Iron infusions, "white diet", remicade monthly

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Regular Member

Date Joined Sep 2009
Total Posts : 90
   Posted 12/6/2009 3:45 AM (GMT -6)   
Anyone out there follow what they call a "white diet" ?
It seems that red meat has been a no no for me now. I am getting tired of eating chicken & rice.
Fish is not something that is easily to buy here.
I am eating a lot of protien bars.

My hemagloben was down to like 80 in Sept. which they say is not good at all.
Nov. was iron infusions weekly to get it back up again. I am anemic. Is that a common thing with Crohnies?
This month no iron inf. and I am not feeling very well. Stomach aches, headaches & nausea. loss of appatite.
I am loosing more weight was 109lb now I'm 107.
I am thinking I may end up having to get iron infusions all the time. ???
They boosted my Remicade up to monthly now and I am afraid that this expensive drug is not working for me ????
Only time will tell I guess. I just don't want to loose any more weight. I did feel better with the iron inf. although it did cause me to have dirreaha lots which has happened previously.
I am also using a butt paste called Nitrol which seems to be working fairly well for me.

Can't sleep - its early am here and my stomach hurts. sad
praying for a good night's sleep and a happy bottom!! :o]
1998: Colitis - removal of colon, temp. ostomy 10 mths.
2000-07: disease free & doing well with j pouch.
2007-09: rectal pain & discomfort, loss of bowl control. diagnosed with Crohns March '09 currently on: Emtec, Azathioprine [Imarun] & Remicade. Med History: steroids, predizone, cipro, loperamide [imodium], gravol, previcid, cholestramine, xylocaine jelly, zinc oxide creme, etc.

Veteran Member

Date Joined Jun 2008
Total Posts : 1058
   Posted 12/6/2009 4:34 PM (GMT -6)   
Iron anemia is pretty common in Crohn's. It is a reaction to inflammation - the body shuts down iron absorption because ferrous iron causes more inflammation. You might get some help from Proferrin which is a heme type iron supplement. It is absorbed via a different pathway than other dietary iron and gets around the shut down pathway.

The stomach aches, headaches and nausea/loss of appetite all point to uncontrolled inflammation and possibly a stricture. It can be hard to tell the difference between stomach pain and bowel pain, so your stomach pain could also be due to gut problems.

Remicade might have to be infused as often as every two weeks, but usually they will try adding other meds to help the Remicade before they go to that short an interval.

The last thing you'll want to hear is about your diet. When you are not sleeping and in pain/nausea, thinking about food is not high on your list, I know. But I think that you need to get more real food. Protein bars are lovely, but they are not meant to form a complete diet. You should try to get lots of vegetables and some fruits. To start with, they should all be cooked to death before you eat them. Eat more soup. (I'm starting to sound like a Jewish mother!) The protein bars are way too high in sugars and starches. You might even want to try gluten free or the SCD plan.
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