A Non-SCD Healing Diet - feeling better after 15 days - updated

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j_web
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Date Joined Nov 2009
Total Posts : 205
   Posted 11/22/2009 7:27 PM (GMT -7)   
I was afraid to post any earlier than this, although I started to have noticeable results around day 8.

I'll try to keep this short.

Before November 7th, I thought I was headed back to the hospital. Up several times each night, restroom 12+ times per day, blood, omg I need the bathroom 5 minutes ago urgency, severe fatigue, cramps... and I had a new pain in my upper GI that I thought could be an ulcer.

Since about day 8, no symptoms except for still going to the bathroom sometimes twice per day. I'm talking formed and solid. Possibly still have slightly elevated levels of gas, but nothing I can't hide.

My diet has eliminated as close to all damaging Omega 6's as possible while replacing them with (large) amounts of Omega 3's. I'm eating lots of fish, taking supplements and staying away from many oils and ALL animal fats (which means no meat or cheese). I can still have non-fat milk, non-fat yogurts, and OMG, I can eat (vegetarian) baked beans. I soooooo missed baked beans since my diagnosis. In fact, there are many foods I can still eat, and I'm no chef (hence I haven't been able to do the SCD diet).

I don't want to go on and on, but I got my diet from 'The New Eating Right for a Bad Gut' by James Scala. I'd love to share more information if anyone's interested, just ask. This diet doesn't require you buy anything that you can't pick up at a regular grocery store.

I am amazed at how normal I feel, it's as if I got younger. (Touching wood a lot while typing this post, don't want to jinx it now).
CD since July 2007 - prenatal vitamins, vitamin D, fish oil, flax oil, Flora-Q probiotics, pescetarian healing diet
DM T1 since January 2008 - Apidra via OmniPod

Post Edited (j_web) : 12/1/2009 8:17:12 PM (GMT-7)


Becky77
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Date Joined Dec 2005
Total Posts : 1768
   Posted 11/22/2009 7:55 PM (GMT -7)   
So good to hear. I'll have to look the book up! I've been wondering how to change my diet without doing something like the SCD.

Thanks for posting!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 11/22/2009 7:57 PM (GMT -7)   
I read that book once. It does have some good ideas, like cut out the sugar. Glad to hear it's working for you :-).
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 11/22/2009 8:33 PM (GMT -7)   
I bought the book on amazon.com, it's about $10. Read the reviews there too.
CD since July 2007
DM T1 since January 2008


FunGuy
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Date Joined Oct 2009
Total Posts : 1070
   Posted 11/22/2009 10:05 PM (GMT -7)   
Excellent!! The following website talks about the omega 6 versus omega 3 and much more.

http://coolinginflammation.blogspot.com/search/label/anti-inflammatory%20diet


Catasmom
Regular Member


Date Joined Sep 2009
Total Posts : 54
   Posted 11/25/2009 2:08 PM (GMT -7)   
Wow!
So good to hear!
Please keep posting your progress.
Mom of a 12 year old girl diagnosed on Oct. 2007.
Prednisone (tapering off)/Asacol/6-mp/Vitamins (Centrum Kids)/Calcium (Oscal)/Probiotics: Primal Defense Kids/ Omega 3: Coromega/ Total enteral nutrition with Splash E028 and Vital Jr.

Warm healing wishes from the Miami beaches....


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 11/28/2009 3:44 PM (GMT -7)   
I have used the suggestions that I found in the book you write about, j-web, and I agree, the book explains and suggests changes that help me a lot. To avoid all omega 6 oils is of great importance, and to use omega 3 from fish and fish liver oils to reduce inflammations is important, too. Now I also happen to know that grains is increasing inflammation and so is starches. That means that a diet very low in grains and even starches and sugar is important.

Fun Guy; I have earlier read all in Phd. Ayes blog, also the great discussions on how to rid intestinal biofilms, now that is interesting to read. To follow a diet that he is suggesting couldn't be too hard and strict. Am going to read more about this, it makes sense to me./Bee

Former58D
Regular Member


Date Joined May 2009
Total Posts : 173
   Posted 11/28/2009 4:53 PM (GMT -7)   
Interesting. I seem to have found relief going the opposite way. I have cut out almost all carbs and eat a predominantly fat and protein diet. Things are looking pretty good at the moment. Haven't felt this good in a long, long time. Even started working out again this week.

After reading Gary Taubes' Good Calories, Bad Calories as well as Life without Bread I am firmly convinced that we (the western diet) has too high a percentage of carbohydrate. Especially regarding refined carbs. I do think saturated fat has been unnecessarily demonized. Taubes' book was meticulously well cited and well researched and I believe time will show that he was on to something.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal (750mg): 3 pills 3xdaily
Cortifoam - 1 nightly
6MP - currently at 100mg and waiting for response......


Becky77
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Date Joined Dec 2005
Total Posts : 1768
   Posted 11/28/2009 8:06 PM (GMT -7)   
Just got the book delivered from Amazon today! I'm sure I have tons of stuff in the fridge and pantry that are no-no's. I'm going to try to make baby steps to change how I'm eating. It seems that my system can handle little changes, but "diets" have landed me in the ER with obstructions.
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 11/28/2009 8:49 PM (GMT -7)   
Hi Becky - if you find that you are sensitive to Fish Oil (it can give you a little gas), then switch to Flax Oil, or try to do some of each. Flax Oil seems easier on your system but not as effective as Fish Oil because only part of it gets transformed into DHA. I went full-on with Fish Oil the first 3 days and was in agony. So now I alternate Fish - Flax and have no problem.

Can't wait to hear what you think of the book and how you feel once you get into it.
CD since July 2007 - prenatal vitamins, vitamin D, fish oil, flax oil, Flora-Q probiotics, pescetarian healing diet
DM T1 since January 2008 - Apidra via OmniPod


55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 11/28/2009 9:54 PM (GMT -7)   
great to hear how well being proactive in our diets and own health is beneficial to our state of being. I will look the book up and read read read!
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/29/2009 8:27 AM (GMT -7)   
Thats great to hear. I think that is the book that Zanne is always talking about, I could be wrong though. I can eat cheese, but only motzarella cheese. But I already eat alot of fish, chicken, and turkey. I found red meat is really bad for me too, so I avoid that now. I am so glad you are feeling so much better.

Thanks for sharing!

Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 11/29/2009 8:44 AM (GMT -7)   
Just for the record, the book I like to recommend is for specific episodes of healing or times of flare, after surgery, radiation, prep those types of things.

"Cooking Well for the Unwell" by Eileen Behan.

Chapters not just for IBD issues but for all health concerns, salt, sugar, cholesterol, extra of specific vit or minerals, needing high calories........
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 11/29/2009 9:01 AM (GMT -7)   
Thx Suzanne. I will check that one out.
CD since July 2007 - prenatal vitamins, vitamin D, fish oil, flax oil, Flora-Q probiotics, pescetarian healing diet
DM T1 since January 2008 - Apidra via OmniPod


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 12/1/2009 8:17 PM (GMT -7)   
UPDATE:
This can't be in my head. At lunch today, I went to Macaroni Grill. I ordered the warm spinach salad thinking it would fit my 'no animal fat' diet. A few bites in I realized there was BACON (or maybe prosciutto) in it and I could taste the fat. I only had a few bites, less than 1/4 of the plate. Just now (10 hours later), had to go to the bathroom twice in an hour and just had a loose bm for the first time since posting how great this diet is.

So, back on the wagon. It's going to be a hardcore salmon-eating day tomorrow.
CD since July 2007 - prenatal vitamins, vitamin D, fish oil, flax oil, Flora-Q probiotics, pescetarian healing diet
DM T1 since January 2008 - Apidra via OmniPod


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 12/2/2009 11:08 AM (GMT -7)   
 
 
This Non-SCDiet book of James Scala is really good, I have read a LOT due to diets and Crohns, and I also use some of the SCD stuff, like the SCD yogurt, because it's loaded with benefitting probiotics. But the link that fun-guy have copied further up is really exciting to read, the blog owner is so well educated and has a lot of knowledge, and I want to point out that
this guy actually knows his science, and he writes about anti - inflammatory diets.
Here's the link about the anti - inflammatory diet, I am sure there is something to read for everybody:
 
He points out some of the food that we daily are eating which causes inflammation in the guts, and he also points out simple things to do to reduce the inflammation.
One of them is using fish liver oil containing omega 3 and vitamin D, and avoiding all oil containing omega 6.
 
Flax seed oil is loaded with omega 3 and doesn't have the fish oil taste. But it's also containing omega 6. Omega 6 is making inflammation. So is grains from bread. /Bee 

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 12/2/2009 5:29 PM (GMT -7)   
Who knows what was in that spinach salad, besides bacon? The salad dressing could have had any number of ingredients in it that might be problematic. My own daughter tended to get a distended abdomen from eating spinach...might have something to do with oxalates.
 
Grass-fed beef provides omega 3s.
 
So far there is no definite evidence for omega 3s helping Crohn's, but I figure it can't hurt to get them anyway because they are good for the entire body.
 
BUT what I read is that you are not supposed to eat ONLY omega 3s. They need to be eaten in balance with omega 6, but not eliminate omega 6.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/2/2009 10:52 PM (GMT -7)   
Just wanted to share some discoveries... A Science Daily story that suggested that fat cells which secrete saturated fat into the blood may be responsible for chronic inflammation which results in "metabolic syndrome" in the obese made me wonder about a possible role in Crohn's. It turns out that one of the original defining characteristics of Crohn's was mesenchymal fat wrapping the intestines. This fat plays a large role in the modification of the intestinal inflammation that occurs in Crohn's and contributes a significant part of the TNF and other inflammatory markers that we get in Crohn's. It is also strongly associated with inflammation, strictures and bowel resections (100% of bowel resections have associated enchymal fat deposits). For details, see:
http://www.practicalgastro.com/pdf/June06/ArsenescuArticle.pdf

After a bunch of searching, another article described "visceral fat", which includes mesenchymal fat, in a bit more detail. The thing that the second article reported was that visceral fat consumes twice as much glucose as regular subcutaneous fat. Moreover, when weight was lost while maintaining a low glycemic index diet, visceral fat was lost first. Thus, a loss of about 5 - 10% of body weight substantially reduced this visceral fat. It is striking that the SCD diet is directed at avoiding starches and sugars and other sources of polysaccherides which supply blood sugars. This is exactly the kind of low glycemic index diet that reduces visceral fat. This second article was discussing metabolic syndrome and insulin resistance in the obese, but the information also applies in the case of enchymal fat deposits in Crohn's. For more, see page 14 (Implications of Controlling Dietary Carbohydrates) of:
http://www.biomedcentral.com/content/pdf/1743-7075-1-12.pdf

There is a great deal of other relevant detail, but it may be unnecessary.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/3/2009 7:25 AM (GMT -7)   
Keeper sometimes some of the stuff you post is way to medical ease for me. Can't you provide something that is more in layman's terms and that folks can better understand.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/3/2009 2:45 PM (GMT -7)   
Sorry, it's due to all those papers that I've been reading - believe it or not, my post was supposed to be more in layman's terms. I guess I'll have to try again.

The nub of those articles is that the internal fat (the fat wrapping the intestines - one criterion for Crohn's is 50% fat wrapping of the intestines or more) is a major contributor to inflammation. The second article shows that it is possible to reduce that fat selectively by losing weight while on a low glycemic index diet (diabetics will know all about that). It seems to be a bit too much of a coincidence that the bias of the SCD (Specific Carbohydrate Diet) plan results in a very low glycemic index diet. The second article says that losing 5 - 10% of your weight would be enough to benefit. One drawback is that the fat is also first to return once a low Glycemic Index diet is stopped.

BTW, the fat in question will not show up on a colonoscopy because it is wrapped around the intestines on the outside (the side away from the digestion side). It would only show up during surgery or on a MRI.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 12/3/2009 5:18 PM (GMT -7)   
Keeper, at first glance it seemed the Katz article talked about fat wrapping inside, not outside the intestine. Now, after digging further, I realize the article doesn't make it clear where the fat wrapping is...will keep reading. 

Post Edited (njmom) : 12/3/2009 5:25:00 PM (GMT-7)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/3/2009 8:42 PM (GMT -7)   
Someone recently posted about having that fat on the outside of the intestine removed during their recent resection.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/3/2009 11:16 PM (GMT -7)   
Surgery has been used to reduce insulin resistance by removing visceral fat, but I was not sure if it was ever done in Crohn's. The idea that fat has a more active role in immune and inflammatory responses is only about 15 years old, so mesenchymal fat wrapping had been ignored largely before that. It is only recently being re-examined.

The Wikipedia page for mesentery defines it as the double layer surrounding the viscera. I would call it the abdominal cavity myself, but I guess that that is not precise enough and it really pays to use the "right" words in google searches. See: http://en.wikipedia.org/wiki/Mesentery
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