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Regular Member

Date Joined Jun 2004
Total Posts : 199
   Posted 11/19/2009 11:19 AM (GMT -6)   
 I haven't had more than 2 hours of sleep at a timee around the clock. I even try to nap. 20 minutes later I am awake and in pain. I have constant pain it wakes me up with ears in my eyes. does anyone else having trouble sleeping. I think its the crohn's I have a laundry list of out diseases to go with crohn's as if I need anymore of this nightmare and the nightmare of others illnesses. tell me about your sleep habits please. any avice about sleep from other crohn's suffers. thanks camey0777 ( Donna)

Regular Member

Date Joined Sep 2006
Total Posts : 171
   Posted 11/19/2009 9:51 PM (GMT -6)   
Hi Donna,

Make sure your doc knows you're having this much trouble sleeping. S/he will probably give you a pain killer and, if necessary, something to help you sleep. Going too long without sleep can make any illness worse and more so with crohn's.

I have had sleep loss from pain and I know how frustrating it is. I hope you can get this more under control real soon.
I feel a whole lot more the way I do now than I did a little while ago.

New Member

Date Joined Nov 2009
Total Posts : 5
   Posted 11/19/2009 10:22 PM (GMT -6)   
unfortunately problem sleeping is common with chronic illness. due to either pain or just the fact that your body is out of whack . i have major problems with sleep,i want & need to so bad but cant seem to get very much. i wish i had some sage advice but unfortunately it is a vicious cycle. talk to your doc about pain meds & maybe something for sleep. of course you could just take some benadryl :-) it works just as good. take care & i hope you sleep soon !!

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 11/20/2009 9:42 AM (GMT -6)   
Geeez Camey, with your ears in your eyes I can see how you cant sleep. Just kiddin, I have trouble sleeping too but for some reason I sleep every two or three days no matter what. I think its called exhaustion. Sorry I'm not much help but if you find an answer please share...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Regular Member

Date Joined Jun 2004
Total Posts : 199
   Posted 11/20/2009 9:58 AM (GMT -6)   
thanks for the advice. I had a even worse time last night as I fell down yesterday after causing fracturein my right leg and upper right arm. also threw my neck and upper back into major pain, vertibre is all crocked and leaving my left arm and hsnd in pain and numbness in my left hand and fingers. I have lost 50 pounds in the last 12 weeks and am not absorbinh any nutrients. the doc says malabsorbtion. I am aniemic, had 4 units of blood last week only one unit registered, doc has no idea where the rest of the blood went. I am so malnutrictioned that my bones are brittle. my body is a mess. I look like a skeliton upper part of body and bottom have have tons thrid space swelling. I am so broken. I need to get better. crohn's is the culprit to most of my health issues. fatique, sleep depervation. I have a care giver with me everyday monday through friday 8 hours a day. she was gone to run a erron yesterday she was gone five minutes and then I went down hard. I have been falling alot. this is twice now in a month and iz get hurt eachtime. it has to be how tired zi am or the neck being so out of wack. they wanted to put me on tpn but because my albumin dropped to 0.3 from 2.5 and my iron is depleted. I am allergic so I can onlyget it in food. my immune system has completely crashed asnd mthe docs won't so surg for a port o catth because with albumin so low I won't heal. I am not sure what to do. I also have factor 5 a blood clot disoder and a fungus in my lungs caalled aspergillosis. and I am getting weaker and weaker.I need stronger pain meds but mydoc is afraid of respitory failure and also congenital heart failure. any advice or helpful hints for me. hospice and palative care. they don't know how to take good care of me. they just have faster access to the Doc. I've been on my deathbed 3 times before. the docs can't treat me for any of my diseases and they can only give me blood I have now had well over 40 transfusions, which opens me up to disese from blood donors. now is purfect and comfortable pain wise but that's no helping me much at all. I need something stronger. I don't have any reason to eep fighting ambattle that my docs tell me I will never beat. thanks for letting me vent. Donna
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