how may crohnies are gluten intolerant or avoid gluten?

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55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 11/28/2009 10:16 PM (GMT -7)   
Thanks,
Jen
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15.5 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin, ensure- starting enteral nasal tube feeding soon.
 
 
 


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/28/2009 10:24 PM (GMT -7)   
I gave up gluten a year ago, as well as lactose, starch, and sugar. One or more definitely bothered me, because my fistulas healed up once I stopped eating them.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 11/29/2009 2:25 AM (GMT -7)   
I gave up gluten a few months ago after igg and ige testing showed i was sensitive to it... I felt better for a few weeks then felt mysteriously sick again. I started eating things containing gluten again this week and have had D and felt worse :( so out it goes again...
19 y/o female, diagnosed crohns december 2008
currently taking 500 mg pentasa 4x daily


55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 11/29/2009 8:26 AM (GMT -7)   
spookyhurst and sickandlucky,
Thanks for your input. I have found a website with lots of product lists and recipes. It should help.

Jen
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15.5 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin, ensure- starting enteral nasal tube feeding soon.
 
 
 


BellsforHer
Regular Member


Date Joined Oct 2005
Total Posts : 429
   Posted 11/29/2009 8:27 AM (GMT -7)   
I just started a gluten-free, low sugar, dairy free diet. I'm also trying to incorporate easy to digest foods, avoiding most meats. Bread is my downfall! I got some tapioca bread and it's not to bad. It didn't cause any pain at all for me. I feel like it's worth a try anyway.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 11/29/2009 8:30 AM (GMT -7)   
Dana31 have you ever tried Potato bread. When I was first diagnosed a nutritionist put me on a very strict diet much like you described. The only bread I could have was potato bread as it had no milk in it. And it was tasty!

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

55555jlw
Regular Member


Date Joined Dec 2008
Total Posts : 103
   Posted 11/29/2009 8:30 AM (GMT -7)   
So, you feel better with less D?

Good for yoiu and thansk for sharing!!
Jen
DX in 2000, (Mild to Moderate)  take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
 
Daughter age 15.5 dx with Crohn's on 12/22/08 (Moderate to Severe):  Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin, ensure- starting enteral nasal tube feeding soon.
 
 
 


BellsforHer
Regular Member


Date Joined Oct 2005
Total Posts : 429
   Posted 11/29/2009 8:32 AM (GMT -7)   
I've heard of potato bread but never tried it. I'll give it a shot :) Thanks so much for the tip!!

TookieWilliams
Regular Member


Date Joined May 2009
Total Posts : 37
   Posted 11/30/2009 1:43 AM (GMT -7)   
I went of gluten and dairy/lactose 4 weeks ago, definate improvement.  I get gluten free bread from the local bakery (although I have to microwave it before I eat it to soften it up, otherwise it crumbles). and there are lots of gluten free pancake mix, crackers, soup and such.  Dairyland also makes a lactose free milk that is awesome.  There is also gluten free pasta and I used rice noodles to make stir fry.  Hope this helps.

cayer
Regular Member


Date Joined Jan 2009
Total Posts : 76
   Posted 11/30/2009 4:56 PM (GMT -7)   
My diet is gluten free, dairy free and I strongly avoid sugar in every beverage but have the occasional desert (I am pregnant so I don't have complete control) I also cant eat corn, onion, and some other fruit and vegies. This diet helps a great deal but I know there are other foods I just cant pick up on...or don't eat frequently enough to notice a consistent intolerance.
Tina 26yrs old Diagnosed in 2000 with Crohn's surgery for perianal abscess and fistulas
currently on Imuran 125mg Motillium for digestion used in the past Remcide, salofalc, pred.
Worst pain equal to child labor was after eating home made Granola...i can still hear the screams ha ha.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/30/2009 7:31 PM (GMT -7)   
I try to avoid it along with high lactose dairy and sugar. Avoiding these really helps, and I do notice a difference when I stray from my diet.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 11/30/2009 9:47 PM (GMT -7)   
I'm trying to convince my dad (who also has crohn's) to at least give up gluten and lactose. So far, he hasn't budged. But eventually he'll get tired of feeling bad (and tired of my badgering) and give it a whirl.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/30/2009 10:10 PM (GMT -7)   
My GI just did bloodwork checking for Celiac (among other things) since my normal labs and liver function have been abnormal for a while....I'll let you know when I hear back from her (should be in the next couple days) and let you know what the test showed.
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin

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