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flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 11/30/2009 5:17 PM (GMT -7)   
Latley, I got the blues! I just want to go shopping, lunch , a movie...with my kids or friends just ONE time without my GUT running the show! It's soooo controlling! I think when the holidays come it's just difficult in general.
Basically staying home more latley. When I go out with non-crohnies...I feel out of sorts with them. I try finding things in common and my mind is just always on planet Crohns! What do you all do to keep your spirits high during this time of year?
Flowery
 "Get busy living or get busy dying"
               
                         


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 11/30/2009 5:38 PM (GMT -7)   
I feel the exact same way! I've had a rough time lately because pentasa is no longer working for me and I have to go back to the doctors this week and probably do a bunch more invasive tests :( and it's my schools exam period. I haven't gone out the past couple of weekends and it's been a huge drag...
What keeps me going is thinking that I'll be done exams soon and off for the holidays! When you go out with your healthy friends just try to enjoy yourself and know you can leave if you have to (that's what I do) and mostly everyone understands...
Keep smiling though things will get better soon! :)
19 y/o female, diagnosed crohns december 2008
currently taking 500 mg pentasa 4x daily


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 11/30/2009 7:30 PM (GMT -7)   
I feel the same way...people without this try to understand (sometimes), but it just doesn't work. How can we possibly fully understand something we've never experienced? And I don't want to be out with sympathizers the entire time either.
I've had some people who are just rotten in the end anyway.

It does make for some depressing times, but there are other ways to have fun I've found. I really enjoy a good book, playing piano or guitar, painting, or watching tv with my fiance (currently the first season of Star Trek).

Short walks outside are pleasant too. At some point, I think, being the social creature we've grown up expecting ourselves to be able to be is appealing until we actually try it again. But I'm not dismissing the joy of human company either. Some of the friends I do see once in a blue moon really are wonderful!! It's just that it's more pleasant in small doses...

I wish there were more communities of people like us in our areas to connect with. Even emailing helps. It's been a lifesaver for me with certain members here.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/1/2009 9:06 AM (GMT -7)   
This time of year peeps get the smurf syndrome even without crohns. I try to stay busy in my shop. If my hands and my mind are going full speed I dont feel so bad about the other going I am doing. I have been in the bathroom about 8 times sense 5 AM and it is , pardon my pun,,, cramping,,,my style. I just do what I have to do and go right back to working in my shop. Today it is clean up. I know there is a work bench and tools in there somewhere and I plan on finding them. I have a string tied on so I can find my way back to the door . Just keep chipping away at it and who knows what you may find. Hope you feel better soon....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 12/1/2009 9:16 AM (GMT -7)   
I think it's all part of the disease. Give us pain, and depression usually soon follows...
However, Sniper is right, it's also the time of year. For me right now it's "Bar Humbug" and cancel Christmas, BUT like
every year I'll get through it.

Sniper I've nearly caught you up this morning no. 7 and counting.. "Bar Humbug"
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 12/1/2009 10:30 AM (GMT -7)   
Yeah, I'm on 5 this morning w/cramping! And yes, it's cramping my style!...butt bleed and all!
 I try to keep my hands busy. I just get to feeling so weak and uninterested...and that's just not me. I'm usually going all the time! I still need to just learn to accept this disease.  Trying to make a Quilt for my daughters wedding this summer. Going slow ...but going.
Sniper....so we are peeps I take it? and who are the smurfs? Excuse me, still getting used to your humor...like it !!!just new to it! It made me laugh..thanks:) Everybody on here is so understanding.
Flowery
 "Get busy living or get busy dying"
               
                         


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/1/2009 10:06 PM (GMT -7)   
I'm sorry Flowery , I keep forgetting that not everyone knows what I am talking about. I sometimes put the keyboard in gear when my brain is still in neutral. Peeps , short for people and The Smurfs, was a long running cartoon on TV here . They where little blue people., thus blue and smurfs are the same. Hope to cheer you up when ever I can. You have to help keep me in line though...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/2/2009 4:41 AM (GMT -7)   
We all just chug along through life dealing with each obstacle in the way. I take it one day at a time and try to make the best of it. I will tell you that I will not let this DD change my whole life. I will still do what I want, when I want.
Be strong!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 12/2/2009 8:51 PM (GMT -7)   
Ha..I'll try to keep ya in line Sniper! Best I can! And Wolfie you are right! I need to stay strong....Sniper,  What is it exactly that you work on in your work room?
O.k....so,
Today I left the house....I know stand back that's a biggy! And it wasn't just to the mailbox!
I went to lunch and my stomach hurt....I just kept taking immodium.  I told myself that I was gonna do it! I took immodium all morning.... It was nice corresponding to the outside world. Like actually following a conversation. Now that takes some brain cells! I will probably pay tomorrow morning if not tonight...but the fellowship did me well. I looked at some pretty decorations on my way home and it made me feel a little Christmasy.......a little
 
Flowery
 "Get busy living or get busy dying"
               
                         


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/3/2009 7:41 AM (GMT -7)   
Flowery, I build antique reproduction furniture , turn bowls on a wood lathe , build model boats from wood , reload bullets and work on my harley. Whateven strikes my fancy at the time, but mostly I clean up the sawdust,,lots and lots of sawdust.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 12/3/2009 1:47 PM (GMT -7)   
Sniper, My father was a wood worker. He built house's "back in the day"...as a kid he built half the house and then went to the bank and asked for a loan. They said they had no proof that he could build. He said, "Go look at half my house" Them were the days! 
 He had a wood working room...with lots of sawdust and spiders! He would rebuild Harpsacords, Pianos, Boats (sail), and lots of Furniture. His favorite was making Weaving Looms. He loved walking in the woods and find a tree, then make something out of it. When he died the whole top of his barn was full of hard wood that he had bought along the way at auctions. We sold it off...didn't take long!! I used to sand for him as a kid....cough cough:)
Flowery
 "Get busy living or get busy dying"
Dx in 2005 after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/3/2009 10:31 PM (GMT -7)   
My dad was a carpenter and I guess I have sawdust in my vains too. I can still see the concentration on his face as he sharpened his saws and planes. I can hear the sing of the wood as it rolled up a shaving while he planed boards smooth and level. The smell of linseed and turpentine still bring back memories for me though bitter sweet. I miss him terribly.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 12/4/2009 10:03 AM (GMT -7)   
I lost my Dad in 98'. Heart issues. My mom died a year earlier. (Good genes huh?)Screwball Dad turned his Defib off after it kicked him like a horse a few times! He was 58. I was mad at first...but understand it now.  How long has Dad been gone?
As a kid I'd sand down things after he'd use layers and layers of  "tongue oil" ? and having to feel the wood for the right levels. Funny, that you mention the sound of the saw. I remember falling asleep to the sing of the blades on the table saw as a kid. Oh the memories....
Flowery
 "Get busy living or get busy dying"
Dx in 2005 after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/4/2009 2:38 PM (GMT -7)   
We lost Dad in 99 and mom was soon to follow 2 years later. Guess that makes me a orphan now. You mentioned feeling the wood for defects. That is what I learned from my dad too . He also taught several of my cousins. We chose a wooden casket for my Dad and it had an odd corner. I remember feeling it for fit and after I understood how it was made I was standing near by when one of my cousins came in . As he stood there by my Dad I saw him reach down and feel that same corner. I knew then Dad had taught us all well and somewhere he was smiling down with pride .
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted Yesterday 7:25 AM (GMT -7)   
Thanks for sharing.
Flowery
 "Get busy living or get busy dying"
Dx in 2005 after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        

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