I would love just one day off..

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dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 11/17/2009 8:37 AM (GMT -7)   
From pain & pooping, just one....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 11/17/2009 9:10 AM (GMT -7)   
I'm so sorry dunny that you are in so much pain. My mom said pretty much the same thing to me yesterday, "I wish I had one day without pain". She has RA.

I hope you will soon have many many days without pain. I wish I had something more inspirational or uplifting to say. Do remember though, you are not your pain. Try and focus away from it. I hope you find relief soon.

(((Hugs)))
PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/17/2009 9:24 AM (GMT -7)   
Thanks pv, I must try and remember that this too will pass, but 10 years seems such a long time now...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/17/2009 11:15 AM (GMT -7)   
I had one day off once, but instead of really enjoying it I spent the whole day wondering when I was gonna have to poop!

:)

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/17/2009 1:09 PM (GMT -7)   
You know what pb, you're right, and you brought a smile to my face. Thanks!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/17/2009 1:22 PM (GMT -7)   
LOL, well I try...you know how it goes with having crohn's, you're darned if you do and you're darned if you don't (not having to poop for a day). Ah, the irony!

:)

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/17/2009 6:09 PM (GMT -7)   
I said that once too when I was very sick and my husband said "no you don't, it will just remind you of what it feels like to feel good and you will be that much more miserable every other day."
27 Year old married female lawyer.  Diagnosed w/ CD 5 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant but can handle anything cultured and do well w/ lactose pills and lactaid. For Crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night.  I take xanax prn for situational anxiety (aka no easy bathroom access). 


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 11/17/2009 6:28 PM (GMT -7)   
Sometimes I don't realize when I have had a good day. It will suddenly occur to me, "Hey, nothing is hurtin!". That usually spells the end of that if you know what I mean.
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/17/2009 6:28 PM (GMT -7)   
pb, you really crack me up! I must say you bring a smile to my face with your comments, and sometimes that's just what I need.

I do completely agree though, that if you do suddenly have a day you're not going, you start worrying about why, and then when you finally go again, you celebrate. It is a catch 22.

We all deserve pain free days though. D I can deal with, but too many days of pain can get you down and make me not want to go on. I wish all of you pain free days ahead!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 11/17/2009 6:37 PM (GMT -7)   
pb4, you're sooooooo right! When we have a good day, we're constantly waiting for the other shoe to drop. I think in my case at least (not being the one in physical pain), if I can get past the feeling that the sword of damocles is not hanging over our heads, I would be so much happier.

I envy my cat so much some days - completely oblivious to any concept of a future, or planning, or fears about the future. If she feels good, she is happy; if she feels bad, she complains or curls up and acts pathetic. None of this, how long will this last crap.

Off to therapy I go next Monday.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/17/2009 6:43 PM (GMT -7)   
I envy anyone who doesn't have to think about poop on a daily basis. People who have that once a day poop and never have to question it. People who wake up every morning and have a nice normal solid poop, then go off on their day and don't give their poop a second thought. Ahhh, wouldn't it be nice?

They're all around us every day...maybe I should start walking around saying poop just so they think about it more...level out the playing field a bit more??
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/17/2009 8:13 PM (GMT -7)   
bar77, you're describing what my life used to be...get up in the morining start my day, have my one beautiful, normal, feel good poop of the day at about noon (for the most part it was like clock work for me) and go about the rest of my day and night without a care in the world (or at least never another thought about having a bowel movement), then I'd wake up the next day, never thinking about a bowel movement until around noon when I usually got my "notification" that it's time to go and if by chance I wasn't near a toilet (like waiting at the bus stop or something) no biggie, just a little "mind control" for that urge and abracadabra the urge would quickly go away and then usually hours later that "reminder call" would come in at which I'd usually be able to get to a toilet and I'd do my busniess with still a nice normal good old POOP! Never any worries, man I sure miss my "magical poop control powers"...stupid crohn's took that away from me as it did for the rest of us.

Ah, the good ol' days!

I'd like to try your suggestion, walking around saying POOP outloud in public to get other's "going" but that's probably just gonna end up making me have to "go" more, you know, bad karma LOL.


:)

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/17/2009 8:30 PM (GMT -7)   
Next time I head to my sister's house, I'll walk around saying POOP! randomly....I'll let you know if it sparks up conversations or if it just reminds me to head to the nearest bathroom first! LOL!! She'll be the first guinea pig in the experiment....if all goes well (no pun intended) I'll make it mainstream....POOP will be my new 4 letter word everywhere I go. As for karma, I'm sure it's mild in the scope of things, I'll just "go" a couple more times a day...I can handle that....knock on wood, crossing fingers, etc.
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/17/2009 9:12 PM (GMT -7)   
Sooooo, you don't like you're sister bar??? LOL, let me know how it goes, now you've got me real curious...and I'll cross my fingers and toes for you too, just incase.

:)

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 11/17/2009 9:46 PM (GMT -7)   
G,night guys, I'm pooped out, but you have had me smiling today. Bless you...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/18/2009 6:23 PM (GMT -7)   
No pb, I love my sis, but she doesn't think about poop, and has 2 young boys (potty trained of course), so I think it would be the perfect place to start the trend! AND my nephews will probably think me saying poop is funny, so that's a plus!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/18/2009 6:50 PM (GMT -7)   
I believe you love your sis, I was just teasing you bar...be sure to let me know how the experiment goes though.

:)

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/19/2009 8:55 PM (GMT -7)   
Tried it on the phone with sis today....interjected "POOP" in the middle of the conversation, and she echoed it....HAHAHAHAHA! I smiled for a while after...made her echo the word poop!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/19/2009 11:31 PM (GMT -7)   
Oh my gosh you're silly!!!!! should be interesting to see how this unfolds if you decide to keep up with it, lets call it your "subliminal messages of POOP" LOL.

:)
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