Second infusion of Remicade

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JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 11/23/2009 12:26 PM (GMT -7)   
I had my second infusion of Remicade on Friday.  I was so scared that I was going to have some horrible side effect from it.
 
Long story short.  Sat through it for 2 1/2 hours and no problems.  Then I had a weird feeling a couple of hours afterwards.  I hadn't felt it in so long I couldn't believe it.  It was ...... ENERGY.  I actually felt great and wanted to go out and do something...anything besides lying on a bed.  All weekend I have had this burst of energy like I used to have years ago.
 
For so long now I have been so tired and haven't wanted to do anything.  Now, I want to take on the world.  To top it all off, I was going to the bathroom at least 10 times a day...now I am down to at most 5.
 
I recently moved to NJ and there is a hugh park across the street from me.  I have yet to walk through it and enjoy the nature.  Sunday, my wife and I explored the park, the bathroom never on my mind.
 
For anyone out there still worried about Remicade...don't be.  I feel like it is the miracle drug and while this may not last, I am going to celebrate being somewhat normal again.
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/23/2009 2:32 PM (GMT -7)   
Hi, I am glad the remicade is working for you. I was on remicade for 5 yrs and now on humira.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 11/23/2009 3:43 PM (GMT -7)   
Wow that's an awesome story.....good for you!! I know that feeling of never having Engery....So glad you able to enjoy your park!
Flowery
 "Get busy living or get busy dying"
               
                         


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 11/23/2009 4:57 PM (GMT -7)   
Ohgosh...I am so happy for you and I thank you so much for sharing! I am getting ready to start the drug(I got my tb test sunday)...I needed to hear a great story:)

37/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with Arthritis 2007

Diagnosed with UC, then Crohn’s 2007

Diagnosed with Generalized Anxiety Disorder 2008

 

Starting on REMICADE probably within the next mo.

Current medications: Asacol 2 tablets 3X daily, Imuran 50 mg daily,Endcort 3mg 3X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), .05 mg Zanax (if needed) Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


HM
Regular Member


Date Joined Sep 2008
Total Posts : 211
   Posted 11/23/2009 4:59 PM (GMT -7)   
Ohgosh...I am so happy for you and I thank you so much for sharing! I am getting ready to start the drug(I got my tb test sunday)...I needed to hear a great story:)

37/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with Arthritis 2007

Diagnosed with UC, then Crohn’s 2007

Diagnosed with Generalized Anxiety Disorder 2008

 

Starting on REMICADE probably within the next mo.

Current medications: Asacol 2 tablets 3X daily, Imuran 50 mg daily,Endcort 3mg 3X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), .05 mg Zanax (if needed) Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily


AzJohnny
Regular Member


Date Joined Sep 2006
Total Posts : 171
   Posted 11/23/2009 5:42 PM (GMT -7)   
Glad to hear it! Enjoy it, have tonnes o fun.
AzJohnny


I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC


BWS27
Regular Member


Date Joined Nov 2009
Total Posts : 37
   Posted 11/23/2009 7:31 PM (GMT -7)   
Good to hear a success story! I get my first dose of Remicade on Wednesday and have been stressing about it. Thanks for giving me a postive look on it! I could use the energy boost!!!!!
28 year old husband and father of 1 (soon to be 2!!), Diagnosed with Crohns and resection surgery in Jan '09 (same ER trip), currently not winning the battle with pain, taking: 6mp, Pentasa, Prednisone and every vitamin possible! 
 
 

What lies behind us and what lies before us are tiny matters compared to what lies within us." -- Ralph Waldo Emerson


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 11/24/2009 9:44 AM (GMT -7)   
Hi, glad all went well for you! i was the same after my 1st infusion i had so much energy for days after cleaning my house top to bottom wasn't able to do that for a good few months before! sadly i had a reaction on my 2nd infusion and had to come off it :-(long may it continue for you though. Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)

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