Humira / Long-term Side affects/

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Izzygirl
New Member


Date Joined Dec 2008
Total Posts : 7
   Posted 12/6/2009 4:40 AM (GMT -6)   
 I am going to start Humira injections soon and have been reading so many posts about MS, spinal lesions, and  tingly numb limbs. Is this a more common side affect and if so, when did it show up? Anyone have any good reports about  this mecication? I could use some positive infoturn  Also anyone have hair thinning on  this med. I am noticing this from 1 recent  remicade treatment and wonder if it will stop and if i will have it on humira too?? What next?

Izzy


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/6/2009 8:11 AM (GMT -6)   
I can't answer for you, but I'm sure someone will be along soon. I do know that there are several people using Humira and have been very happy with it's effectiveness on our disease.
I too wonder what the long term side effects of Humira are, as I may be on this in the short future.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/6/2009 8:30 AM (GMT -6)   
Hi I am on Humira I have no-side effects from the humira. Once a year a get a TB test
done and have a chest X-ray done.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1693
   Posted 12/6/2009 1:29 PM (GMT -6)   
I've been on it almost 18 months and I haven't noticed any negative side effects. It doesn't work as well for me as remicade did, but it's pretty good.

Bear0422
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 12/6/2009 8:47 PM (GMT -6)   
I've been on it since May of this year and the only real side effect I've noticed is that once I inject, I get really tired and sleepy. So, to alleviate that problem, I normally inject in the evening before bedtime. I am currently taking it every two weeks, but my doc said I may need to go to weekly injections. I was orginally diagnosed with Crohn's in Oct of 2007. I was on entocort, prednisone and another I can't remeber. Humira really helped me out with the problems I was having. Good luck and hope it goes well for you.

NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 12/6/2009 10:01 PM (GMT -6)   
Bear0422 said...
I've been on it since May of this year and the only real side effect I've noticed is that once I inject, I get really tired and sleepy. So, to alleviate that problem, I normally inject in the evening before bedtime. I am currently taking it every two weeks, but my doc said I may need to go to weekly injections. I was orginally diagnosed with Crohn's in Oct of 2007. I was on entocort, prednisone and another I can't remeber. Humira really helped me out with the problems I was having. Good luck and hope it goes well for you.


After I started taking it, my fatigue went away.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed


Blossom
Regular Member


Date Joined Mar 2008
Total Posts : 176
   Posted 12/6/2009 10:14 PM (GMT -6)   
I can't compare Humira to all the other Crohn's meds, as I'm allergic to the others. I've been on Humira since December 2008, and so far have no major side effects. I inject every other week, and sometimes for a day or two I get a little fatigued, a little achy, and freezing cold.

Although I had a resection in July (due to narrowed intestine with scarring), the Humira definitely helped heal the ulcerations.

Good luck!
54 year old female;
 
Have had Crohn's of terminal ileum for 10 years.   Small bowel resection (my first) on 7-30-09.  Monthly B12 shots.
 
On Humira since Dec. 2008.  Allergic/hypersensitivity to Pentasa, Entocort, and 6-MP.  

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