Tomorrow is my husband's Remicade infusion

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PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 11/16/2009 8:05 PM (GMT -7)   
As you guys know, my husband has been struggling with IBD related arthritis despite being on remicade every 8 weeks. They've moved up his infusions to every 6 weeks, and is now also on 40 mgs of prednisone (plus he has gotten 2 cortisone shots in his knee, the last one was last friday). Tomorrow afternoon, he'll be getting his next remicade infusion, and we're hoping between the prednisone and the remciade, the arthritis symptoms will get much better.

Of course, this is if Remicade itself is not the problem (ie. it is possible my husband's arthritis is from remicade serum sickness). So, I am plenty anxious about the infusion tomorrow - normally I don't go to the infusion, but tomorrow I am going to go with my husband. If this doesn't work, then, MTX is our last best hope (and we really don't want him on both remicade and MTX . . .)

I really hope and pray this will put an end to his arthritis flare up. Wish us luck!

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/17/2009 6:50 AM (GMT -7)   
Good luck!!! I hope everything goes wonderfully, and that he starts feeling better!

Let us know how this goes.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/17/2009 6:51 AM (GMT -7)   
Good luck! I am sure everything will be fine.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 11/17/2009 11:07 AM (GMT -7)   
Good Luck! Please let us know how it goes!
turboemma.blogspot.com/


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5854
   Posted 11/17/2009 11:45 AM (GMT -7)   
     Yes, keep us posted.  I pray your husband will improve.  I get my first Remicade infusion tomorrow morning.  I have been avoiding Remicade for two years, but the 6MP just isn't working anymore and I am prednisone dependent.  I suffer with ulcerative proctitis and these past two weeks have been agony....no control over my bowels and only liquid stool with blood.  Lost twenty pounds since last year.  Remicade is my last hope before surgery.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Meds: Colazal, 6MP, prednisone taper, probiotics, Benicar, calcium and multivitamin
Remission...too short...Sept and Oct.  Now in bad flare again...blood and mucus...back on prednisone, off the 6MP, waiting for approval from ins co to start Remicade.


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 11/17/2009 3:38 PM (GMT -7)   
Infusion went well. The premedicated him with benedryl and solumedrol, even though he's already on 40 mgs of prednisone orally. So, he's probably not going to feel anything until at least tomorrow. We are cautiously hopeful that the remicade will make all the inflammation go away. I'll update post with his progress tomorrow. For now, things are holding steady. His knee is perhaps a tad smaller than when it was when he got the cortisone shot, and seems to be much stronger (though he still continues to use his cane, just to not aggravate it). I think perhaps the 40 mgs of pred and the coritsone shot together are starting to do the trick. And the remicade hopefully will get rid of the rest. Still keeping fingers crossed and hoping the dreaded c-diff doesn't pop up again.

What a lot of things to worry about. I wish I could find a way in my head to go back to those days before I filled my head with all these difficult decisions and difficult diagnoses. Don't we all wish that! :-) I've made an appt for myself for next monday with a therapist - my first time ever. I hope I can actually open up and talk to a person who I don't know. . . I guess we'll find out.

Thanks folks for your support. I hope you all have a wonderful day. I am going to try to sit with my hubby and read a book . . . while keeping an eye on him.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 11/17/2009 6:27 PM (GMT -7)   
I'm glad you're doing something for yourself PV, and don't worry about opening up, I'm sure you will do just fine. If you aren't compatible with this therapist then do what I did and ask who s/he thinks would be more compatible with you, it worked great for me.

I hope everything is better tomorrow with hubby.
AzJohnny
 
I feel a whole lot more the way I do now than I did a little while ago.

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