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juju03878
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 12/1/2009 6:21 PM (GMT -7)   

I was wondering if this has happened to anyone else before

 

Last week I was feeling a little under the weather and then all of a sudden each bowel movement has a little blood in it.. Well as the day went on I had MORE and MORE blood.

Well I ended up in the hospital and had to get 3 pints of blood to get back to normal

Well they did a Colonoscopy and a endoscopy and they found NOTHING. They have NO clue where all the blood was coming from.

I do have crohns but I have had in under control for over 20 years. I am on No medication and I was not having a crohns attach,’

Has anyone had this happen and if so what caused it

Thanks


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/1/2009 6:35 PM (GMT -7)   
I've experienced everything you've described excluding being told that nothing is wrong. I think you should get a second opinion since something clearly IS wrong.

Did you have any other symptoms?
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


juju03878
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 12/1/2009 6:49 PM (GMT -7)   
well i know something is wrong and i have a appoitment with my GI dr. They just didn't find anything yet. Just wondering if anyone else has had this happen..
I am just happy that it stopped. It has happeded onece before in July but it wasn't that bad

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 12/1/2009 8:56 PM (GMT -7)   
I was bleeding for about 15 months. 2 days of Rowasa stopped it finally. I tried the Pentasa enema, but it was watery. Rowasa is thick.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/2/2009 4:52 AM (GMT -7)   
Could it have been a Hemi bleeding? Was the blood bright red or dark? I would seek another doctor for advise.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 12/2/2009 6:29 AM (GMT -7)   
I am thinking it might be a hemorrhoid too. If I sit on anything that is not padded, I bleed.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/2/2009 8:55 AM (GMT -7)   
Well I don't think a hemorroid would cause so much blood loss that you required 3 pints of blood. I think you need to get thru some testing, because it obvious (at least to me) that your Crohns is not under control and something is going on in there. I once had a 20 year remission with no meds, and it ended abruptly with a emergency resection. So I recommend you getting in and see your GI soon and do get back on meds, this disease is chronic and incurable. Good luck and keep us posted.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/2/2009 8:56 AM (GMT -7)   
By the way a c-scope can't see into the small intestine, so you could be having disease activity in that area that a scope can't see, I would ask for a pill cam test. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

juju03878
New Member


Date Joined Dec 2009
Total Posts : 3
   Posted 12/2/2009 9:17 AM (GMT -7)   
i forget to say that the bowel movents or blood was red in color like cranberry juce.. They also did a berium xray.. I am still waiting to see my dr.

Peace08
Regular Member


Date Joined Sep 2008
Total Posts : 28
   Posted 12/2/2009 12:39 PM (GMT -7)   
I had the exact same episode about 2 months back. I had to have two bags of blood. They did a sigmoid colonoscopy and found nothing. I was in hospital for a week, and they did mri scan, still they found nothing. It was very disappointing not knowing whats wrong, but in the end it stopped. But it still worries me that it might happen again, especially because i dont know what caused it in the first place. hope you get better soon.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2688
   Posted 12/2/2009 12:51 PM (GMT -7)   
Yes, I've had that happen, it's how they discovered that I have crohn's. Only they found a bleeding ulcer in my TI area, and they were able to stop the bleeding. I remember feeling lousey for about a week before the massive bleeding hit too. My blood was also a bright red, it was coming out so fast it never had a chance to turn dark. I don't go by color anymore, I look at how much blood there is.
 
I wonder if your bleeding site was in your small intestine where the scopes couldn't see. And I agree that hemmies probably wouldn't bleed out that much, and probably would be quite easy to diagnose for them. I don't think many realize that we can really bleed out with Crohn's, and it's something to be aware of.


~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.

Post Edited (Jen77) : 12/2/2009 12:54:03 PM (GMT-7)

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