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aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 12/2/2009 8:41 AM (GMT -7)   
Hi everyone,
 
It's been awhile since I've posted.  Brief recap:  Have had Crohn's for almost 20 years now.  Had my first resection on Jun 18 and then was hospitalized 4 times after that because of an intra-abdominal abscess that kept persisting.  Just got my JP drain out a few weeks ago and am finally do a little bit better.  My GI wants me to start taking Imuran along with Asacol.  I've read lots of scary stuff about this medication, so I'm hoping to get the expert-opinions of you all here.  So, if you don't mind give me the good, the bad and the ugly.   The prescription is waiting for me at the pharmacy, but I'm scared to start it.
 
Thanks a bunch!

Angela

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/2/2009 8:52 AM (GMT -7)   
Many folks have been successfully treated with Imuran/6mp. Zanne one of our members has been maintained with 6mp for about 10 years. Now with Imuran you really need to make sure they you take it with food. For me it really made me nauseous. I tried it with food, taking it at bedtime, but just couldn't get past the nausea. Doc switched me to 6mp which I took at bedtime and had no problems at all. But we are all different, and some have had no problems with Imuran at all.

I say give the Imuran a go, and if it upsets your stomach too much, then switch to 6mp. Same med by just works in your body differently.

Good luck
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Former58D
Regular Member


Date Joined May 2009
Total Posts : 173
   Posted 12/2/2009 8:52 AM (GMT -7)   
Take it and make sure you have blood work done regularly. As long as you are tolerating it well, the benefits potentially far outweigh the risks. I took 6MP.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal (750mg): 3 pills 3xdaily
Cortifoam - 1 nightly
6MP - currently at 100mg and waiting for response......


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 12/2/2009 8:58 AM (GMT -7)   
The nauseousness and the fatigue really has me worried. I feel like I just got over all of that from the surgery complications and the nausea I had before surgery. I finally starting to feel more human-like. UGH. Thanks for your replies. Keep them coming.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/2/2009 10:31 AM (GMT -7)   
Ask your doc for 6mp instead. I found that if I took that one at bedtime, I had no issues with it at all. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Aislin
Regular Member


Date Joined Feb 2004
Total Posts : 53
   Posted 12/2/2009 3:25 PM (GMT -7)   
I have been taking Azathioprine (same thing) for two weeks now and yes, it has been making me feel terribly nauseous. But I would not say don't take it. Like others have said, I would just make sure you have a decent amount of food in your tummy before you take the tablet. I have been struggling, thinking like why have something that only makes me feel sick - but, then I keep reminding myself how much I do not want to end up in hospital having another resection. I have gotten to the point where I need something else as my Crohn's is only progressing. Give it a go and hang in there :) I'm trying :p
Female, mid-20's, lives in Australia
 
Symptoms since 99', Dx 2003, Right Hemicolectomy 2004, Trying to find the magic combination to manage this silly disease :)


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 12/2/2009 5:02 PM (GMT -7)   
Not much to worry about with Imuran, IMO. Your doc will monitor your LFTs. There's an increased risk of skin cancer over the long-term, but it's still really small.
Cimzia, Asacol


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 12/2/2009 9:09 PM (GMT -7)   
It blew out my pancreas. It did table the crohn's for awhile but at what cost to my future?? I had no nauseous feelings. Keep up you blood work and let the doc know if you have a pancreatic type pain.
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.  Give it about ten days.  I am NOT a healthcare professional.   Ask your doctor if this is safe for you. 


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 12/3/2009 4:13 AM (GMT -7)   
The first two weeks I was tired and sometimes nauseous but then my body got used to it. After two months my blood work all came back okay and no more D. I do get fatigued sometimes, but nothing like before.
Good luck!!

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 12/3/2009 8:47 AM (GMT -7)   
So, another question for the people who are taking Imuran. Do you notice a lot of facial acne or warts from this med? I've read a lot about those side effects too. Also, hair loss. Obviously, I can handle a little bit of acne and hair loss, but I'm just curious about all the other stuff. My dad died of Leukemia when he was 45 (I was 25), so I'm really scared about the slight cancer risk.

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/3/2009 8:57 AM (GMT -7)   
I don't have Crohn's but it's one of the very few autoimmune diseases I don't have! LOL! tongue

I've been on Imuran (100mg per day) for over a year now and have had no noticeable side effects. I have a colleague at work who DOES have Crohn's who's taken Imuran for 16 years and says the same: no side effects for him either.
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 12/3/2009 9:00 AM (GMT -7)   
Thank you so much everyone! I really appreciate all the great feedback.
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