Going through a relapse after 3 years, any advice? not handeling it well.....

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Xx Claire xX
Regular Member


Date Joined Mar 2005
Total Posts : 94
   Posted 11/24/2009 11:40 AM (GMT -7)   
hi everybody
i havent written on hear for ages and i hope you are all well. so just to say a little about my background, im 20 and 3 years ago i had major surgery to remove a lot of my small bowel and caecum and have them resected. I was left far to long before suyrgery and my disease had spread rapidly, what was supposed to be a 2 hour op turned into 6 hours and i spent a few months recovering.
 
 But since the operation my quality of life improved 100% i was able to work, go out and enjoy myself and i managed to get myself to university in 2007. Unofrtuantly i wasnt prepared for what university brang, i was doing my nursing studies but my body just couldnt cope with the work load and hospital placements i had to go on for months. i was sick pretty much every month and soon became depressed. ive been on anti depressants for a while and they seem to be doing the job but in may this year i had to drop out of university. i felt like i had failed but my health just couldnt keep up. I have mal absorbtion problems because of the surgery so was used to regular boughts of pain and diahorrea.
 
But lately the symptoms were getting worse and last wednesday a colonoscopy revealved what i had feared for months, the inflammation was back in my small bowel. i didnt get the chance to speak much to the endoscopist but im seeing my gastro soon so hopefully will find out the extent of it. ive been put back on pentasa 3 times a day, but cant get it out of my head that its back and cant help but worry. i cant really face going through what i did last time when i was 16, i feel like ive already lost 5 years of my life i dont want another 5 years suffering as i did before. i realise i could be over reacting as the tablets might control it better than i expect, but now i no its there i am living in fear of more surgery. doctors have told me more surgery could be life threatening as i probably have lots of adhesions (scare tissue) and it would be risky to go digging about again.
has anyone been through anything similar or any advice on how to stay positive? since my diagnosis i have turned into such a worrier and negative person, the stress makes me ill let alone the crohns. i would be greatfull for any advice or kind words. many thanks
Claire, 18
Diagnosed with Crohns march 2005
started on Liquid feed for 2 months +12 a day prednisolone,
Aziothioprine 100mg
pentasa 1500mg
calcium and vitamin D
 
Small bowel resection october 2006
 
Osteoporosis diagnosed 2006
Possibly relapsing! :(
 
 
Life is what you make it!!!
 
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/24/2009 11:57 AM (GMT -7)   
Hi Claire, Sorry you are not feeling well. My prayers are with you. Has your GI Doctor
ever talked to you about Remicade or Humira? I was on remicade but was switched to humira.
they are both good drugs.

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


Xx Claire xX
Regular Member


Date Joined Mar 2005
Total Posts : 94
   Posted 11/24/2009 12:26 PM (GMT -7)   
thanks a lot i have heard many times about remicade maybe its something i should bring up if its going to improve my chances, a lot have people have talked about it and i even met a lady in hospital who was having it and she said it worked for her. thanks for the afvice! xx
Claire, 18
Diagnosed with Crohns march 2005
started on Liquid feed for 2 months +12 a day prednisolone,
Aziothioprine 100mg
pentasa 1500mg
calcium and vitamin D
 
Small bowel resection october 2006
 
Osteoporosis diagnosed 2006
Possibly relapsing! :(
 
 
Life is what you make it!!!
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/24/2009 12:39 PM (GMT -7)   
Claire were you med free this whole time since your surgery? If thats the case I did the same after my first resection and 3 years later I wound up having to have another resection. Since then I have not been med free again and am in remission again. I would suggest you get back onto the Imuran or 6mp and stay on them. Crohns is a chronic and incurable bowel disease and left untreated its going to continue to do damage on a microscopic level. The 6mp or Imuran seem to have the most success in keeping folks in remission the longest. I have heard a few who only had to do brief Pred doses to get the disease back under control again. Good luck and welcome back. Just sorry to hear you are flaring.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Xx Claire xX
Regular Member


Date Joined Mar 2005
Total Posts : 94
   Posted 11/25/2009 2:20 PM (GMT -7)   
thanks for reply, yes i was meds free for the 3 years was on azathioprine for a while afrer the op but not been on it for at least 3 years, just started the pentasa so will see how that goes but will hopefully see my doc in a few weeks fingers crossed! :)
Claire, 20
Diagnosed with Crohns march 2005
started on Liquid feed for 2 months +12 a day prednisolone,
Aziothioprine 100mg
pentasa 1500mg
calcium and vitamin D
 
Small bowel resection october 2006
 
Osteoporosis diagnosed 2006
relapse of the small bowel november 2009 :(
 
 
Life is what you make it!!!
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 6:59 PM (GMT -7)
There are a total of 2,735,095 posts in 301,275 threads.
View Active Threads


Who's Online
This forum has 151370 registered members. Please welcome our newest member, calvin1242.
359 Guest(s), 16 Registered Member(s) are currently online.  Details
imagardener2, 0311, Fl Drifter, JNF, Serenity Now, Scaredy Cat, smlafleur, Ljm2014, LG13, ASAdvocate, Gabzz, platinumpixie, saozemko, Mustard Seed, Blu's Mama, LanieG


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer