I get my first Remicade infusion tomorrow morning. The way the doctor explained it to me is that if you have an underlying cancer somewhere in your system the Remicade can increase the risk of it spreading. Scary to me. I asked him if there was a blood test I could take to see if I had a cancer somewhere and he said there would be too many blood tests to run. So, guess I have to just take my chances. I have ulcerative proctitis and have been suffering a severe flare for the past two weeks. 6MP stopped working and I have been on prednisone far too many times, it gave me osteoporosis, high blood pressure and a few months ago my blood glucose shot up to 237! So, enough of that already.
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09. Meds: Colazal, 6MP, prednisone taper, probiotics, Benicar, calcium and multivitamin
Remission...too short...Sept and Oct. Now in bad flare again...blood and mucus...back on prednisone, off the 6MP, waiting for approval from ins co to start Remicade.