Thanks in advance!!



33 year old female
CD of Terminal Illeum and Rectum Diagnosed 12/04
Unable/Unwilling to use immunosuppressents due to Melanoma history in 2000.
Illeocolonic Resection 1/08  (18 inches of terminal illeum, illeocecal valve, right colon and appendix)
Current Meds: Pentasa, Fosomax, Iron, Vitamin b12 injections, Vicodin as needed, Entocort 9mg for 8wks

Post Edited (WantRelief) : 11/14/2009 6:55:24 AM (GMT-7)


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 11/14/2009 9:40 AM (GMT -7)   
You might want to consider enteral nutrition. The efficacy is very good (far better than Pentasa, for instance, and for many people as effective as steroids) and you would not have to worry about immunosuppression. It would involve using a complete liquid formula diet for a few weeks to induce remission, and then using the supplement on a daily basis in addition to your regular diet to help maintain remission.

littlemissmuffet
Regular Member


Date Joined Feb 2009
Total Posts : 269
   Posted 11/14/2009 1:53 PM (GMT -7)   
I have had cervical cancer, about 8 years ago. I am also under the family history at risk clinic for breast cancer. I am on infliximab. I will do what it takes to control my crohns and have a quality of life
Diagnosed 2005.  41 year old female living in UK
 
Current medication  -  infliximab infusions, ranitidine, Vitamin B12 injections, anti depressants


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 11/14/2009 2:30 PM (GMT -7)   
I had a cancer surgery and removed a part of my kidney due to renal cell cancer inside the kidney a few years ago. I got the diagnose Crohns the same month. My specialists both suggested that they would not let me have any Crohns medicine that supresses the immune system, because the cancer could return. my GI would not even let me use prednisone for more than just a few months, he didn't like the idea at all, but I had a flare, that had been active prior to the kidney surgery and it continued during and after the surgery as well.
I used prednisone to try to stop the flare, but as soon as I tapered off of prednisone, the flare returned and got worse than before.
 
I then decided to try Low Dose Naltrexone (google it). LDN is a fantastic medication, only 4.5 mg each night, my flare stopped within a few weeks and the diseases has been kept on bay for more than two years now. Due to anecdotals LDN may also prevent a cancer from "flaring" because LDN is increasing our endorphins by 300 %, due to pilots done recently. LDN is a medication that gives zero side effects (exept for the first 10 days) and that is inexpensive. (20 $ / 1 month).
LDN is working better if you avoid sugar, flour, starches.
Dr. Chris Steele a famous TV doctor in UK (he is UK's dr.Oz) is promoting LDN, look at this video:
 

WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 11/16/2009 6:31 PM (GMT -7)   
bump
33 year old female
CD of Terminal Illeum and Rectum Diagnosed 12/04
Unable/Unwilling to use immunosuppressents due to Melanoma history in 2000.
Illeocolonic Resection 1/08  (18 inches of terminal illeum, illeocecal valve, right colon and appendix)
Current Meds: Pentasa, Fosomax, Iron, Vitamin b12 injections, Vicodin as needed, Entocort 9mg for 8wks


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 11/16/2009 6:44 PM (GMT -7)   
Wantrelief, what stage was your melanoma? Have you had only one or multiple melanomas? I would think that would have some impact on your decision.

There has been some research, such as that recently posted here on this site, that there can be an increased rate of skin cancer with use of imuran or 6mp. I think the biologics also might increase the rates. But it's important to note those are increased rates of non-melanoma skin cancers. Since melanomas are rarer than other skin cancers (relatively speaking), the data on them isn't as good, so it's hard to know whether these meds increase likelihood of getting melanomas.

For somebody who has already had a melanoma, there's probably too little data to really know whether these meds increase likelihood of it coming back and/or spreading. I would be concerned too, like you are and like many doctors are, about giving immunosuppressants to a person with history of melanoma. But I think that's based more on gut feeling than on hard data. I would also think the staging of your melanoma would matter, ie, stage 1, 2, 3, etc.
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