HI! I'm back! so is my CD : {

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Veteran Member

Date Joined Apr 2004
Total Posts : 992
   Posted 12/8/2009 4:20 PM (GMT -6)   
I know it never really left but I like to live in denial occasionally! I just got home from the hospital, 9 days of morphine bliss!
Been decided that I have a hernia around my stoma. Did a scope while there and I have an good size ulcer going into the stoma needs to be removed and stoma revission. ( or reversal. not sure if still an option)
I would like the surgery done asap, deductable is filled for this year and seems senseless to payanother 2,000 out of pocket if we are talking a couple weeks.
They are talking like I'm to stay off work 6 weeks, then plan for surgery.After I taper off the pred. I have already used 2 weeks of the fmla, now I use 6 more and I assume at leat another 6 for the surgery, I'm past the the time aloud. Worried about losing job, and my health insurance.
What is a single, self supporting,9.00 and hour stna supposed to do to make it? I'm am so freakin depressed.
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/8/2009 4:30 PM (GMT -6)   
Oh Cleo I am so sorry to hear you are flaring again. Dang Crohns!!! Can you talk to your doctors about the situation and see if they can speed up the surgical date? Will definetly keep you in my prayers that all works out for you.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Apr 2004
Total Posts : 992
   Posted 12/8/2009 4:38 PM (GMT -6)   
I have an appt with GI tomorrow. I'm not real enthused about it ,don't really care forthis new group. Lost my GI in the divorce and bankruptcy proceedings! Amazing the things you lose that you never considered. I would feel so much better about this if I had my old GI. But it is what it is so I'll move on!

I saw the NP in the hospital a couple times. She was a smart arse and I hope I don't have to see her again. I will report back after my appt. tomorrow. Wish me luck!

What a time to be off work, in pain, nad have to deal with peeps who can't understand why you need papers filled out so you have some kind of income, like what's the rush? grrrr
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 12/9/2009 4:39 AM (GMT -6)   
Hi Cleo, Sorry to hear that you Crohns is acting up again. I will also have you in my prayers.

Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 12/9/2009 9:42 AM (GMT -6)   
Good to see you Cleo, but sorry your having all this trouble. Hope you can get your surgery before next year and this time it works better for you..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 12/9/2009 9:44 AM (GMT -6)   
Dang, Cleo!! What a bummer!! I sure wish you lots of luck convincing these guys to get on the stick and getting you in before that dang deductable starts again!!! On the other hand, NOT if it is at the risk of your health. I know the USPS is getting stickier and stickier and tougher about missed time from the job. You are in my prayers .... and lots of (((hugs)))) are flying your way!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Veteran Member

Date Joined Apr 2004
Total Posts : 992
   Posted 12/9/2009 1:17 PM (GMT -6)   
OK .... i KNOW things are a little fuzzy comin off the morphine, but gett this... I have my discharge papers telling me to make appt. with a Dr. Kamel. no number soI look in the phone book. Only one so must be him. I drive a freakin hour to find this place and guess what.... I bet you see this coming. WRONG DR. argh...

I call the medical DR. I ask if papers are filled out for my insurance . NO they are still on her desk. I break down and cry like a baby, I have bills to pay, it's Christmas, can someome please give me a break? I'll give her the message. Gee thanks a bunch.

ThinkI should just go backto bed.
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 12/9/2009 1:55 PM (GMT -6)   
Hi so sorry to hear your going through this again hope the docs get you sorted really soon thinking of you Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)

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