Pulmonary Emoblism & Greenfield filter??....

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ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 11/24/2009 11:58 AM (GMT -7)   
Hi everyone  tongue I haven't been on this site in a long time. To make a long story short, when I was last in the hospital with a flare up I had a pulmonary embolism. They put a greenfield filter in me and said it had to be removed at one point. It's now been over a year and they told me it should have come out after 6 months. They've also found that it has migrated, lost 2 of its legs, and is of course growing into my vein. I'm getting it removed next Friday. What I want to know if any of you have had this done before. I'm soooooo scared because I don't know if it's surgery and if these people understand that the stupid thing is implanted in my body now. I was told my my GP that it would require major surgery since it's growing into my vein. I'm so confused and just want to know if I'll be safe or atleast knocked out for this procedure. They don't knock you out when they put it in, believe it or not, and it was horrible  sad Any info would be helpful!!!
 
Thanks :)
Aud

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/24/2009 2:06 PM (GMT -7)   
Aud,

I have a close friend who has an IVC filter in (the other name for it). She had pulmonary emboli last year, and doesn't have plans that I know of to have it removed. Granted, now she is pregnant, so she definitely wouldn't have anything done for the time being. Anyway, I also had pulmonary emboli at the beginning of October.

I know that if the filter is implanted, they can resection the vein. I don't know if that's an ideal thing to do, but it can be. Vascular surgery is amazing, the things they can do with such small pieces of anatomy...

I hope all goes well for you. Maybe they have to get in there to know what they're going to do. Sometimes surgeons aren't the best at patient care. Maybe they do know what they're doing and they just don't project that well.

Did you have a lot of chest pain when you had the embolism? I'm still having a little pain, and some days it hurts to take a deep breath in. My doctor says it's normal.

I hate hearing that another person went through that...it was horrible for me.

Let us know after how surgery went!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 11/28/2009 8:16 AM (GMT -7)   
Thanks for the info!
 
When I had the PE I didn't really have alot of pain. What I remember was that I couldn't breath and I was forcing myself to take a breath in and out because it felt like my body couldn't do it. It was very scary, but I thought I was just having a panic attack in the hospital or something haha. I'll let you all know how this surgery goes! Thanks again!!
 
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/28/2009 8:28 AM (GMT -7)   
ImAud I don't have any experience with this procedure, but wanted to send prayers your way that this thing is removed in the most painfree way possible. Ask the doctor your specific questions, to give yourself some peace of mind.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ImAud
Regular Member


Date Joined Jul 2008
Total Posts : 113
   Posted 11/30/2009 10:13 AM (GMT -7)   
Thank u :) I'll be talking to one of the nurses today once they call me back...I'm going to be asking ALOT of questions! If I know what they plan on doing, then I'll be so much more relaxed! It's stupid to say, but I'm so worried that if they mess up they would tear my inferior vena cava, a main artery, and I'd bleed out and die cry   I've been told by two of my other doctors that to remove it could possibly be major surgery because they don't want to tear your artery out since the filter becomes attached to it. So I really don't know who to believe! I'm just scared that they don't know the whole situation and that they're going to make a huge mistake...I'll ask questions and tell them to stop if I don't feel comfortable! Thanks again though! :-)
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