Rectovaginal Fistula...

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Curly9878
Regular Member


Date Joined Apr 2007
Total Posts : 165
   Posted 11/30/2009 7:50 PM (GMT -7)   
Sooo doc thinks I have one...    He is going to run some tests....
 
Has anybody out there had surgery on this?
 
How long was the recovery?
 
Was it outpatient, or did u stay in the hospital?
 
Any info is appreciated. shocked
30 years old.
Single, probably always will be...  In fact, I bet I become "the cat lady" of the neighborhood...  Only thing is, I am not a fan of cats.    
Oh and as an added bonus, I am a FAT girl with Crohns...  
I am getting ready for my first resection....   My mom always said my beauty was on the inside...   sooo what does it mean when my insides are a mess???   Thanks mom!  I bet I inhereted Crohns from your side of the family.  
NO GUTS-NO GLORY!!!    So, once I get my guts removed...   My "Glory" days are over....
 
That about sums me up!
 


BellsforHer
Regular Member


Date Joined Oct 2005
Total Posts : 429
   Posted 11/30/2009 8:26 PM (GMT -7)   
I have one, no surgery. I've been lucky in that it closed up when I was on remicade. It opened back up recently during this horrible flare. I started having the usual symptoms (you know what they are) but it's actually gotten better since I'm not having diarrhea run through me like water. I also had a remicade infusion while I was in the hospital. I live with mine and I will try as long as I can to put off surgery. Is surgery the only option they discussed with you?

Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 11/30/2009 10:22 PM (GMT -7)   
Curly,
I've done the tests (the barium enema) to diagnose, but never had one myself. I would assume it would be an inpatient surgery. Just my opinion, but I'd make sure you have a surgeon who specializes in rectal surgery, or that has done many surgeries like that. By me, there's one surgeon who all the GI's send people to if they have rectovaginal fistulas.

Good luck!
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 321
   Posted 11/30/2009 11:21 PM (GMT -7)   
Is it actually rectovaginal? They called mine that for awhile but mine is actually going to the bartholin gland right next to it. I don't know about surgery for the rectovaginal fistula but surgery isn't really a good option for me. It depends on how superficial the fistula is...basically how many layers of rectal muscle it goes through. Mine goes through at least two so they tell me that if I have surgery there is a chance I'll be incontinent...which is not an option for me at 26. I'm sure they will want to try medications first even if you have a surgery consult. Hopefully something like Remicade will close it up for you. Remicade didn't work for me and Cimzia hasn't helped yet so I am just dealing with it for now. That doesn't mean that they won't work for you though :P

I can barely deal with what I have (it's been about a year and a half), I don't think I would be able to deal with a rectovaginal fistula. Lots of hugs to you!!!
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


Curly9878
Regular Member


Date Joined Apr 2007
Total Posts : 165
   Posted 12/1/2009 6:36 PM (GMT -7)   
Interesting, I didnt realize meds will help... Screw surgery! Gimmie the meds!
30 years old.
Single, probably always will be...  In fact, I bet I become "the cat lady" of the neighborhood...  Only thing is, I am not a fan of cats.    
Oh and as an added bonus, I am a FAT girl with Crohns...  
I am getting ready for my first resection....   My mom always said my beauty was on the inside...   sooo what does it mean when my insides are a mess???   Thanks mom!  I bet I inhereted Crohns from your side of the family.  
NO GUTS-NO GLORY!!!    So, once I get my guts removed...   My "Glory" days are over....
 
That about sums me up!
 

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