I've been battling Crohn's Colitis for the past 10 years. The only thing that has ever knocked me into remission has been Remicade (my miracle drug.) Unfortunately I have a history of letting my health coverage expire when I have been in remission. So over the last 10 years I have gotten 3 bad flares which remicade cleared up every time, but in between, i have discontinued Remicade use every time. So here I am with my 4th relapse of a chrohns flare. I've been bleeding for 6 months straight, and my blood count is very low. I restarted Remicade again but it hasn't been as effective this time. I took the first two 300mg loading doses, but didn't notice a difference, so my GI allowed me to up the third loading dose to the full 600mg. I did notice it trying to work at first (stools started forming, and less blood loss) but the flare took back over. My next dose is in less than two weeks but my GI Doc says that its not the medicine for me anymore. I disagree, and don't want to give up on Remicade yet! I asked and recieved a prescription for asacol, hoping that it assists the Remicade if the doc somehow allows me another infusion.
I'm in the hospital now, and I just finished my latest colonoscopy. The doc said it was the worst colon he has seen, like a bomb went off in me, but I have healed 3 times now from being this bad with Remicade.
Does anyone have any thoughts on how I can talk my doc into not cancelling my next Remicade infusion? Have there been any studies where Remicade hasn't worked instantly? Is there any ways to detect antibodies or an immunity to Remicade?