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crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 11/22/2009 9:43 AM (GMT -7)   
Hi, everyone i wonder if you have any advise i have been on pentasa since June ever since i have taken them certain joints ache at first put the ache down to being on my feet alot, wearing diffrent shoes, but lately and especially this morning i was in agony fro my hips to my feet and in one wrist also vomited this morning tried taken painkillers but hasn't done nothing. my next appointment with my GI isn't till 8/1/10 i haven't had any blood work done either!Has any of you had achy joints while on pentasa/ Do you think it could be the pentasa? I was on Asacol before but had to come off them as they made me ill with sickness and servere headaches. Thanks for taking the time to read, will be grateful for any advise. Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/22/2009 10:40 AM (GMT -7)   
Bev

I don't remember getting joint pain with pentasa, but when I take prednisone, it makes my legs hurt something awful. I wouldn't be surprised if it is the pentasa though. I seem to have the odd side effects from anything I take.

I hope it gets better soon!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 11/22/2009 4:06 PM (GMT -7)   
((((Bev)))) sorry your hurting so much.

I've been taking Pentasa since April 2006 and it's been great for me. Of course it could be a side effect but with the vomiting too it sounds like it could be the beginning of a flare (I hope not), or when I get the flu now, it starts with pretty bad joint and/or leg pain.

If the pain gets really severe, don't just suffer through it shakehead go to the ER.

Hope you feel better real soon.
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 11/22/2009 9:37 PM (GMT -7)   
I'm on pentasa too with achey joints but I'm not sure if it's the cause! Seems like my knee won't bend everytime rain is coming... weird.
19 y/o female, diagnosed crohns december 2008
currently taking 500 mg pentasa 4x daily


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 11/23/2009 4:37 AM (GMT -7)   
Thanx everyone for your replies I went to my GP this morning he doesn't think its the Pentasa but is sending me to get my bloods checked. He said it sounds like a side effect of the H1N1 shot i had, i thought it would of come out before now. Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 11/24/2009 5:37 PM (GMT -7)   
I have the same achy joint symptoms also on pentasa. backache really bad, my feet hurt , my knees , my shoulders. etc.....I know it is the pentasa for me, because when I go off
it the aches ease up. I still have aches but not nearly as bad. I have also tried asacol. I am worse off with that one. If you read up on pentasa these side effects are listed. It is awful ,because
we are trying the deal with this disease , and then we have to deal with the horrible side effects too!

medicboles
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/25/2009 3:48 PM (GMT -7)   
joint pain and crohn's has gone hand in hand with me since the beginning. No matter what I am taking. Remicade helped with the joint inflamation, but stiffniss and pain is always there. could be the same with you

BWS27
Regular Member


Date Joined Nov 2009
Total Posts : 37
   Posted 11/25/2009 4:11 PM (GMT -7)   
I have similiar joint pains and I am currently taking pentasa and pred. Somedays it seems worse than others, and sometimes I get strange twitches in my shoulder and leg! Anyone else get those?!?!? I spend a lot of time on my feet at work, well the days I make it there! I have not found a reason or rhymn for the pains. I find myself taking pain meds to take the edge off, lame! Might sound like a bit of a bandaid type fix, but shoes inserts actually help the joints make it through the day! Best of luck to you!
28 year old husband and father of 1 (soon to be 2!!), Diagnosed with Crohns and resection surgery in Jan '09 (same ER trip), currently not winning the battle with pain, taking: 6mp, Pentasa, Prednisone and every vitamin possible! 
 
 

What lies behind us and what lies before us are tiny matters compared to what lies within us." -- Ralph Waldo Emerson


Jess0216
New Member


Date Joined Sep 2009
Total Posts : 11
   Posted 11/25/2009 4:58 PM (GMT -7)   
I have also had joint pain but at during a flare and the doc said it could be just the flare or also that my vitamin d and calcium are low. I started taking pentasa about two weeks ago and the joint pain seems a little worse the past couple of days. but taking the calcuim and vit d have def seemed to help. I hope you find some relief.....
Jess
 
 
Crohn's for 8 yrs;Pentasa 500mg 2-3x daily


Ashyla03
Regular Member


Date Joined Oct 2009
Total Posts : 41
   Posted 11/29/2009 8:40 PM (GMT -7)   
pentasa can cause joint pain etc. I hate the meds for crohns and the disease. wishing everyone living with this would be healed.. I hate being in pain every day & I know some of you have is very bad. I hate knowing its only getting worse. Hope they find a cure soon what ever happened to the study with crohn's and cows anyone know?
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