Why won't doctors listen?!

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Zazucat
Regular Member


Date Joined Dec 2006
Total Posts : 177
   Posted 11/23/2009 8:41 PM (GMT -7)   
I went in for my 5th colonoscopy today. I recently graduated from grad school and moved back home from out of state- this meant switching doctors and having a scope done at a new clinic. When I had my very first scope done a few years ago, they weren't able to complete the procedure because the "conscious sedation" meds weren't enough and, although I don't remember this, I was in a lot of pain and was screaming pretty loudly, and scopes 2-4 were done with general anesthesia. So, here at home with my new doctor and the new clinic, I told them that I would probably need general anesthesia. "Oh, no", they said, "that was awhile ago, at a different clinic. We'll do conscious sedation. It'll be fine."
 
Wrong. Not fine. Went in for my scope today, after the lovely prep, a long wait in the waiting room, two attempts at an IV line before a successful prick, and an even longer wait in an ever-so-lovely and way too revealing hospital gown. Hopped up on the scope table, got my drugs injected, waited for my "conscious sedation" to begin, and... nothing. Maybe a little bit of dizziness. They started the scope.... and... PAIN... PAIN... EXCRUTIATING PAIN.... I started moaning and crying. The nurse told me to breathe, the doc told me to relax, I asked for more drugs, nothing helped. Mercifully, they stopped the procedure. The whole thing lasted about 5 minutes and I remember every second of it. Very painful and unpleasant, and kind of traumatic.
 
So, after lots of waiting around in recovery (extra apple juice, yay!) and scheduling drama, I have to see my primary doc for a pre-op physical first thing tomorrow morning, and then go to a hospital for full anesthesia with my colonoscopy. Thankfully, I don't have to re-do my prep. Unfortunately, I haven't eaten since Saturday and I'm starving.
 
And this whole mess could have been avoided if my doc had just LISTENED to me when I said that I needed anesthesia. Go figure. How do you get your doctor to listen?

j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 11/23/2009 8:50 PM (GMT -7)   
@#!*

You must be starving. Hang in there.
CD since July 2007
DM T1 since January 2008


BWS27
Regular Member


Date Joined Nov 2009
Total Posts : 37
   Posted 11/23/2009 9:09 PM (GMT -7)   
I applaud you...I couldnt handle the pain of going through that let alone not eating for that long!
28 year old husband and father of 1 (soon to be 2!!), Diagnosed with Crohns and resection surgery in Jan '09 (same ER trip), currently not winning the battle with pain, taking: 6mp, Pentasa, Prednisone and every vitamin possible! 
 
 

What lies behind us and what lies before us are tiny matters compared to what lies within us." -- Ralph Waldo Emerson


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/23/2009 10:11 PM (GMT -7)   
I guess you need to find a doc that will take you seriously when you say "no one touches me unless I'm completely under", that's what I tell them and they listen...I'm demanding that way, with good reason, I have issues with perianal crohn's skin tags, they take one look "down there" and they know I mean it when I tell them no one touches me unless...

:)

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 11/23/2009 10:14 PM (GMT -7)   
I remember one of my scopes, I had some pretty good pain when they tried entering my small intestine. After a few tries and a few yelps from me, they quit. I've gone 4 days (of bowel rest) without eating before, and it wasn't much fun. Hopefully everything will go smoothly tomorrow.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/24/2009 7:34 AM (GMT -7)   
I also use GA too.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/24/2009 7:35 AM (GMT -7)   
Sorry you had to suffer so. Sending good wishes for your scope!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zazucat
Regular Member


Date Joined Dec 2006
Total Posts : 177
   Posted 11/24/2009 8:15 AM (GMT -7)   
Just had my pre-op physical... I drove 20 miles to my primary clinic, sat on the table, and they listened to my lungs as I breathed. A $30 copay for that! And they'll probably charge my insurance another $200 at least... this is what's wrong with the American health care system... that's another rant...

The thing is, I really do like my new GI. She just didn't listen. Sometimes I feel like we have to play their game, you know? Like I had to go through this mess for them to take me seriously about the anesthesia. I wish there was something, anything, patients could do to have some control in this game.

Thanks for the kind wishes. I cannot WAIT for my dinner tonight (assuming all goes well and I can finally eat!!!)
 


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 11/24/2009 9:22 AM (GMT -7)   
Awwww poor you these are the tests i dread when i was first diagnosed at 13 they done a colonoscopy without any sedation and i remember it like it was yesterday! the pain was awful i dread being called up for another one i will demand to be knocked out or their not doing it. Enjoy your dinner!! Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 11/24/2009 5:10 PM (GMT -7)   
Yup, sometimes you have to just plant your feet and say it is my way or the highway.

ZaZu, I also had a gastro I really liked. But I wanted to do my scopes w/o sedation, just analgesia. She wouldn't. So I wouldn't. It was kind of a Mexican stand-off for about a year and a half or two years. Then I found the two abstracts (and the full articles) that I've posted links to here several times thru the years about colonscopies w/o sedation. She actually, after reading the articles, underwent both an upper endoscopy and a colonoscopy w/o sedation before she would agree to mine w/o. We then came to a meeting of the minds and I'm fairly good about having my annual colonoscopy every two years and she does them w/o sedation. We are then both happy and both get what we wanted.

Other times, other doctors, I've just said "no" on other matters. And there have been times I've just told them until you explain it until it makes sense to me "it ain't a gonna happen".

This is OUR body, OUR health, WE are the ones who endure the benefits or consequences of any test, any procedure, any decision regarding our health care.
 
At least your new gastro withdrew the scope and rescheduled you for general anesthesia for a colonoscopy. I've read of those SOB doctors who continued on w/the patient screaming in agony thru the entire scope.


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 11/24/2009 5:13:27 PM (GMT-7)


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 11/25/2009 1:00 AM (GMT -7)   
I woke up with my second scope, and have been scared to have one ever since. I would love GA, and frankly I may not just ever have one unless I can get GA. I was in a lot of pain, and was trying to get away and off that table! My GI dismissed my concerns, and wanted me to go the usual route again. Nope buddy, not gonna happen!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.


Aislin
Regular Member


Date Joined Feb 2004
Total Posts : 53
   Posted 11/25/2009 3:09 AM (GMT -7)   
Ugh, you poor thing that is ridiculous! I remember from my first colonoscopy I was saying ow ow then they hit me with some more meds and I didn't remember anything after that. I had a different doctor the second time but I was so scared I kept telling everyone, "Oh, oh I felt it last time!" lol. I didn't get a general but I ended up not feeling a thing. Doctor told me I was difficult to sedate so from now on I would be put under general anaesthesia.

I have just had to do the prep for a CT scan, was asked to do another colonoscopy and said I'd rather not so now I am doing a gastroscopy with just fasting. But oh I feel for you, the whole drama of the prep and not eating, it's horrible.

I hope you never have this much trouble ever again!
Female, mid-20's, lives in Australia
 
Symptoms since 99', Dx 2003, Right Hemicolectomy 2004, Trying to find the magic combination to manage this silly disease :)


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 11/25/2009 5:21 AM (GMT -7)   
I never remember a thing...
A low tolerance maybe?
There has to be some kind of local, that should put you under enough...
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole.More over the counter vitamin-D. Remission since surgery and 5-years, of 8-week Remicade.
.

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