Crohn's and drinking

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LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 11/28/2009 6:09 PM (GMT -7)   
I know we've had a few discussions about this (I can only find one in search), but I'm a little more curious about drinks excluding beer and wine.

I've seen so far that beer is more often avoided, and that wine is okay for some in moderation.

I don't like either of those, but I'm an absolute sucker for margaritas...I had one during a layover at the airport because I hate flying, and it helped me get through the flight. Navigating the airport was a different story, but hey, I made it through.
I didn't really feel bad the day after...I had increased BM's, but everything was solid, and I had been having cramping on and off lately anyway. It didn't trigger any flareup though. I just wonder if I'm playing with fire here? I really, really want another one, but I don't know what to expect.

Does anyone else drink alcohol along these lines? Like, daiquiris, pina colada, margaritas, etc.

I read a study that showed drinks higher in sugar were worse, but that wine and beer were not as bad...It seems to be the opposite for me.

Maybe I just need a slap in the face and a "pull yourself together!!"
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 11/28/2009 6:12 PM (GMT -7)   
I think if you had one, and didn't have any disastrous results go ahead and have another! It's all about trial and error right?
19 y/o female, diagnosed crohns december 2008
currently taking 500 mg pentasa 4x daily


LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 11/28/2009 6:37 PM (GMT -7)   
I would agree, but who knows what the negative symptoms were from? It was my first period in two+ months, I was on antibiotics, BUT I was on a low dose of prednisone so I don't know. Like I said, I don't know if I'm playing with fire here. I just really want a drink.

I just know I would feel absolutely stupid if I messed everything up over a drink. And yet we do that all the time don't we? Why is it so difficult to stop consuming these things?...

The SCD was easier than staying away from a margarita for me. Of course now I've broken SCD rules with sugar and alcohol hmmmm...
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 11/28/2009 6:48 PM (GMT -7)   
My gastro says drinking in moderation should be fine. I avoid beer because with CD now the gas is even worse, and for me sugar seems to cause increased gas and diarrhea. I've drank harder stuff (rum, vodka, etc.) without any noticeable CD effects, but my nurse did point out my GGT levels were elevated. ;)
Cimzia, Asacol

Post Edited (GDen) : 11/29/2009 8:28:01 PM (GMT-7)


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 11/28/2009 7:04 PM (GMT -7)   
You can have alcohol on SCD, I'm just not sure what kinds. Wine without added sugar is fine, and certain alcohols like bourbon and vodka are okay occasionally. I know I've seen SCD recipes for things like mojitos.

You asked why it's difficult to stop consuming things that you know are bad for you. For me, it seemed to be age related. I used to eat a lot of garbage, and really had no desire to give up things like sugar. Then last year, things changed. I started SCD and have easily stayed on the wagon the whole time. I can't believe how easy it's been! I think that aging has brought a sort of discipline that's more difficult to have when you're young. It might also have to do with how long one has lived with the disease. I used to eat things like french fries, knowing that it may or may not agree. Now, I just don't think the risk is worth it. So, I guess what I'm saying is that it will get easier to resist temptation with a little time :-).
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 11/28/2009 7:31 PM (GMT -7)   
I did not drink much before my dx may be 6 times a year, but after my dx I stopped. I did not feel it was worth it.

I did not feel I was worse in the bowel department, just that I felt hung over, and begin sick with out the alcohol is bad enough for me.
And after I got hepatitis I have never even thought about alcohol.

But I think people just have to find out for them selfs. I don't feel like I am missing anything giving up alcohol.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/28/2009 8:03 PM (GMT -7)   
Part of the reason I do like it is because it help calm me down. I don't like taking pills to get rid of stress because I end up falling asleep for the entire day. Alcohol helps me sleep for about an hour, and I wake up feeling considerably less stressed...Though I would rather be stressed than flaring :) Too bad one leads to the other.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 11/28/2009 10:45 PM (GMT -7)   
I was told by my (old) GI that 2 or 3 drinks per week should be okay.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.

Amor fati - Nietzsche


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 11/29/2009 6:26 AM (GMT -7)   
I have a drink every week or every other week. I love dring the fruity drinks ( Rum Runners, Margaritas, Rum and cokes) I don't have any problems drinking in moderation.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 11/29/2009 6:34 AM (GMT -7)   
I drink (LFTs etc all fine if theres ever an inkling of trouble will definitely cut back a bit) now I'm final year of uni I only drink about once a week usually on a weekend, last few years was a lot more than that but hey I was just enjoying the uni lifestyle - last chance to go crazy before I'm forced to grow up when I graduate!

I tend to drink cider if I'm relaxing - but only one or two as I can't handle the bloating if I have anymore than that! But my main drink at the moment is vodka and cranberry juice - slightly cheaper version of a Woo Woo my favourite cocktail (vodka, peach schnapps, cranberry juice and lime) but I do enjoy most cocktails! Whenever I drink my system inevitably speeds up a little bit so the following morning can give me a little bit of trouble but its no worse with any particular drink.

My doctors are all fine with me drinking as long as my bloods etc are fine, their main concern is making sure I live as normally as possible. I've found that with me it makes absolutely no difference on my Crohn's - if anythings going to cause me trouble its the late nights!
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/29/2009 8:03 AM (GMT -7)   
I seem to do okay with mixed drinks, I don't like beer or wine anyways. But I really don't drink anymore, not because it caused me problems, but because my hubby doesn't drink anymore, and I want it to stay that way:) When I did drink I loved strawberry daiquiri's, and never had much of a problem with them. It sounds like one or two should be okay for you. Only you will know if it is a problem, and if it is then you learned what you can and cannot tolerate. I don't think it would trigger a flare, but more of a bad day or so. And it doesn't sound like it did much to you, so go ahead and enjoy a few.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 11/29/2009 8:32 AM (GMT -7)   
I'm actually perfectly fine with hard liquors, but beer tears my stomach up.  I don't drink often but when I do it's usually a party or special occassion so I have a pretty large amount at once...never had a problem. Sugary/fruit drinks give me gas but thats about it. 

Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings
Current Meds: Cimzia, Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: Nov. 20th to Take Down Abdominal Fistula!!!
 

pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 11/29/2009 8:54 AM (GMT -7)   
I drink beer two or three times a year,which makes me go often.
Cider for me is Miralax in disguise...
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole.More over the counter vitamin-D. Remission since surgery and 5-years, of 8-week Remicade.
.


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 11/29/2009 8:55 AM (GMT -7)   
I loved trying all different kinds of beers. Since my pancreas blow-out (thanks imuran) my GI says no alcohol. I never drank much maybe a six pack would last me a month or even longer but there are times when I really feel like I could use two beers to calm me. It is a bummer to have to say no. So now on occasions I will take about 4 ounces? of someones beer to taste a new label.

I don't think alcohol is good for us with our disease and the medications that tax our body.
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.  Give it about ten days.  I am NOT a healthcare professional.   Ask your doctor if this is safe for you. 


Easier2Run
Regular Member


Date Joined Nov 2008
Total Posts : 62
   Posted 11/29/2009 8:22 PM (GMT -7)   
Beers always tear my stomach up... but I do much better with liquors... and I'm a total liquor snot so I go for top shelf... Grey Goose and cranberry is a dreammmmm.
-Heather, 24 yrs. old
____________

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Humira, Flagyl 250mg, Lexapro 20mg, Wellbutrin SR 150mg


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 11/29/2009 8:27 PM (GMT -7)   
It's definitely error and try each and everytime, One day I can be fine and drink like a fish. A month later I may only drink 1 drink and feel pain.
I do not drink beer (really hurts my stomach) and I suffer from migraines so wine isn't my thang! I drink high surgar drinks. I do not drink often every few months (even if that, my big drinking moment is New Years lol)
Good luck, hope your able to enjoy a drink or 2 every once and awhile.
Tracy from Montreal,Diagnosed with CD at age 18 but went undiagnosed for 10 years. 17 years with CD, Remicade for 1 year 4 months. Caused remi induced RA, crippled for 8 months
on humira, working for RA but CD is getting worse everyday,been on humira only 4 weeks
Pantasa 8 tabs a day
Provacede 1 daily for the ulcer's
Imuran 1 and half tabs (50mg)
Previous meds: Pantoloc, Predizone, tapered down from 10 pills 8 different times.(horrible side effects),Lots more,list is way to long.
Unable to work last 2 years and counting.Scope says I'm clear of CD,waiting for biopsie. May have Endometrioses, again waiting for another apt.


Valerie3
Veteran Member


Date Joined Feb 2009
Total Posts : 529
   Posted 11/29/2009 9:27 PM (GMT -7)   
I drink wine a few times a week, never had any problems. I can't drink beer anymore because it gives me horrible D, but as for any kind of mixed drinks, I've never had any problems so far, but I've also never had more than a few in a night during the time I've been sick. My general rule of thumb is that I won't drink if I'm already feeling bad, but if I'm feeling OK, then why not? Somehow miraculously a couple of weeks ago I did manage to go out and have a few beers without anything bad happening though, but I wouldn't test myself again LOL

yankeespg23
Regular Member


Date Joined Dec 2007
Total Posts : 63
   Posted 11/29/2009 9:35 PM (GMT -7)   
I have Crohn's for 22 yrs now. Have never had a GI doc yet to say drinking was good for us.
If people really want to drink, they will find a way to rationalize it.
I personally won't risk it. Since I was only 12 yrs old when I was dx, I never felt the urge or desire to drink.
Remember, you don't need to drink to have a good time. 
34 yr old Male from NYC, DX with Crohn's in oct of 1987
Resection in 1990
Remicade as of  Aug 6th. 2009
Entocort 3mg, 3 pills each morning.
 Cipro 2x a day.


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 11/29/2009 9:50 PM (GMT -7)   
yankeespg23 said...
I have Crohn's for 22 yrs now. Have never had a GI doc yet to say drinking was good for us.
If people really want to drink, they will find a way to rationalize it.

I personally won't risk it. Since I was only 12 yrs old when I was dx, I never felt the urge or desire to drink.

Remember, you don't need to drink to have a good time.

Do u eat candy?

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/29/2009 10:00 PM (GMT -7)   
Thank you all for your input :) I do agree that you don't need to drink to have a good time, but it's not just about having a good time for me. Like I said earlier, it helps with stress, and indulging every once in a while helps me feel a little bit more normal.

I'll be trying a margarita again soon to see what happens so wish me luck.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 11/29/2009 10:39 PM (GMT -7)   
Good Luck and Cheers!


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/29/2009 11:01 PM (GMT -7)   
GDen said...

Do u eat candy?


I miss candy sad. I gave it up a year ago, but still dream about it. Last night I dreamed I was gorging on cookies, pie and ice cream, peanut butter cups, and chocolate mints yeah.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 11/30/2009 3:11 AM (GMT -7)   
Mmmm, candies with liquor in them!
Cimzia, Asacol


Steakum824
Regular Member


Date Joined May 2003
Total Posts : 40
   Posted 11/30/2009 5:16 AM (GMT -7)   
Post edited:
 
2. No discussion of medical marijuana use.  Even when you are just winking;)

Post Edited By Moderator (Nanners) : 11/30/2009 7:45:27 AM (GMT-7)


yankeespg23
Regular Member


Date Joined Dec 2007
Total Posts : 63
   Posted 11/30/2009 9:20 PM (GMT -7)   
I'm not very good with diet. I do my best to avoid things that are bad for me but I'm weak. lol
So, Yes I occasionally eat candy.
I do have to be very careful. I have 2 Strictures. 1 in the Rectum area and 1 further up where I had my surgery years ago.(Scar Tissue).
So, no popcorn, nuts etc.
It is still hard going to see a movie, smelling that great popcorn smell and just walking by.
34 yr old Male from NYC, DX with Crohn's in oct of 1987
Resection in 1990
Remicade as of  Aug 6th. 2009
Entocort 3mg, 3 pills each morning.
 Cipro 2x a day.

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