hoping for a cure?

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Escalador
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Date Joined Jul 2009
Total Posts : 103
   Posted 12/1/2009 7:31 PM (GMT -7)   
do you still hope that one day, humanity will able to really cure Crohns? sincerly?

Aislin
Regular Member


Date Joined Feb 2004
Total Posts : 53
   Posted 12/1/2009 7:41 PM (GMT -7)   
Yes I hope for that :)

I always say that if I ever win one of those crazy lotto prizes I will donate a huge chunk to help cure Crohn's :p Wouldn't that be nice!!!
Female, mid-20's, lives in Australia
 
Symptoms since 99', Dx 2003, Right Hemicolectomy 2004, Trying to find the magic combination to manage this silly disease :)


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 12/1/2009 8:21 PM (GMT -7)   
I don't think it's that far off. We're getting more and more information and clues as to the causes of many different diseases all the time. This is what I like to think, anyway.
CD since July 2007 - prenatal vitamins, vitamin D, fish oil, flax oil, Flora-Q probiotics, pescetarian healing diet
DM T1 since January 2008 - Apidra via OmniPod


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 12/1/2009 8:22 PM (GMT -7)   
(Of course, I'm also holding out for a cure for Type 1 diabetes)
CD since July 2007 - prenatal vitamins, vitamin D, fish oil, flax oil, Flora-Q probiotics, pescetarian healing diet
DM T1 since January 2008 - Apidra via OmniPod


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/2/2009 2:24 AM (GMT -7)   
Yes oneday there will be a cure for CD.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


Escalador
Regular Member


Date Joined Jul 2009
Total Posts : 103
   Posted 12/2/2009 3:26 AM (GMT -7)   

I have to say I'm pretty skeptical about it (but I still have hope)... it seems that there isn't much interest in creating a cure but in creating maintenence drugs

why do I think that? CDAI is still the main criteria in research ...

and just look at cancer... it's been 38, soon to be 39 year since the National Cancer Act was signed by Nixon but little progress was gained ...

cancer mortality is only 10 % lower than in the seventies, mostly due to preventive care ...


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 12/2/2009 3:34 AM (GMT -7)   
I don't feel positive.

My feeling is that humanity is going to be faced with more pressing concerns this century (e.g. food and water shortages due to rising population and climactic pressures) and that these will not leave much time, energy, money or sympathy for the needs of people with chronic illness.

Why fund research into medicine when people are starving?

Yes, I know, I'm a cheery little possum aren't I?

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 12/2/2009 4:16 AM (GMT -7)   
Yes, there will probably be a cure someday. Think of all the past horrific diseases we hardly hear about: measles, mumps, TB, etc. As David T. Rubin, a distinguished GE said, "There is no better time to have IBD than now." There's tons of research going on. The number of new treatments available now compared to just 10 years ago is impressive.

Tons of progress has been made in cancer research too. As Lance Armstrong said, "If I'd gotten cancer 10 years ago, I'd be dead."
Cimzia, Asacol


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/2/2009 4:34 AM (GMT -7)   
I pray for a cure someday, but I won't hold my breath. All they do is find meds to treat diseases and nothing to cure them. I believe it is the goverments way to keep the population in check.
This is just my opinion.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 12/2/2009 4:43 AM (GMT -7)   
I agree with GDen.
I also know someone that is in cancer remission,who would not be around if he had his type 10 years ago.
I personally think Crohn's disease is costing insurance companies big bucks,which will work well for a cure.
Or at least advance treatments, procedures,diets.
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole.More over the counter vitamin-D. Remission since surgery and 5-years, of 8-week Remicade.
.


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 12/2/2009 6:24 AM (GMT -7)   
Just think, if there was a cure, what would all the GI's do.  Preventive maintainence keeps doc's and the insurance companies, as well as the drug companies in business.  Cure the disease and look at all the lost revenue.  CD doesn't really kill so it isn't a priority for curing..although it would be nice.
 
Just my 2 cents.
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 12/2/2009 1:04 PM (GMT -7)   
I'm not very positive either. I haven't seen us be able to cure much of anything, prevent yes, treat yes, cure no. Sadly I think it's more profitable for them to have us keep buying treatments then anything that would cure us.

Even with Cancer, my Mom has been in remission for 10 years now. Which we are grateful for. However we can't say she is cured, we've been told it can return at any time. Even though her chances are looking better now as time goes on. I wish they could find cures for a lot of things!


~Jennifer
 
Diagnosed with Crohn's Disease 2/06, and Health Anxiety/OCD 12/08 Taking Asacol, Questran, Toprol XL, and Celexa.

Post Edited (Jen77) : 12/2/2009 1:07:10 PM (GMT-7)


Sunaddict
Regular Member


Date Joined Jun 2009
Total Posts : 354
   Posted 12/2/2009 2:45 PM (GMT -7)   
I believe there will be a cure one day (if 12-12-2010 does happen lol) but I don't believe it'd be in my life time. To many diseases to cure at the moment, Cancer being the #1 biggest thing they are trying to find a cure for. But this is just IMO of course. Interesting to hear everyone else's!!
I do agree as well, they are making tons and tons of money off of us, why would they fight hard to find a cure for us.
Good points everyone!!! thanks for the topic!
Tracy from Montreal,Diagnosed with CD at age 18 but went undiagnosed for 10 years. 17 years with CD, Remicade for 1 year 4 months. Caused remi induced RA, crippled for 8 months
on humira, working for RA but CD is getting worse everyday,been on humira only 4 weeks
Pantasa 8 tabs a day
Provacede 1 daily for the ulcer's
Imuran 1 and half tabs (50mg)
Previous meds: Pantoloc, Predizone, tapered down from 10 pills 8 different times.(horrible side effects),Lots more,list is way to long.
Unable to work last 2 years and counting.Scope says I'm clear of CD,waiting for biopsie. May have Endometrioses, again waiting for another apt.

Post Edited (RA&CD132010) : 12/2/2009 2:49:29 PM (GMT-7)


willj
New Member


Date Joined Dec 2009
Total Posts : 19
   Posted 12/2/2009 5:26 PM (GMT -7)   
I am fairly sure Crohn's will be gone in the next 10 - 15 years. Progress has been made in this disease - it was once thought of as an autoimmune disease and now researchers think an infective agent is involved. Infliximab made a big difference to the management and treatment of the disease and it is still a relatively new treatment. I honestly believe that Prof Hermon-Taylor / Prof Borody will bring another major breakthrough once they have raised funds to develop their anti-map treatments that have helped the lives of so many already.

Escalador
Regular Member


Date Joined Jul 2009
Total Posts : 103
   Posted 12/2/2009 6:13 PM (GMT -7)   
yes, I'm putting a lot of hope in the anti MAP treatment as well ... i've read papers on it and studied the data bit and it seems logical that an infective agent is involved.. but it remains to see if that agent is MAP or something else

sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 12/2/2009 6:47 PM (GMT -7)   
I really hope there is a cure someday... I'm only 19, so I've got some time to wait :) gotta keep thinking positive...
female 19, diagnosed crohns december 2008
currently taking 500 mg pentasa 4x daily
still feeling terrible, going back to dr.


yori
Regular Member


Date Joined Jan 2006
Total Posts : 56
   Posted 12/2/2009 7:09 PM (GMT -7)   
Yes I hope for a cure but I think it will be a little ways off. I like hearing about pioneers in medicine that are willing to try new things. Such as how how the Map studies got started, or the worm therapy, or LDN. Even if they did find a cure I think it would take a little while to be accepted. I am sure they will find one but how long will it take is the question.

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 12/2/2009 9:02 PM (GMT -7)   
There is hope but there is danger too. I feel that the technology to do gene manipulation will develope to cure this but what do you think powerful people or people who want to be powerful will do with this power? You could create far worse than you could cure! We also need to get away from fascism. ie corporate power. AS was said above, Pharma makes too much money keeping us sick. They have no interest in cures that will upset their bottom line $$$$. We have to have gov't, university or some other way of doing research and applying what we have learned............

We shall overcome my friends

Post Edited (FunGuy) : 12/2/2009 11:23:31 PM (GMT-7)


GDen
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Date Joined May 2009
Total Posts : 703
   Posted 12/2/2009 9:07 PM (GMT -7)   
Wow, bunch of conspiracists here. I have far far far more faith in private enterprise than gov't. What miraculous cures, drugs, treatments, etc. has gov't come up with? And if big pharma is conspiring to keep treatments from us, why didn't the evil big pharma company that makes Imodium prevent Remicade and all the other great remission drugs from being released? Put on your tin foil hats...
Cimzia, Asacol


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/2/2009 9:49 PM (GMT -7)   
There is at least one possible cure presently in clinical trials. The trial is being run on type I diabetes patients, but it may apply to many other autoimmune illnesses. Of course, it is not being done by big pharma. It is not surprising, considering that businesses design their efforts to produce a continuing stream of income and a cheap cure would be a hard sell to the research and marketing departments. The most recent update can be seen here: http://www.faustmanlab.org/docs/newsletters/Faustman_updates_f09.pdf

It is interesting that they have data showing cures in diabetic mice and also that they have been able to clear autoimmune T cells from human blood samples.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 12/2/2009 10:07 PM (GMT -7)   
Have faith, look at what's newly discovered about MS

http://www.nationalmssociety.org/news/news-detail/index.aspx?nid=2206

Crohn's may also be cured in the hopefully near future, you never know what they may stumble across (as they did with MS), usually the answer is staring us right in the face, it's just a matter of recognizing it, putting 2 + 2 together is all.

With both MS and crohn's being autoimmune I have faith that there is a cure, it just needs to be found...the stem cell therapy may hold the key for us (using our own bone marrow).

:)

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 12/2/2009 11:21 PM (GMT -7)   
GDen since you asked: In 2000 a Joint Economic Comittee of congress found that of the 21 drugs with the highest therapeutic impact on society introduced between 1965 and 1992, public funding was "instrumental" for 15. It took me about two minutes to research the answer to your "question".
Perhaps you should google some of your rhetorical questions instead of accepting as fact the ejaculations of Rush and Glen?

You might re-consider your sources of information which have a vested interest in brain washing folks who do not carefully weigh what they are being told. With such faith in private industry perhaps you would enjoy driving a Ford Pinto with good brakes??

In any event I look great in tin foil. Around christmas I spruce up with colorful foil wrapping paper.


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 12/2/2009 11:35 PM (GMT -7)   
LOL, I don't listen to either Rush nor Glen, thanks for being so presumptious. But I'm sure they're much more intelligent and informed than whatever your (radical left) sources are.

Sure NIH funds stuff, but who develops those drugs? PRIVATE industry. And those "evil" drugs companies provide vast amounts of their own money for R&D.

You're the guy promoting blue dye and can't produce a shred of evidence that it works, so I suggest YOU try doing some research. It reeks of snake oil. You're the one who's brainwashed, and brainwashing.

Since you so love the gov't, I assume you drive a Trabant?
Cimzia, Asacol

Post Edited (GDen) : 12/2/2009 11:38:48 PM (GMT-7)


Escalador
Regular Member


Date Joined Jul 2009
Total Posts : 103
   Posted 12/3/2009 3:19 AM (GMT -7)   
please dont involve politics in this... there are some of us that dont live in the states and do not want to constantly read your petty squables about the "radical left" and the "radical right"

I do not believe in conspiracies, but I do know how the system works and thats why I feel its not effective ... pharma companies pay doctors to do the research the companies want and pay for their science symposiums and thats why when you look at the abstract list for a symposium you dont see any papers on LDN or worms or MAP ... and all of those are publicly or goverment funded

willj
New Member


Date Joined Dec 2009
Total Posts : 19
   Posted 12/3/2009 10:20 AM (GMT -7)   
We don't need to look at JUST big pharma for a cure. You will find that Prof Hermon-Taylor is doing all his own research which is funded by the families of people with Crohn's. At present they are campaigning to raise funds for a vaccine to treat MAP infection, he obviously wants to help the lives of people who are suffering. I agree big pharma just want cash but there are other companies/individuals that may come up with something. Watch this space for Myoconda which is being developed by Giaconda.
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