WOW...I need some positive thoughts here guys! LOL! I have ulcerative proctitis and barely hanging by a thread to stay out of the hospital. Tomorrow I receive my first Remicade infusion...very scary for me. I have had this disease for over 11 yrs and now am Prednisone dependent and the 6MP stopped working.
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09. Meds: Colazal, 6MP, prednisone taper, probiotics, Benicar, calcium and multivitamin
Remission...too short...Sept and Oct. Now in bad flare again...blood and mucus...back on prednisone, off the 6MP, waiting for approval from ins co to start Remicade.