6 weeks of TOTAL ENTERAL NUTRITION ARE UP! GREAT RESULTS

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Catasmom
Regular Member


Date Joined Sep 2009
Total Posts : 54
   Posted 11/25/2009 2:33 PM (GMT -7)   
turn turn turn turn tongue smilewinkgrin smilewinkgrin smilewinkgrin tongue smilewinkgrin smilewinkgrin smilewinkgrin :-) eyes eyes eyes cool cool yeah yeah yeah yeah
Hey Everybody....

My daughter Cata ended her 6th. week of total enteral nutrition taken orally through the day (no GN tube)

and the labs are in.....




***Sed rate went down from 53 to 3 (almost invisible!)

***All the chemistry is NORMAL.

***She put on 6 pounds in 6 weeks.... and they are NOT fat... needs new school uniforms.

***She is slowly incorporating food , counting calories of solid vs. formula (500 cal. of the 1900 solid the rest liquid the first week.)

***Winner formula for kids: SPLASH E028 elemental formula. (Best taste and comes in cute juice like cartons that friends will not make fun of)

***We are watching what she eats, staying with proteins mainly.

If any person needs advice in how we implemented this with their kids, let me know... I will be very happy to help and give them all the tips. Doing this orally helped her keep an optimum energy level through the day, enjoy all her activities (and believe me they are many) and even sleep over at her friend's homes.

Thanks to all of you who gave us your support. This forum is our CD extended family.... turn turn turn turn tongue smilewinkgrin smilewinkgrin smilewinkgrin tongue smilewinkgrin smilewinkgrin smilewinkgrin :-) eyes eyes eyes cool cool yeah yeah yeah yeah turn turn smilewinkgrin smilewinkgrin tongue yeah yeah yeah
Mom of a 12 year old girl diagnosed on Oct. 2007.
Prednisone (tapering off)/Asacol/6-mp/Vitamins (Centrum Kids)/Calcium (Oscal)/Probiotics: Primal Defense Kids/ Omega 3: Coromega/ Total enteral nutrition with Splash E028 and Vital Jr.

Warm healing wishes from the Miami beaches....


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 11/25/2009 2:43 PM (GMT -7)   
Wow, sounds like that really worked for her.

I haven't been around this forum for long, how bad was her disease prior to starting this dietary regimen?
CD since July 2007 - prenatal vitamins, vitamin D, fish oil, flax oil, Flora-Q probiotics, pescetarian healing diet
DM T1 since January 2008 - Apidra via OmniPod


Catasmom
Regular Member


Date Joined Sep 2009
Total Posts : 54
   Posted 11/25/2009 2:59 PM (GMT -7)   
She had been flaring since june (2nd. flare), with 7 to 10++ BM a day, pure water, bad cramps during and after food, with any food, gas, bloating, very low energy, muscle pain, head aches. Prednisone did not work. The GI was about to put her on Remicade when I got this book from the public library:Beat Crohn's: Getting to Remission with Enteral Nutrition by MArgaret Oppenheimer.
The GI was skeptical we could do it, but WE DID!!!
so..... that's the story in a nut shell
Mom of a 12 year old girl diagnosed on Oct. 2007.
Prednisone (tapering off)/Asacol/6-mp/Vitamins (Centrum Kids)/Calcium (Oscal)/Probiotics: Primal Defense Kids/ Omega 3: Coromega/

did 6 weeks of Total enteral nutrition with Splash E028 and Vital Jr. (also tied Peptamen) (1900 cal. a day)

Slowly incorporating solids. (500 cal solid food + the rest in formula)

Warm healing wishes from the Miami beaches....


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 11/25/2009 3:16 PM (GMT -7)   
Way to go!

My doc doesn't believe in diets much, although she did tell me about the SCD diet. I asked about enteral nutrition, and she put me on remicade (which I reacted very badly to and can never have again).

The book I was talking about in the other thread ('The New Eating Right for the Bad Gut' by James Scala) suggests enteral nutrition or even total parenteral nutrition for extreme flares. That's the way I want to go if I ever need to.

Hope your daughter continues to do well. I love hearing about success stories :)
CD since July 2007 - prenatal vitamins, vitamin D, fish oil, flax oil, Flora-Q probiotics, pescetarian healing diet
DM T1 since January 2008 - Apidra via OmniPod


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 11/25/2009 5:03 PM (GMT -7)   
That's wonderful news! I'm so glad I saw it before going off for Thanksgiving. (I like all your little happy, smiley people, too.) I bet Cata is happy she's going to get a little turkey tomorrow (or whenever you folks like best for the holiday) along with her Splash. Happy holidays to you and all.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 11/25/2009 8:48 PM (GMT -7)   
It truly is fantastic news! Praise the Lord! I am so happy for you both! Have a wonderful Thanksgiving!!!

I think Margaret Oppenheimer's book, "Beat Crohn's" is beginning to educate parents and doctors to yet another option for treatment! yeah
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312

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