I want to tell you guys my story....

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Regular Member

Date Joined Oct 2009
Total Posts : 68
   Posted 12/3/2009 6:13 PM (GMT -6)   
I know I am new to this life, but personally I feel that the worst part of this disease is observing the difference in which your loved ones look at you. I remember just about a year ago I was running triathlons and my mom said "You should be lucky god gave you such a good body and such good health".... Ohh how things change now that she sees what this disease has done to me.

I can't believe the power of this disease.... I want to tell you guys the story...

The month was June, and I was currently taking a class at Temple University for credit. I came home late that night, and my roomate was going to a party.... He invited me and I went...

Anyway it was a terrible night, and we all got really drunk. As a result my roomate got into a fight, and I tried to break it up. In the process HE BIT me (my own roomate bit me), and I had to go to the ER...

The ER gave me an antibiotic called Augmentin.... After 24 hours I started getting D.... so I stopped the pill... I got better.... But then my mom told me I should continue it like the doctors told me.... Like a moron instead of calling the doctors I started taking it again..... This time it wasn't just a night of D.... I woke up and I was crapting out blood.... I went to the doctor he told me he was 99% sure I had Cdiff.... Cdiff test came out negative, and I was just getting sicker.... Spent two nights in the hospital they gave me a colonoscopy..... Then all of a sudden I got better....Just like that.. No treatment...

3 months went by and I was healthy as a horse again.... Then all of a sudden in the Detroit airport I started getting sick again.... Went to the doctor.... and you can predict the rest...

RIP old life....

Never break up a fight......

Another possibility is the fact that I had to a months worth of Cipro for what doctors thought was an STD.....only to find out later it was prostatitis.... This could have made me sensitive to Antibiotics...

Anyway.... i'm sure u people are going to tell me to stop thinking about the past, but its easier said than done...

Good luck with your problems.... We are the .04 % of America that suffers with this.... I don't feel like I won the lottery...

Regular Member

Date Joined Feb 2004
Total Posts : 53
   Posted 12/3/2009 7:29 PM (GMT -6)   
Having a bad day? :) It's horrible isn't it... It is strange the ways this disease 'suddenly' comes out.
Thanks for sharing your story, and welcome to the forum btw :)

Female, mid-20's, lives in Australia
Symptoms since 99', Dx 2003, Right Hemicolectomy 2004, Trying to find the magic combination to manage this silly disease :)

Post Edited (Aislin) : 12/3/2009 5:35:33 PM (GMT-7)

Regular Member

Date Joined Oct 2009
Total Posts : 68
   Posted 12/3/2009 9:54 PM (GMT -6)   
LOL.... How could you tell?

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 12/3/2009 9:58 PM (GMT -6)   
Well, better a Crohnie than a zombie...

In all seriousness though, I can't believe your roommate bit you!!

How is your current course of treatment helping with your Crohn's??
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Jul 2006
Total Posts : 1201
   Posted 12/3/2009 10:43 PM (GMT -6)   
Have you considered an antifungal diet/program to see if your symptoms don't improve? That worked for me. I suspected my UC symptoms had a fungal etiology after taking antibiotics and the b. control pill. Because you took antibiotics (which are fungal metabolites) after which your symptoms appeared, if I was a betting lady, I would think an antifungal program would help you. I also took natural antifungals and still take probiotics faithfully. I still need to be careful what I eat... limited or no yeast and limited sugar and grains (wheat). Fungus LOVES sugar and grains.

Regular Member

Date Joined Oct 2009
Total Posts : 253
   Posted 12/4/2009 4:41 AM (GMT -6)   
I'm sorry you're having a rough time right now :( It is quite a difficult transition to make to "sick person" so to speak. It has quite an effect on the dynamics of your relationships I guess! For me it hasn't been so bad, my family is awesome and takes great care of me! And my friends have really stepped up too. They're all very reassuring that things won't be this bad forever and that's true for you too!
It's really hard to not think about the past and how awesome it was to be healthy (I played competitive soccer and ran alot, was in awesome shape! Now I'm like a noodle). We all do it! It's hard not to worry but try not to and know that things will get better than they are right now.
Also, crazy that you got bit by a roommate! At least it makes an impressive story I guess
female 19, diagnosed crohns december 2008
erythema nodosum
currently taking 40mg prednisone, then imuran or remicade when i taper
feeling scare about side effects but will be happy to feel better :)

Regular Member

Date Joined Sep 2003
Total Posts : 42
   Posted 12/12/2009 7:13 PM (GMT -6)   

Wow, I really identify with your story. Not that part about a roommate biting me, thats just strange. BUT, I was a baseball player. Went to college to play ball, lived in the dorms, started drinking quite a bit, and started crapping blood. I figured it was just too much McDonalds and drinking, since it seemed to come and go. However, over the next 4 years it slowly progressed and I kept ignoring it. It got to the point where I couldnt play baseball anymore. I was tired, weak, dehydrated etc. I saw a GI doc, who performed a sigmoidoscopy, declared me fine and told me to eat more fiber (WHAT?!?!?)

Moved to Boston (from CA) to attend law school, and thats when all hell broke loose. During my fist year of law school I started getting EXTREME pain and D. I would be going 15+ times a day, and the blood returned. This time however, I began having the intense burning and cramping in my guts. At one point I found myself vomitting uncontrollably on a cross country flight (the people in my row loved that). Then the next morning I woke up with erethyma nodosum all over my arms and legs and a feeling like my joints were going to explode. I couldnt walk and it took me 10 minutes to hobble across my apartment to the bathroom...not exagerrating. Ended up in the ER and finally properly diagnosed as CD.

Since then I have gotten the disease under control, thank God. I am on 6MP alone and am doing fine (on Asacol as well until I determined that was actually making me worse). At my low point I didnt think I would finish law school...let alone get a job and move forward in life. And forget about meeting a girl, I mean what girl in her right mind would want to be with a guy who craps himself all the time??? (kinda funny how in our mind we have a pity party for ourselves, I mean I fortunately have never gone in my pants, but thats how I looked at myself).

Six years later I have the disease under control - meaning I probably have about 4 to 6 major flares a year which involve serious cramping and burning and D all day for two to three days, and the rest of the time I average 2 - 4 BMs per day, and have to avoid spicy food, alcohol and caffeine which all set me off (I love all three so I dont avoid them COMPLETELY). I am working at a great job and last year I got married to an amazing woman (a Nurse, who amazingly is not disgusted by my disease). Ive been able to continue to travel quite a bit and I still snowboard and golf.

I say these things because I just want to let you know that there is a hope and a future. I don't know if you are religious, but for me, I found meaning and purpose in this struggle because of my faith. I remember when I was in bed and couldn't move because of the pain and I honestly did not know how I would get to the ER because I could not make it downstairs to grab a taxi. At that point, I had no perspective and no ability to see that there was any potential to get better. I am not saying I am cured and everything is great. I am saying, life has lots of ups and downs, and CD is one of the downs. However, there is an amazing amount of inner strength that is developed by going through this, AND, the tough times are not going to last forever. I can't say how your disease will progress, many people on this board have more serious cases than I do, but I can say that if you continue to fight it, life will go on, and it will not be all misery and suffering.

Anyways, hang in there, I feel your pain, literally. And I still regularly have days where I feel down about everything. Its all part of it though.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/13/2009 10:04 AM (GMT -6)   
I hate Augmentin. It makes me sooo sick and gives me the worst diarrhea. Thats one to stay away from. The Cipro is used in us Crohnies alot for our infections. I just used it this past summer for a small intestine bacterial overgrowth. I had no problems with it at all and it clear up the SIBO toot sweet. Hope you get feeling better soon.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Carnival Huckster
Regular Member

Date Joined Oct 2009
Total Posts : 159
   Posted 12/13/2009 11:59 PM (GMT -6)   
My CD came on almost exactly the same way that your did and on my 21st birthday in college ... I would suggest trying the SCD or another diet to see if you can avoid being relegated to a lifetime of increasingly toxic medications and surgery. I made the mistake of waiting too long to start the SCD and not using maintenance meds so now I have a surgery to look forward to in January because of built up scar tissue. The good news with Crohn's is that -- unlike many other autoimmune diseases -- there are a large number of treatment options available.

+ 34 year old male
+ Crohn's Disease DX in 1997
+ Recently hospitalized because of ruptured small bowel; docs got it under control but have scheduled resection surgery for January 2010.
+ Taking Cipro (1000mg / day), Flagyl (1500mg / day), and Entocort (9mg / day) until surgery
+ SCD for past 10 years

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