Need advice on appointments

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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/17/2009 6:47 AM (GMT -7)   
For those of you who have been in this situation, what do you do when you need to get hold of a doctor and simply can't?

Looking back at certain symptoms, primarily ones need a urologist, they began to get really bad after my Crohn's did. Before I was even diagnosed with Crohn's I had a really severe yeast infection, given the proper medicine, and thought (hah!) that that was the end of it. Only know it's no yeast infection, and it's not an infection at all apparently. I finally gave in to go to the ER because it's getting rather painful, and I can't go anywhere except for what is absolutely necessary e.g. the hospital.

I told them what was going on, that it's something that has come before, gone away, then come back with a vengeance several times. They took a urine sample, told me there was nothing wrong, and sent me on my way with a prescription for antibiotics. Which I have tried every time it comes to this. Which don't work. It always comes back.

But to the main point:
I'm trying to get a hold of several different doctors (urologist, possibly new GI for another opinion, neurologist, etc.), and I can't. I call and their signal is busy, they don't pick up, or they refer me to an audio message saying "call this number to get a hold of so and so!!"
The funny part? That IS the number I called to get a hold of so and so. It just refers me to phone numbers that don't do anything.
I'm not going into the ER again because it obviously isn't going to bring results.

What on earth do you do? Is it going to have to be that I have to go down to the hospital itself and demand an appointment? There aren't any other numbers to call. Would it be wrong to call my GI and ask to see if he could get an appointment elsewhere? Without mentioning he's being overlooked temporarily for another doctor...

I've never had this difficult of a time making an appointment before. I can't be stuck out of state after this weekend with a wide range of untreated problems. There's no point in going if I'm just going to be stuck in the bathroom the whole time.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/17/2009 6:55 AM (GMT -7)   
Have you tried to leave a message at any of these numbers? Maybe you could get someone to call you back that way. Just a thought!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/17/2009 6:58 AM (GMT -7)   
I pressed the number for those options, but it just said invalid extension...
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 11/17/2009 8:22 AM (GMT -7)   
Oh my. I often wonder how well my husband would be doing if he had to chase down all the help he needed by himself. I pretty much take care of scheduling appts, followups, tests, insurance, cook, clean, etc. when my husband is sick. All he has to do is get better (and he hasn't been able to do that yet) :-)

I'm sorry Bonnie that you're having such difficulty reaching doctors. Usually you can at least leave a message for the nurse. Or sometimes (with my husband's old GI who was very very unavailable all the time), I just call the receptionist, and plead to talk directly to the nurse (if I can tell her I haven't received a call back, or that the situation is dire). I think it does help to talk to a person in the office (any person), so that they may be able to help you get the nurse on the line. The other way I've been able to reach doctors is by calling and asking for an appointment as quickly as possible (tell them you don't mind waiting at the office, you'll show up anytime the doc can see you, and explain that you've been to the ER several times, and are on the verge of having to go there again, and that you really really need help).

Hopefully some of these things will help. I'm afraid it's not easy to see the docs, especially several of them without a good established relationship already in place. You do need to talk to a person to try and push things along. I know you were looking forward to a visit with the prospective in-laws (sorry if I got it wrong), and that this is the last thing you need right now. (((Hugs))). We've been there this year too - we've cancelled 2 vacations, missed my niece's dance performance, etc. It sucks. But hopefully it'll get better soon.

Hang in there.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/17/2009 11:57 AM (GMT -7)   
I finally got a hold of someone. They can't make an appointment for me in spite of the fact that I can't leave the house and, most of the time, the bathroom. I cannot sleep because of this gragaga SO GRUMPY.

I finally gave in, got in contact with my GI's nurse, and she said she'll see what she can do after she heard no one else was doing anything except 1) urine test and antibiotics or 2) nothing.

This is seriously like having a severe Crohn's flareup but switched around. Cystex stopped working too so...

I just don't want to be rude to the person getting me into the office. Have any of you ever just lost it and got in that way? I feel like I'm losing my mind with all of these problems here!! Little things are adding up, and I have to urinate every 5 seconds.

Yes, I whine and complain...very grumpy today...
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/17/2009 3:12 PM (GMT -7)   
Have you talked to your family doctor and asked him to PLEASE INTERCEDE and get you the appointments you NEED?

Are you anywhere near a good teaching hsopital or university hospital such as U of Michigan (my state) or Cleveland Clinic or one of the Mayo Clinics in Rochester, MN; Jacksonville, FL or Scottsdale, AZ or the like? Usually even tho never a patient there before they will get you in w/in a week at most. At least that has been my experience w/Mayo and CC.

Good luck and God bless!!!!
 
When I had trouble getting thru to my gastro I wasn't bashful, I called her after hours and got thru to her via her answering service.
 
Heck, if nothing else works RESORT TO TEARS!!! Whatever it takes. My heart goes out to you getting such shoddy medical care when you are in such dire and painful straights!!! (((hugs)))


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 11/17/2009 3:16:33 PM (GMT-7)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/17/2009 6:15 PM (GMT -7)   
Tears have worked for me as well. Sobbing on the phone when you are normally a rational human being seems to get someone's attention. I've also dropped in once before. Of course they hate that but I said my cell phone wasn't working and I happened to be in town anyway so I figured I'd come in and see if they could squeeze me in. They did. Do you have urgent care? (A walk in that is a step below ER?)
27 Year old married female lawyer.  Diagnosed w/ CD 5 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant but can handle anything cultured and do well w/ lactose pills and lactaid. For Crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/17/2009 6:16 PM (GMT -7)   
PS: L, I apologize as I have not read the threads in awhile but are you pregnant? If so you need to tell them that you are pregnant and having a gynecological emergency. That gets everyone's attentions. Gynos and ob's have super high malpractice rates b/c people always sue if their baby is born messed up.


27 Year old married female lawyer.  Diagnosed w/ CD 5 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant but can handle anything cultured and do well w/ lactose pills and lactaid. For Crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 

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