time to stop stalking and start sharing

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coolgirl09
Regular Member


Date Joined Sep 2009
Total Posts : 21
   Posted 11/28/2009 10:12 PM (GMT -7)   
I've been stalking this forum for the past three months ever since I was diagnosed with Crohns. I
figured it was time I stopped stalking and instead actually tried to participate here! First of all, thank you to all of you for your support. You have supported me without even knowing it!

I grew up throughout high school and college dealing with anal fissures. Several months ago (I'm now 27) I had more rectal bleeding and mucus and figured it was simply anal fissures. Fast forward to July of this year: I saw a doctor for the bleeding (finally), was told it was hemmorhoids, given some cream, and told it would get better. It didn't. Went back to my PCP and she did an anuscopy (which I think is pretty impressive for a PCP), and she told me she thought I had some kind of colitis. She sent me off to who now is my GI, and he did a colonoscopy a week and a half later. My only symptoms up to this point were some bleeding, mucus, and slight increase (2-4 times a day) of bowel movements.

My GI diagnosed me with Crohns in the colon and ileum and told me I had a classic, run of the mill case. I was given 40 mg pred. and took it for ten days. It did nothing! In fact, my Crohn's was 10 times worse after the colonoscopy. I was now having D 10-15 times daily with cramping. Ick. GI told me I needed to pick Humira or Remicade. From diagnosis to being told I needed Remicade was only ten days. This was when I felt completely overwhelmed and convinced that my Crohns was anything but "run of the mill"!

It took my insurance company FOREVER to approve the Remicade. So long, in fact, that a month after my first colonoscopy I had lost 15 pounds and ended up in the hospital for six days for IV steroids, a blood transfusion, and another colonosopy (this time ended up being severe). I got the Remicade in the hospital (kind of ironic that I cost the ins. company thousands of dollars due to their inefficiency).

Remicade worked like magic. Seriously, I was in complete clinical remission in about 10 days. I only pray it will keep working.

Now I'm on Remicade and azathioprine. I just got off steriods. My husband and I are looking to get pregnant soon and life is looking up! Thanks again to all of you for the things you've shared on this forum. It's so helpful just to know I'm not alone.

55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 11/28/2009 10:21 PM (GMT -7)   
Wow. Thanks for sharing. YOu stalker you!!! What a roller coaster you have been on. My daughter takes 6 mp and may switch to Remicade soon. The doc did speak of methotrexate, but we won't go there. too many side effects. I am so glad yoiu have found remission. I would continue to read posts even when you are feelign healthy as to not get feelign so good you accidentally eat or do something that could cause another flare.

Take care and keep us all posted.
Jen
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15.5 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin, ensure- starting enteral nasal tube feeding soon.
 
 
 


lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 11/29/2009 6:41 AM (GMT -7)   
Good to hear another good story!! I've been on the remicade/methotrexate combination for nearly 7 years now with only a few minor hiccups with remissions lasting 2-3 years at a time! I was 15 when I got put on the MTX but in a few years I imagine it'll get switched to azathioprine or another pregnancy friendly one or whatever (as obviously that wasn't a consideration when I was 15!) so positive to hear that that combination does well too.
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/29/2009 7:57 AM (GMT -7)   
Hey Coolgirl09 and welcome to Healingwell. Now no more stalking, okay? I am glad to hear the Remicade is working well for you. Sounds like you have a GI that likes to hit your Crohns hard right away, which for you sounds good. Glad you are feeling so much better. And really glad you decided to join our family.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 11/29/2009 3:39 PM (GMT -7)   
Welcome Coolgirl09! Glad to see that the Crohns is under control and that you can start living your life.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 11/29/2009 4:05 PM (GMT -7)   
Classic case of Dr.'s starting treatment with the last resort drugs and it working.
Way to go Coolgirl09! Most of us were treated much more mildly over the years,
which costed insurance companies $$$$ and crohnies resections,and time off of work.
Now I know why my insurance keeps approving my Remicade.(3 years worth)
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole.More over the counter vitamin-D. Remission since surgery and 5-years, of 8-week Remicade.
.


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 11/29/2009 4:48 PM (GMT -7)   
Welcome to HealingWell, good to see you posting.
Humira 2 times a month, Lialda 2 X day, Phenergen PRN, Remeron 30mg day, Pain Meds, Prednisone 20mg Every Other Day
Semi@ridemr2.com -- FaceBook


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 11/29/2009 10:48 PM (GMT -7)   
Hey Coolgirl09'! Welcome! I stalked too at first. Alot longer though...like a year. It's the denial thing for me..ha. You will find so much information here and support! I'm so glad that you have found remission and the doors have opened for you to start thinking about a family! Congrats!
Flowery
 "Get busy living or get busy dying"
               
                         

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