Kidney Stones and Crohn's

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tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 11/23/2009 3:04 AM (GMT -7)   
I am going through another bout of kidney stones and am not in them most pleasant of moods. I had one about 3 weeks ago and did not know what was going on until I had to help the stone the rest of the way. Who knew that kidney stones were black sometimes? I was fine after it passed and told my P.C. doc about it last Thursday. Even though I was not experiencing anymore of the pain of symptoms, he wanted to do an ultrasound to make sure that there were no more. I went along with it and it is scheduled for tomorrow. Then on Saturday night I began to get some back pain and then the dreaded lower abdominal pain. At first I thought it may just be a reaction as I have gone back to Remicade after being off of it for over a year but then the burning came with the nausea. I still have not passed it and I am very fortunate to have strong pain medicine on hand. I have had bouts of pancreatitis in the past and it has been very similar to that.
I tell all of this because I am wondering if anyone else has had problems with this. My primary Care Doctor seems to associate it with the disease and not being able to stay hydrated. I know that I need to drink more water and less coke, but coke settles my stomach.(I know crazy but it works for me) I was on remicade for 4 years max dose of 10 every 4 weeks prior to me stopping the first time but never experienced kidney stones. Like I mentioned before, I had accute pancreatitis due to the methotrexate I was injecting and that is one of the reason I went off of everything. I went to cimzia which I had to stop because I was have really bad side effects and no relief of the arthritis. My G.I. said because we are out of answers lets try going back on Remicade and it has worked so what.
So if anyone has had any similars problems I would love to hear about them. I would also like to know what the best course of helping these painful things pass is. I have heard lots of water, but water makes you have to go to the bathroom and that is a feeling I would like to experience less. I am hoping they can break them up using ultrasound tomorrow like I have read about.

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 11/23/2009 6:55 AM (GMT -7)   
Kidney stones are more common in Crohns patients but it is not about hydration. It is related to impaired absorption from disease activity or scarring in certain areas of the small bowel. Apparently -- and I am a little hazy on this -- when we fail to absorb certain minerals as normal folks do they build up in our systems and are excreted via the kidneys, forming stones. There are medications you can take to reduce the likelihood of developing stones -- I would consult a urologist on that. They can do a 24-hour urine collection test that shows that material you are accumulating from the malabsorption and address it that way.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/23/2009 7:11 AM (GMT -7)   
And to add to what Mike said, I know you already know this, but you really need to get off of the Coke. I just read an article last week that dark sodas like coke, will cause you to have more stones which can also lead to kidney damage. My niece has been passing stones 1-2 stones a month, and the doctor has told her to stop drinking dark soda's. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 11/23/2009 12:06 PM (GMT -7)   
Nanners and Mike, Thank you for your responses. I promise that I am working on getting rid of the coke. It is my only vise but man is it hard to stop drinking. Darn sweet nectar of the Gods.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/23/2009 12:56 PM (GMT -7)   
Haha!! I get you, I really do. I am starting to feel better and one thing I have been allowing myself to have is the occasional Cherry Coke. I don't have kidney stones (knocking really hard on wood as I say that), but it is a guilty pleasure for sure:)
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 11/23/2009 2:32 PM (GMT -7)   
What does it feel like to have kidney stones in a bit more detail? I'm asking cause I get upper-mid back pain alot and I was wondering if it could be kidney related? Who knows..
I love cherry coke and vanilla coke! But don't have a chance to drink them often... yum!
19 y/o female, diagnosed crohns december 2008
currently taking 500 mg pentasa 4x daily


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 11/23/2009 5:31 PM (GMT -7)   
My kidney stone pain was lower part of back.
Non-stop tooth ache like pain.(6 or 7 out of 10)
Constant pain that eventually effects sleep.
Not to be confused with blockage pain.(Pulsating)
If possible avoid. smhair
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole.More over the counter vitamin-D. Remission since surgery and 5-years, of 8-week Remicade.
.


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 11/23/2009 8:33 PM (GMT -7)   
So far for me the first one was not as bad as I would have expected. I did have the constant back pain which was bad but it was not always the same level of pain. It was similar to have someone poking a stick on both sides of my back but sometimes one side would hurt worse than the other. I also started having lower abdominal pain and just thought that it was Crohn's pain because I was having really bad nausea and fever too. It went on for a couple of days until finally the burning in the lower area started and I was not able to pass urine without pain. By this time I figured it was a stone but did not want to rush to the E.R. because we all know how we are treated when we go to the E.R. and the doctors treat you like a drug addict because you are already on pain medicine. Being a guy it was not difficult to realize where it was stuck and I just decided to help it on it's way out.(sorry if too much info) It was really painful passing it but after it did pass I was just fine. I already have my own my own strong medicine for pain so I just let it go. I am having that same back pain and nausea again but the tech could not tell me what she saw on the ultra sound.
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