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FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 12/6/2009 3:32 PM (GMT -7)   
After 34 years of ibd I have only begun to reach out to others in the last 3 or 4 months.  So that is why I ask so many questions.  My apologies.
Why do I get such pain if I eat a lot of fiber like a bowl of beans?  I was thinking that I may have a slight constriction (is that a stricture) or narrowing in my intestine that the load of beans can't pass.  I visualize like a baked bean  hard packed snowball.  Then as my intestine gets distressed the semi-blockage becomes soft like D and can pass.  When I told the doctors about this feeling of mine they said no.  They said I would feel worse symptoms and throw-up etc.  I think if it is just a narrowing that I could be correct? 
I wish I could get that swallow the camera test but I am terrified I will choke on that camera.  I never swallowed anything that big.  I would like my small bowel looked at though.  Advice?
 
 

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/6/2009 5:22 PM (GMT -7)   
I think your right, a snowball packed full of beans. I think our systems have a hard time to digest fiber foods and it takes longer and travels futher down the intestines to the stricture site. Thus the pain.
I'm no doctor, just guessing.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 12/6/2009 5:53 PM (GMT -7)   
Hey Funguy,
Maybe you should have a small bowel follow through instead of the camera - ask your Gastro if they can arrange one.
You could have some narrowing, although baked beans are very fibrous (?sp), so could be that too.
I have had stricturing and the pain is like child birth - waves of bowel contractions and excrutiating pain, so it doesnt sound like that yet.
See you Gastro and get it checked.
good luck
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 12/6/2009 6:20 PM (GMT -7)   
Thanks S-Jo and Wolfie. Your feedback helps. I will see my GI in January and talk about this.


metoo50
Regular Member


Date Joined Aug 2007
Total Posts : 55
   Posted 12/8/2009 8:05 AM (GMT -7)   
I have a very similar situation. There is a stricture in my colon, found aftere last colonoscopy. I am in terrible pain if I eat fiber, therefore my diet is limited with what I eat. Most often I puree the food, and still may have some pain. There is a doctor at New York Presbyterian/ Weill Cornell hospital  in New York who has developed some new ways to handle strictures, and to avoid colon resection. His name is Dr. Fabrizio Michelassi, I looked him up on the internet, after reading about his study and the surgeries he performs there may be a ray of hope for all of us who battles this dreadful disease.
 

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 12/8/2009 9:47 AM (GMT -7)   
Can't these things be "ballooned" open like they did with my esophogeal ring or the way they do blocked arteries???


Escalador
Regular Member


Date Joined Jul 2009
Total Posts : 103
   Posted 12/8/2009 10:11 AM (GMT -7)   
metoo50 ... can you provide some info about it?

LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted Yesterday 4:05 AM (GMT -7)   
Hi FunGuy,

I would strongly advise that you go for the capsule endoscopy. I know the pill looks quite big but it's very easy to swallow. I had all of the other tests but because my disease is in the terminal ileum it could only be detected with the capsule. I have symptoms similar to yours along with bloating so bad i look pregnant. It turned out i have a narrowing - this is in the spot that was rejoined after surgery 9 years ago. So i am currently going through tests to confirm that i can go ahead and start on Humira.

Hope this helps,
Lila

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted Yesterday 12:16 PM (GMT -7)   
Hi, I had two strictures in the small bowel i would get really bad cramping after eating anything and usually end up throwing up also the area where the strictures were was firm to touch and would be so noisy I found out i had strictures from an MRI scan being done. Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


metoo50
Regular Member


Date Joined Aug 2007
Total Posts : 55
   Posted Yesterday 2:28 PM (GMT -7)   

Escalador,

Dr. Michelassi had developed a bowel-sparing procedure known as the Michelassi strictureplasty. (I am quoting from the info. found on line)  Please see the following link for more accurate info.

www.cornellsurgery.org/pro/services/colon-rectal/ssis.html

 

 



FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted Yesterday 6:00 PM (GMT -7)   
Thank you for the encouragement. I will see my GI on Jan 15th and see what options they give me. If I have a narrowing I think it will be a REALATIVELY minor one.
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.  Give it about ten days.  I am NOT a healthcare professional.   Ask your doctor if this is safe for you. 

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