Entocort is EXPENSIVE!!!

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Grace_1974
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Date Joined Oct 2005
Total Posts : 422
   Posted 11/27/2009 11:48 AM (GMT -7)   
I had no idea! I just went to fill the prescription and they tell me $700 with my discount!! It's over $1000 per month. I don't have health insurance and I know there's a patient assistance program for it but what do I do in the mean time???? I'm flabbergasted. . . I put a call in to the Dr. to see what the next move is.

*hugs*

Dana

LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 11/27/2009 12:51 PM (GMT -7)   
That's outrageous...I'm so sorry for you and anyone who has to deal with this. I still can't believe how difficult it is for people to get medical care and medication in order to function semi-normally. I hope everything gets worked out though!! Let us know what happens.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 11/27/2009 1:11 PM (GMT -7)   
I had no idea how much medications cost until I asked my dad a few months ago after I was on entocort for 5 months.... I was so shocked!
19 y/o female, diagnosed crohns december 2008
currently taking 500 mg pentasa 4x daily


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 11/27/2009 2:52 PM (GMT -7)   
Wow. I always thought it was cheap like prednisone, but I guess not.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


Grace_1974
Regular Member


Date Joined Oct 2005
Total Posts : 422
   Posted 11/27/2009 3:53 PM (GMT -7)   
Okay, for anyone else out there who is ever faced with this. As of now, there is not a patient assistance program, but there is a little help. Your Dr. has to call the drug company, which is now Prometheus laboratories, not Astra Zeneca, and they can send his office samples of the Entocort. I'm not sure how much they are going to give, but come Monday I'm having my Dr. call. Not having insurance can turn one into a good patient advocate, even if it is for yourself :)

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 11/27/2009 5:16 PM (GMT -7)   
It is extremely expensive. I have been on it for a few months and my doc doesn't want me to wean completely off for another 3 - 4 months. It is one of the reasons I had my resection surgery to begin with, to get off the expensive meds. But now three years I'm back in the sam boat. It seems to work for me so I'm not complaining. I have insurance thank goodness, but it is still expensive.

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


Valerie3
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Date Joined Feb 2009
Total Posts : 529
   Posted 11/27/2009 8:47 PM (GMT -7)   
Wow, I can't believe it's THAT much there. Without insurance here, the full price is $186/month (Canada) which I had to pay for a couple of months. I could never pay that much for medication though, wow.

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 11/27/2009 8:48 PM (GMT -7)   
Buy it from Canada Pharmacy for $60 (Yes!!!!!!) a month.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 11/27/2009 8:53 PM (GMT -7)   
My Canadian pharmacy sells it generic, $89 for 100 3mg pills.

Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 11/27/2009 10:29 PM (GMT -7)   
There is no assistance program. I bought it from Sam's Club pharmacy I think it was a little less than $500 for 90 pills. Sam's is cheaper than Wal-Mart. I don't think you will find it for less anywhere else.
July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying... Enteral Nutrition, VSL#3, Primadophilus Reuteri, Folic Acid, Vitamin E


Grace_1974
Regular Member


Date Joined Oct 2005
Total Posts : 422
   Posted 11/27/2009 10:39 PM (GMT -7)   
I've ordered meds from Canada before when I was on 6mp. . . much, much cheaper! I may look into that again. Thanks for reminding me :)

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 11/28/2009 10:06 AM (GMT -7)   
Why not just go onto Pred, it is much much cheaper. Good luck!

Gail*Nanners*


Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ronyan
New Member


Date Joined Nov 2006
Total Posts : 14
   Posted 11/28/2009 12:25 PM (GMT -7)   
I'm glad I'm still on my parents' insurance, although that won't be the case much longer. I just got put on entocort 3mg 3x a day because a small bowel enteroscopy (pill camera) revealed quite a bit of inflammation in the middle-end portion of my small intestine (it was apparently just out of reach for a colonoscopy to detect).

Anyways without the insurance the price would be $914 for 90 capsules! That's unbelievable, about $10.16 per capsule.

Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 504
   Posted 11/28/2009 12:57 PM (GMT -7)   
That is rediculously expensive.  I was on Entecort when it first came out years ago, and I did not get the benefit from it that I get from prednisone.  I hope you can get some samples from your GI to try to ensure they will work for you before you have to put out that kind of money.
 
All the best,
Julia
 

Rider Fan
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Date Joined May 2008
Total Posts : 1434
   Posted 11/28/2009 2:13 PM (GMT -7)   
If you are forced to get meds online from a Canadian pharmacy make sure you inspect your pills very carefully. Entocort is only made by AstraZeneca, as it is a brand name.

"Canadian" internet pharmacies often get their product from India, since drug companies have stopped shipping directly to the internet pharmacies as they cut into the number of American consumers and insurance companies they can gouge.

This means the internet pharmacies go to the cheapest source they can find - often India - which has a huge black market in pharmaceuticals. This black market involves small companies cooking up their own version of brand name drugs, usually Viagra and such but who knows what else. There is no quality control at these underground companies so you could be ingesting anything.

http://www.bbc.co.uk/worldservice/specials/1718_pills/page4.shtml
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 11/28/2009 6:03 PM (GMT -7)   
Rider Fan said...
If you are forced to get meds online from a Canadian pharmacy make sure you inspect your pills very carefully. Entocort is only made by AstraZeneca, as it is a brand name.

It's also available generically in Canada.

Grace_1974
Regular Member


Date Joined Oct 2005
Total Posts : 422
   Posted 11/28/2009 7:01 PM (GMT -7)   
This may be a weird question and something that cannot possibly happen, but could my doctor call in a prescription at a Canadian drug store if I had someone to pick it up and mail it to me? That way I'm not taking my chances ordering online from a pharmacy I'm not sure about. I'm just exploring all my options here. . . again I apologize is this is a silly question.

GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 11/28/2009 7:21 PM (GMT -7)   
There are many Canadian pharmacies that have both online and brick and mortar stores.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1434
   Posted 11/28/2009 8:39 PM (GMT -7)   
GDen said...
Rider Fan said...
If you are forced to get meds online from a Canadian pharmacy make sure you inspect your pills very carefully. Entocort is only made by AstraZeneca, as it is a brand name.

It's also available generically in Canada.


Interesting, I didn't realize the patent had expired. Thanks. Do you happen to know who the producer is?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/28/2009 9:02 PM (GMT -7)   
Back in the day when I was on my parents insurance, when we picked up meds, the paperwork showed how much it would have been and how much it was with insurance....huge differences. I went to pick up an Advair discus about a month ago and it cost $230 (my prescription insurance got screwed up for a while) so I went back to my dr and got samples. They gave me 2 months worth of samples, which was like them handing me $70 (that's how much I found out it would have been with insurance for 2 months worth).

It bugs me how much pharmaceutical companies can charge for drugs. Humira is about $1300 a month without insurance...crazy!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 11/28/2009 9:28 PM (GMT -7)   
Rider Fan said...
Interesting, I didn't realize the patent had expired. Thanks. Do you happen to know who the producer is?

The patent for drugs in Canada is shorter than in the US. It's my understanding that once a drug goes generic anybody can make it. They need to come up with their own formulation though. I've ordered lots of Asacol from an online Canadian pharmacy and have gotten it from two different manufacturers. I had my gastro look at the pills and he thought they'd be fine, though it seems impossible to tell unless you do chemical tests on them.

Aislin
Regular Member


Date Joined Feb 2004
Total Posts : 53
   Posted 11/29/2009 12:35 AM (GMT -7)   
Omg that is ridiculous!!!
Female, mid-20's, lives in Australia
 
Symptoms since 99', Dx 2003, Right Hemicolectomy 2004, Trying to find the magic combination to manage this silly disease :)


redone
New Member


Date Joined Nov 2009
Total Posts : 19
   Posted 12/3/2009 6:55 AM (GMT -7)   
I couldn't believe my eyes when I had my Entocort perscription filled out, I (thank god) have insurance so I only had to pay $10.  When I got in the car I looked at the receipt the cost was $495 for 200 pills, I said to my hubby, what the hell do people who need this do if they don't have insurance?!?! I just can't even imagine.
 
It's insane that they can charge so much for medications.
37 y/o female.
Diagnosed in 2001
Current meds: Entocort, Vitamin D & Calcium
Starting Remicade on November 23, 2009


Grace_1974
Regular Member


Date Joined Oct 2005
Total Posts : 422
   Posted 12/3/2009 9:42 AM (GMT -7)   
Lucky for me I had a fellow crohnie. . . and my doctor is calling the company so they will send me some samples. I don't know anyone who could afford that. Just makes me mad that is half that price in other countries!!

karasmommy
Veteran Member


Date Joined Mar 2005
Total Posts : 589
   Posted 12/3/2009 11:41 AM (GMT -7)   

It is riduculous how much it costs - if I get it at a local pharmacy I pay $250/month.

If I mail order it from my Insurance company, 3 months will cost me $50, just takes almost (2) weeks for me to get it from there so I usually end up getting the first month filled at the local phamacy and then getting the next few months worth via mail order.


Ellen
Diagnosed with Lupus - April 2002
Diagnosed with Crohn's Disease (and all the lovely things that come with it) - January 2003 (problems since early 1990)
Fibromyalgia 2005 
Normal Meds:  Ambian 10mg, Flexeril 10mg as needed, Plaquenil 400mg, MTX 25mg Injection, Probiotics
"Extras" Right Now for Crohn's Flare:  Pred 5mg, Entocort 9mg

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