Venifor Iron Infusion

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KEANO
Regular Member


Date Joined Sep 2008
Total Posts : 76
   Posted 12/2/2009 1:10 PM (GMT -7)   
Hi all,
 
Just a quick question.  I am going for my first iron infusion to-morrow.  I have to get it over 4 afternoons (maintenance dose apparently).
 
Just wondering will there be any side affects from this.
Not looking forward to it as my veins are not great to get line in.  Am on Remicade every 8 weeks and usually they have terrible trouble with my veins.
 
Tks in advance :-)

j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 12/2/2009 2:58 PM (GMT -7)   
I've had venifor, had no side effects from it (except for improved hemoglobin levels).

It's a much faster infusion than Remicade too, only about an hour each time for me.

Hope they get a vein on the first try!
CD since July 2007 - prenatal vitamins, vitamin D, fish oil, flax oil, Flora-Q probiotics, pescetarian healing diet
DM T1 since January 2008 - Apidra via OmniPod


KEANO
Regular Member


Date Joined Sep 2008
Total Posts : 76
   Posted 12/2/2009 3:56 PM (GMT -7)   

Thanks for that J_web.  It will be a miracle if they get a vein on first go ! !

Good to hear that its not as long as the Remicade.


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 12/2/2009 4:49 PM (GMT -7)   
Ugh, the worst part is when they don't get it on the first go and proceed to dig around with the needle under your skin.

There are some alcohol wipes with pain killer in them, I don't know if they'd help much, but you could pick some up at the pharmacy and give ask the nurse to use one (look in the diabetes section).
CD since July 2007 - prenatal vitamins, vitamin D, fish oil, flax oil, Flora-Q probiotics, pescetarian healing diet
DM T1 since January 2008 - Apidra via OmniPod


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 12/2/2009 10:06 PM (GMT -7)   
Venofer gives me low blood pressure so I can't get them. One time I passed out after the infusion and my pressure was so low that I had no heart rate and they started pumping on my chest (there was no need to of course). When I woke up I was surrounded by doctors since they called a Code Blue. Good times.

So be careful when you stand up, if you don't feel well lie down.

Good luck.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 12/2/2009 11:53 PM (GMT -7)   
They used to have loads of trouble finding my veins for my Ferrlecit infusions--so occasionally they'd give me what they called the "hot glove" treatment. Which was literally a hot glove. They'd fill a rubber glove with very hot water and have me sit there with it on my hand for a few minutes, hoping that the heat would make my veins pop up and be more visible.

KEANO
Regular Member


Date Joined Sep 2008
Total Posts : 76
   Posted 12/3/2009 10:58 AM (GMT -7)   

Well I had my iron infusion.  No side affects, but my god my veins.......  eventually after the 4th attempt they managed to get it to stay in.

Tks for all your replies.  Very much appreciated smile


Rzrbckfan
New Member


Date Joined May 2009
Total Posts : 10
   Posted 12/3/2009 7:46 PM (GMT -7)   
After 5 venofer infusions early this year, I ended up with a port. It's be the BEST thing in the world!! I've had over 30 infusions this year, and it's SO easy - no digging - get it on the first stick!  So reminding you to keep your options open!
27-yr old female, happily married for 5 yrs, 2 dogs...
Dx with UC May 2004; Total Colectomy, J-Pouch May 2005-April 2006; Abcess - April 2008, loop-ileostomy - change DX to Crohn's; Struggling with hemoglobin and iron counts since October 2008...
Current meds: Prednisone (BLAH!) 2 mg, Humira, Calcium 600 mg + D twice daily, Multivitamin, Prilosec OTC
Failed Meds: Asacol, Colazol, Pentasa, Imuran, Remicaide

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