Another BAD doctor!!!!

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Nebraskagirl
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 11/22/2009 7:02 AM (GMT -7)   
Well just a update.  I swear sometimes I dont think there's a light at the end of the tunnel.!!
 
I saw new GI dr..And could tell with in 10min he was going to right me off.And he did!  He listened and said they've done lots of test. Colonoscopy was 4 yrs ago. He wouldn't even look at my blood work for IGG and IGA. Said that's a worthless test. Told me I had a severe case of IBS and to take Align probiotics which are over the counter and gave me Hycosamine which I took one and had severe reactions to and told me to see a dietician.
Im 107 pds now. lost 5 more in week and 1/2. And sent me out the door. Oh. And something for mental stress I need to see my dr for.
 
I called next morning and told them how I reacted to Hycosamine. They said to stop taking and see dietician and take probiotics and that was it. He totally was not interested in what I could eat and can eat. So once again im back at square one. I told him just because I had test years ago doesnt mean things havent changed and just because a ct doesnt show swelling doesnt mean there isnt something deeper inside they cant see through ct scans. He just went around questions.
 
Anyways. I once again went home crying. Im so mad how healthcare has became about money and not caring. I see it alot in my line of work and it's so sad. I will find another dr. to speak to, but for now I have to take a mental break from them.... Thanks all for listening!! cry

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/22/2009 7:59 AM (GMT -7)   
Egads!!! You have my sympathies, NebraskaGirl! And some (((hugs))). What an *** this guy is! I would be ABSOLUTELY FURIOUS!!!

Do you have a husband, boyfriend or father who could go w/you the next time you "interview" a new gastro?? It "ain't" right, but all too often these d*mn male doctors like to credit women as hysterical hypochondriacs. A male presence w/the female patient can make all the difference in the world to how this kind of doctor relates to you. It is too bad you didn't have a male advocate w/you when you saw this current jerk. I'm willing to bet things would have gone entirely differently. Not that you would have wanted to retain him as your permanent gastro, but maybe then he could have gotten you started on a Dx or medication, etc. until you do find a good gastro.

Good luck and God bless.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 11/22/2009 8:38 AM (GMT -7)   
NebraskaGirl, now you got me started too.  I am so very sorry you were treated like this. I think there are more butt hole GI docs than any other specialty for some reason. I had a VERY similar experience in my home town and now I have to travel over an hour away for treatment. I too have noticed quite a difference in how I am treated when my husband is in the room with me. It really sucks. They shake his hand etc.... when they never shook mine! Anyway, it does sound like you need a new GI doc. And, if you get a good one, they will listen to you. I finally found a good one who listened and got me on my way to discoverng that I had colitis and not diverticulitis. I was also told I had IBS for YEARS and it turned out to be colitis.  I hope you can find a good doc who will listen and treat you to get you better. I like the VSL #3 double strength probiotics. They are way stronger than others. You can get them online. They are the only ones that have helped me. The others are just not strong enough for some of us.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel
 


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 11/22/2009 10:21 AM (GMT -7)   
Oh I hate the docs who say oh you had a colonoscopy done 1 year ago bla bla bla. And I was like YES but then I did not have any issues with my colon. Now I have!!
So he finally agreed to do the scope and he was very surprised at what he found, stupid doctors.

I also went to see a doc couple of weeks ago about extra heartbeats and he said you did have a sonar done one year ago, I said yes but a lot can change in my body over one year so please order a new one, and he did.

Its like they dont think that you can get a disease in so quickly what about the people who get cancer ? Why not just check us all at birth and leave it at that.

Like I said stupid stupid doctors :S
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/22/2009 10:51 AM (GMT -7)   
Grrrr...bad doctor.

Sorry girls, but the idea of having a male come with me is ridiculous. If a doctor doesn't respect me and take what I'm saying as truth, I will not go back to them. I wouldn't go to the extent of having someone else go with me to an appointment....but that's just me!

Luckily I have not run into having tests done over a year ago, as I end up in the ER periodically and have CTs done to see what's going on. Regardless, if your symptoms change or get worse, or if you're not doing well, doctors should see that and treat or do tests based on symptoms. It really irks me that people have to jump through hoops to get tests to try to feel better. It's crazy!

Are there any other doctors you can see for a second, third, or whatever number doctor you're on? I hope so. Unfortunately there are equal numbers of good and bad doctors out there and you have to weed through the bad to get to the good.

Good luck, and I hope you get some relief soon.
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/22/2009 2:06 PM (GMT -7)   
When I lived in Lincoln, NE, I saw several of the doctors at http://www.gidocs.net/index.html. I had undiagnosed Crohn's for a couple years, and doctors wrote it off as being in my head. When I saw Dr. Antonson, he scoped me the next day and I finally had a diagnosis. Dr. Griffin is really nice too, as is Dr. Varilek. Maybe you could get in to see one of these guys?
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 11/22/2009 4:31 PM (GMT -7)   
I agree bar77, a woman should not need to have a "man" come with her to the doctors office for proper treatment. My doc now is the same with or without my hubby in the room. I did start taking him on occasion so that he can help me remember everything, like after the colonoscopy. It is a "jerk" test though. Like I said with one doctor I saw before this one, he treated me very differently with my hubby in the room, came in and shook his hand and all. Pi--ed me off. He never shook my hand, the young wet behind the ears cocky little jerk! lol... I think more of us should report these bad doctors to someone like their state board. Maybe then, they would treat all people with respect!!
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel
 


Nebraskagirl
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 11/22/2009 4:32 PM (GMT -7)   
Thank you everyone for your input. It is so aggervating. My aunt went 10yrs undiagnosed with celiacs disease, and then got diagnosed finally, then about 8 yrs later got pancreatic cancer and died this year. Your right, things can change very rapidly, and just because a test was negative a year ago doesnt mean it is at the current time.
I wont give up! I pray alot!! I just got some "Good Belly" juice probiotic if anyone has heard of it. Im not takeing align. My own patients complain about it. Has anyone had any luck with this juice?? Anyways... If it wasnt for this sight and all of you. I would feel so alone and probably want to give up... So thank you all!! Ill keep you updated!!!

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 11/22/2009 4:41 PM (GMT -7)   
I am so sorry. I had an a@@hole GI before. I left him. He was a complete little jerk. He really did not care and did not know much.

The more I think about doctors, the more I think that they are some unusual people. Just find a female GI. She should be nicer. I do not ever want to go to a male doctor again. The female doctors will pat your leg at the hospital to cheer you up and smile. Go with them. If they are ugly, obeise, and abnormally short, run for your life.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 11/22/2009 5:41 PM (GMT -7)   
Go to Healthgrades.com and "opine" on your doctor. Let him have it.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 11/22/2009 5:56 PM (GMT -7)   
NostraHistoria said...
I am so sorry. I had an a@@hole GI before. I left him. He was a complete little jerk. He really did not care and did not know much.

The more I think about doctors, the more I think that they are some unusual people. Just find a female GI. She should be nicer. I do not ever want to go to a male doctor again. The female doctors will pat your leg at the hospital to cheer you up and smile. Go with them. If they are ugly, obeise, and abnormally short, run for your life.


Good doctors can be a man or a woman I don't think it matters, my GI is male and I love him, he always is really nice to me and he explains every thing he does really well and tell me why he is doing this and not that.
Of course I get mad at him sometimes like now I am not happy to have to wait so long to start Humira but I know it is for the best so we can get all the remicade out of my system before I start a new med.
He also knows I hate doing the prep for the scope so he lets me do it in the hospital so I can have full access to all the nice drugs they have ;)
My regular doctor is also a male he worked so hard to get my disability through the system and it worked, ones I asked if he could listen to my heart, I told him that it calms me down to know it is ok because of my anxiety, now he offers to listen to my heart every time I visit :) Such a sweet man.

But I have also have bad doctors but you have to just keep searching until you find something good. When you have a disease like Crohn's you have to be in a close relationship with your doc so you better have someone you like and likes you back ;)
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 11/22/2009 8:36 PM (GMT -7)   
said...
I think there are more butt hole GI docs than any other specialty for some reason.

Except maybe proctology! smilewinkgrin

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 11/22/2009 10:06 PM (GMT -7)   
This thread is getting me mad, since it is reminding me of all those bad experiences I had with GIs.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 11/22/2009 10:11 PM (GMT -7)   
isergodur,

Are you in the US? How long did it take to get approved for a disability? I have been waiting for a response for about 2 months now.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed


Cponsart
Regular Member


Date Joined Jan 2003
Total Posts : 153
   Posted 11/23/2009 9:23 AM (GMT -7)   
I'm so sorry! It sucks to go through all of this and it's even worse when you can't get a good doc to help you! ((HUG))

Nebraskagirl
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 11/24/2009 7:32 PM (GMT -7)   
Thank you all for your great info. I live in North Carolina. But born and raised in Nebraska. I am just at a loss all the not caring dr's I have met. Crying in the car on the way home. If they could live in your shoes for a week. WOW how would things be diffrent. I really dont know why no one will tell me why my IGG and IGA's are triple fold high/ more for Chrons and not UC. But they wont listen to blood test, but no one will tell me why my antibodies are so out of whack either.

Right now I started GOOD BELLY Juice probiotic, take phenegren and hydrocodone as needed. Really just phenegren. And try to eat light and just get through the holidays until I can get my strength up to find ANOTHER. doctor. As I do my own research to try to better and help my self. What scares me is how physcially skinny and boney I look, I hear it alot from people and my patients now that I've dropped to 107pds(Healthy weight 136pds) So I just where baggy clothes so I dont have to hear the comments. Anyways Im off my soap box. LOL
Thank YOU ALL SO MUCH>

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 11/24/2009 9:07 PM (GMT -7)   
Nebraskagirl, I too think there are a lot of jerky GI docs. I had to go through a few before I found a good one who was respectful. It is frightful, but I think that it can take several doctors before you can find one who knows a lot about IBD. I haven't been on this forum that long but it sounds like we are not alone in having issues with doctors! lol. It shouldn't be such an issue but I believe a lot of male doctors blow off female patients. Are you anywhere near Duke or Vanderbilt? Do you have a primary care doctor that you trust? Maybe they could recommend a GI doc. My nurse practitioner admits some of the GI docs in my town are real a---s. I saw one doctor who said I was depressed and I should get a hobby! Somehow, I don't remember ever reading that passing blood was a sign of depression. Sigh..... Another one said it was IBS and gave me some zelnorm. Again, bleeding is not a sign of IBS. I have never had problems with my stomach from being anxious.

about your antibody levels. My GI says they rely on the biopsies for diagnosis as the gold standard. However, they did admit that pediatric docs use the antibody levels more often so they don't have to use invasive tests. I think the prometheus tests are fairly accurate. I was told I have colitis but my IGG asca test was positive for crohn's. After seeing my prometheus tests, they did order a CT scan, so I think they are suspicious I may now have crohn's. I also had other symptoms of it. No weight loss for me though. I have thyroid problems-:) Sounds like you need more testing like a stool test, a CT scan or colonoscopy or all of the above. I hope you find a good doc soon. Have a Happy Thanksgiving.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel
 

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