Post Edited (sr5599) : 12/5/2009 12:34:11 PM (GMT-7)
Post Edited (Jessa97) : 12/5/2009 9:20:21 AM (GMT-7)
+ 34 year old male+ Crohn's Disease DX in 1997, doc said it was "moderate to severe"+ Recently hospitalized because of ruptured small bowel; docs got it under control but have scheduled resection surgery for January 2010.+ Taking Cipro, Flagyl, and Entocort until surgery+ SCD for past 10 years+ Not surgeries so far (but that is changing in January)
i also had to wait 12 weeks to get my remicade while having an abscess, it was awful. And I had to get a scan of the area too to make sure things were ok. I think it's part of the protocol the docs have to follow before they can authorise Remicade.
I know just how you’re feeling, farfromnormal. I first had my abscess appear in November of 2009 and didn’t get it seen to until june 2009. so that was a lot of pain and a lot of waiting due to the neglect of my past doctors. And then I had the 12 week wait until I was eligible for remi. Are you still soaking the area for at least 15 mins a day in hot salty water? I would recommend staying on the flagyl if possible, i tried to come off it early because I hated the side-efects too and boy did I regret it. coming off it will increase your risk 10 fold of having the abscess return or another one forming. That’s what happened to me anyway, I guess it is different for everyone. While the flagyl doesn’t solve things (or didn’t for me) -it kept things from getting worse than they were.
I definitely agree - I was having suicidal thoughts on flagyl, and would get horrible anxiety over meaningless things. I would spend the weekend in bed, having no motivation to get up and get dressed. My abscess was the same, it did not improve at all on the flagyl, i first had it for a week in hospital and things only got worse. It just sort of 'maintained' the high level of infection that was there, but ultimately thing got worse and I couldn't even sit on my side anymore, I had to lie down all the time, it was too unbearable. I just know that going off them completely was so detrimental to the sepsis and the size of the abscess. It went black when I went off the flagyl. Have you thought of trying one tablet per day and seeing if things improve?
You are right though, mental health is important, and equally as dangerous as physical health. I hope you get some answers soon. Please do come here and chat to us if you're feeling down. We care. I can't speak for everyone but I know I care and I understand what you are going through.