just had 2nd remicade treatment now a flare....

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mirowpl
Regular Member


Date Joined Nov 2009
Total Posts : 380
   Posted 12/7/2009 3:56 PM (GMT -7)   
I just had my second remicade treatment-2 weeks after the first.  This was thursday.  felt awful after the treatment. On friday started caughing. and did all weekend.  much less today. saturday knees hurt.  better today.  But to make things worse, I had 12 bowel movements from 12am sunday until 10 am today.  mostly very loose bowels.  but painful, plus had several with bloody mucus when wiping.  one had a little blood in toliet.  Today my stomach hurt most of the day. Finally got the dr-he called me back directly!!  he said to go back on prednisone 30mg for 2 days then 20mg until next monday.  If htings got worse call, otherwise call him on monday.  he said if things were about the same, he would do new upper and lower scopes.  if still showed inflamation and scar tissue, he woudl schedule me for surgery.  as a reminder, i have alrady taken cimzia for about 1 year then had a blockage back in mid october.  was able to gt through blockage with heavy dosages of prednisone while in hospital.  Then,  he was trying remicade to see if i would have a positive reaction.  i get the feeling from him that this may not work.  reason yo might ask?  Well,  today is the worse bm day i have every had during my 13 years of the dreaded CD.  also, hemogloben was 12.  should be min14 for me (male in 40's).  not horrible, but this is where i am when i am bleediing (historically) and needing to take iron pills so i am guessing that the meds are not working right now.
 
any thoughts?  i know i have been lucky to not have all the bad things from cd,but i think it is all catching up with me......ugh...cry
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