Should I keep going with Remicade?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 601
   Posted 12/1/2009 5:31 PM (GMT -7)   
Just thought I would ask you guys over here on the Crohn's board for an opinion. I have had my fourth infusion of Remicade last Wednesday. Still don't see much of a change. Has it taken any of you longer than the first few infusions to feel better? Should I quit now and try Humira? I am on 10kg of the Remicade.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/1/2009 6:37 PM (GMT -7)   
I'm not on Remicade, but I was going to say in case you DO go on humira that I didn't see any change on it until several months had passed. I don't know about Remicade though...I'm sure someone will be along soon to give you a more helpful answer.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/2/2009 2:27 AM (GMT -7)   
Hi I would see if your GI doctor increase your remicade first that may help.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 601
   Posted 12/2/2009 4:11 AM (GMT -7)   
I am already increased to 10kg. Think that is the maximum.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/2/2009 4:36 AM (GMT -7)   
I would give it some time, it may take weeks to start working (look at Imuran).
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/2/2009 6:00 AM (GMT -7)   
keep going no question give it time.

I did not feel big change until after my 5th infusion.

sometimes it takes some time :)
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 12/2/2009 6:21 AM (GMT -7)   
How often are you getting the infusions.  Is it the 2 week, 4 week, then every 6 weeks?  If so, talk to your doctor about doing it every 2-3 weeks.  I have seen some people on the board here that have it done every 2 weeks since it doesn't work on the 6 week cycle.
 
If all else fails, you could look into Humira.  Good luck and feel better.
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/2/2009 10:15 AM (GMT -7)   
I would think that you don't need to panic right away. Just see how it goes
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


yori
Regular Member


Date Joined Jan 2006
Total Posts : 56
   Posted 12/2/2009 7:32 PM (GMT -7)   
I had remicade for my 2 week, 4 week, 6 week loading dose and had no relief. My GI said to stop because I actually felt worse. Every GI is different and it would depend on your exact symptoms. My GI also said remicade has a 60% success rate and when it works it works very well. I have heard it may take some people a little longer to respond so I was unsure why he took me off so soon.

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 12/3/2009 5:38 PM (GMT -7)   

I’ve had three remicade infusions so far…. And I felt the results within 2 days of my first infusion. I am one of the ‘lucky’ ones. I was very fortunate because as well as my intestinal symtoms, I had a abscess/fistula x 2 that desperately needed healing.

 

I would not give up hope so soon. My Dr told me that some people feel the benefits straight away, while others may only feel the benefit after 5 treatments. I had one, then another 2 weeks later, than another 4 weeks later. Just hold in there and give it your best shot. It might just take a bit longer for you, but if it DOES work, the benefits are wonderful.

 

Keep us informed of your progress! turn

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 7:25 AM (GMT -7)
There are a total of 2,734,038 posts in 301,172 threads.
View Active Threads


Who's Online
This forum has 151305 registered members. Please welcome our newest member, walkingdeadgirl.
296 Guest(s), 7 Registered Member(s) are currently online.  Details
John_TX, Bucko, w0hll, Bobby Mac, Mustard Seed, docktahkay, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer