I have Crohn's Colitis (they can't determine which) - I have Crohn's markers (ulcers on esophogas, skin tags (fun!), skin rashes, etc) but the actual inflammation seems to be located on only one area of my lower intestine and rectum. I have been on Remicaide for a little over a year and it's worked great for me, although it took a long time psychologically to get used to the fact I had such a hard core drug infused in me. But it has let me have a normal life and that wins out any day of the week.
I am sorry you are going through this - I don't have a similar situation but just wanted to make sure: you have gotten other opinions and seen other doctors, right?
32 yr old Female
Currently on Remicade, Oxycodone, Protonix, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9
Presently healing from a flare and 2 week hospital stay, during which abcess was drained by surgeon