Anyone NOT on meds to treat CD?

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newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 11/19/2009 8:44 PM (GMT -7)   
Hello.  I'm just looking for anyone who is not or has never been on meds to treat their Crohn's.  Just curious as to what people have experienced!
 
 
newfoundsun


catpower
Regular Member


Date Joined Nov 2008
Total Posts : 192
   Posted 11/19/2009 9:45 PM (GMT -7)   
I am one-day into being CD med free. I had a series of horrible flares that took Imuran to subdue. Since I am in remission, I decided I wanted to at least see if I can survive without any meds. If not, I'll just go back on the meds, but I figured trying is worth a shot.
Dx with Crohn's Colitis; Meds: Pred and Imuran; female in late 20s.


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 11/19/2009 9:54 PM (GMT -7)   
I went to no meds this last summer when my immuran caused me pancreatitis.  I was doing OK until August when I flared possibly due to a prednisone burst to treat a back injury.  I went on prednisone enema's and back on Asacol.  Now I am on Asacol and Blue dye #1.  
In my past I used to go off my meds when ever I felt good.  I am not sure that it is a good idea to go med free.
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help, especially the youngsters.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.


ryan_jordan
Regular Member


Date Joined Jan 2009
Total Posts : 45
   Posted 11/19/2009 10:44 PM (GMT -7)   
Hi there,
I have had Crohn's for 4 years but was only diagnosed one year ago. My doctor wanted me to take steroids and biologics, but I was uncomfortable with the side effects. Instead I've used dietary strategies, probiotics, supplements and for a time, LDN. I'm now med free and, amazingly, symptom free. I'm 100% certain the diet I used is the key. I started out with SCD for 8 months but was only showing some improvement. I switched to a very card restricted diet and now have no no more D (had it for 3 years), no pain, no gas, no blood. It's amazing. the closest diet I've read to what I'm doing is in the book "Life without bread".
cheers

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/19/2009 11:23 PM (GMT -7)   
I swear I thought I replied on this thread earlier???? I must be losing my mind!

Anyways, I'll breifly touch on what I thought I already replied here....I'm either allergic or non-responsive to tradtional oral RX, pred used to work but no more...so I had to resort to the natural anti-inflammatories of which I was skeptical about but pleasantly surprised when I found some relief from them (see my sig below).

My GI was the one that suggested I take fibre supplements daily and indefinitely and it was the best advice I've ever gotten from a GI and I've seen a few over the yrs, 18yrs of having this disease to be exact and only on and off pred a handful of times before it stopped working, not other oral RX, but some rectal meds on and off to treat my proctitis (inflammation of the rectom from CD).

Since I started probiotics, what seems like coincidence I haven't had to deal with any proctitis issues and it's been about 5ish yrs now of that, which is the longest I've ever gone in my 18yrs of having this DD.



:)

aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 11/20/2009 6:00 AM (GMT -7)   
pb probably did. This exact question is asked about once a week lol.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/20/2009 7:41 AM (GMT -7)   
See my message in your other post!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 11/20/2009 8:10 AM (GMT -7)   
hahaha!  Thanks!  I wanted to post a "general" question and then just in case, a more specific one about meds.  I know that I will likely be on them in 3-6 months ( the length of time the doctor gave me to figure my diet out before we go that route), and I know that I will live with this the rest of my life.  I'm just still trying to get a handle on this whole thing!
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
No meds yet, Garden of Life supplements


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 11/20/2009 12:11 PM (GMT -7)   
Now I am only taking asacol and it is so not working my pain is getting bad and the D is more by every day.
Got my last Remicade infusion in end of august.
I get Humira in December so I don't recommend no drugs.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/20/2009 1:57 PM (GMT -7)   
Catpower I would bet money that you will be on here in the near future telling us you are flaring. The Imuran was more than likely what was keeping you in remission. Good luck, but I have heard this same story many times. JMHO P.S. I do hope I am wrong, but unfortunately doubt it.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2689
   Posted 11/21/2009 1:54 AM (GMT -7)   
Well I was told I had IBS for almost 10 years. So all that time I wasn't getting medication, and at the end I ended up in the hospital. Almost bled to death. So I like to stay on my Asacol, just to help keeps things calm in there. When I do flare I've taken prednisone, then back to just my Asacol afterwards. I feel being on something is important, since I had many years where I THOUGHT I was fine, only to find out something serious was brewing up in there.

Some say they do great without meds, but a part of me always worries for them. Mine seemed to stay pretty quiet until a lot of damage was done.


~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.

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