I don't understand what you mean when you say that I am taking this "disease thing" too far?
Tysabri is the only med that would treat both Crohns & MS.
I had mentioned LDN to my GI. He said he just got back from a conference in Chicago and he said no one was talking about that there and he had never heard of it.
Anyways besides the MS fact, which I haven't been diagnosed with yet, (my MRI came back with lesions very consistent with MS) so lets forget about that for second.
If all the diseased part of my intestine has been removed and I am clear (for now), should I be on any maintenance therapy or wait until crohns shows up somewhere else in the future? That was my original question.
Post Edited (sukay) : 11/23/2009 9:01:36 AM (GMT-7)
In fact that started everything. Once they were suspicious about the MS they immediately pulled me off the Remicade which immediately through me in a Crohns flare and eventually led to my surgery.
So now I am off all medications. I had surgery last Monday. I am following up with my GI on the Monday after Thanksgiving to find out if he will be putting any restrictions on my diet since the rest of my intestines are clear. Prior to surgery he felt that there would be no restrictions for now until something shows up in the future. But now he researching the maintenance medication issue.
I just wanted to be prepared too with some questions and ideas. I kind of feel that if there is nothing there to treat, what is the point with maintenance meds until something shows up.
Thanks so much for the responses.
Post Edited (sukay) : 11/21/2009 1:28:30 PM (GMT-7)
Post Edited (Nanners) : 11/21/2009 8:23:51 AM (GMT-7)
So after your 1st resection you were free and clear of all crohns signs in your entire system too?
How soon after your 1st resection did you start to flare? Is that when you immediately started your maintenance plan, once you knew something was brewing?
How soon after beginning your maintenance therapy did you have to have your 2nd operation?