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wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 347
   Posted 12/9/2009 6:48 PM (GMT -6)   
So I have Crohn's Colitis and am on Remicaide.  It has worked great for me the 15 or so months I have been on it.  I had to take antibiotics recently for my tooth and now an having flare-like symptoms.  My dr had me go in today for a C. Diff test but I won't know for 48 hours. 
 
*****TMI****
symptoms: I have been having watery diarrhea with blood and mucus - I have a lot of gas and my stomach is bloated - I have been waking up in the middle of the night (bad sign) to run to the bathroom and have lots of gas with just blood and mucus.  I am drained and have no energy.  I don't have a lot of pain but don't feel great.
 
QUESTION:
 
Is this a big deal?  Has anyone else had c. diff?  How do you treat it aside from Flagyl and the other antibiotic?  Will not eating sugar/dairy/go vegan/etc really make a difference right now?  How long (I know it's relative) until I feel better?  Can you give this to other people?  ANY input is appreciated on this!! :)
 
Thanks!

Post Edited (wednesday2007) : 12/9/2009 5:50:16 PM (GMT-7)


Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 364
   Posted 12/9/2009 8:48 PM (GMT -6)   
Hi Wednesday,

I don't know a lot about c.diff, but I can share with you what I do know, since when I had my initial presentation of Crohn's and they did my scope, at first they thought it was c. diff (I started having the diarrhea symptoms after going on an antibiotic for a sinus infection). When they thought I had C.diff, they put me on Flagyl, so yes, they treat it with antibiotics. The only other treatment I had read about for it was a fecal transplant, where someone with healthy gut bacteria donates their stool and it is transplanted into the person with c. diff. I don't think that's such a common practice though.

Yes, if you have it, you can transmit it to other people. I was in the hospital when they thought I had it, and anyone who came into my room had to wear special coverings to prevent from picking it up. I think it can be transmitted through a toilet seat too, so you have to be careful. Here's a link to an article in the New York Times about c. diff. In the comments section, there's a nurse that talks about the fecal transplant.
http://well.blogs.nytimes.com/2009/04/13/a-deadly-germ-unleashed-by-antibiotics/

I hope you get everything under control soon. I'm so sorry you're feeling so terrible!

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 347
   Posted 12/9/2009 10:54 PM (GMT -6)   
Of all the things in your life before this, did you ever think you would use the phrase "fecal transplant"...........

:)
32 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17916
   Posted 12/9/2009 10:55 PM (GMT -6)   
Some people on the UC forum use that method, some with success, some without, like everything else.

:)

heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1669
   Posted 12/9/2009 11:04 PM (GMT -6)   
I was hospitalized in September due to c-diff. I was given 3 antibiotics, flagyl, cipro and vancomycin. They told me it is transferred when someone with it doesn't wash their hands properly and touches a surface or food and then we touch it or eat the food. So wash your hands well for 20 seconds after using the bathroom. Clean surfaces with a bleach-type cleaner. Those hand sanitizers do not kill c-diff. Wash clothing, bedding, towels etc. I know you feel like crap and hopefully someone else in the family can help you with all this. No one in my family ended up with it, and I think I had it for awhile before we figured it out.

I hope you feel better soon.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 351
   Posted 12/9/2009 11:18 PM (GMT -6)   
I took Cipro. Then, I had diarrhea. It eventually got extremely painful to even have a bowel movement when only one drop of blood was passed. I was diagnosed with c diff. Took Vancomycin and the blood stopped. Diarrhea persisted. Colonoscopy was done and Crohn's/UC was found. Cipro, I hate you and the doctor who put me on it for an "ear infection."
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17916
   Posted 12/9/2009 11:55 PM (GMT -6)   
As I mentioned before, C.diff can be very dangerous if left untreated, even cause death so you don't want to mess around with it, 2 types of antibiotics used to treat c.diff are flagyl and if that doesn't work, vancocin is another that is used.

This post is not breaking any rules, no copyingy and pasting, just sharing what others have also mentioned.

asc58
Regular Member


Date Joined Jun 2006
Total Posts : 82
   Posted 12/10/2009 9:17 AM (GMT -6)   
I've had crohn's for the past 40 yrs.  Two years ago I got C Diff and we thought it was Crohns flairing.  It was absolutely one of the worst illnesses I've ever experienced.  Ended up in the hospital for two weeks and out of work for 3 months, almost died.  One thing is the test can give a false negative and I know your dr. knows this but just in case the test comes back negative the first time make sure they retest you at least three times.  Left untreated as mine, it will kill you.  Good luck and I hope you do not have it.



Crohn's in the ileum for the last 35 yrs.  3 ressections, numerous attempts at fistulae repairs, a battle with C Diff (that was bad), while recouping from C Diff, I had two PE's. Doing good now.
RX: Methotrexate, Zoloft.
 
 

Post Edited (asc58) : 12/10/2009 8:03:53 AM (GMT-7)


PV
Veteran Member


Date Joined May 2006
Total Posts : 1154
   Posted 12/10/2009 12:10 PM (GMT -6)   
Hey there. My husband has had recurring bouts with c-diff. Last year in March and April, he was in the hospital for 45 days, and wad diagnosed both with c-diff and crohn's. You MUST treat the c-diff - left untreated, it can kill.

The treatment that doctor can provide for c-diff is usually Flagyl if you can tolerate flagyl, or vancomycin. My husband was on both because he was also on 120 mgs of solumedrol at the time, and severely immuno-suppressed. Usually once you start antibiotics, you start feeling better in about 48 hours. Doesn't mean you'll have normal stools again, or that things will be back to normal, but you should start feeling better.

The usual course of treatment is antibiotics for 10-14 days. about 20-25% of people with c-diff have a recurrence of the infection, because c-diff is a spore forming bacteria. The antibiotics kill the active bacteria, but spores can linger around in the gut for an indeterminate (months to years) amount of time. So, the spores can wait for a more favourable environment, and hatch and cause the infection to surface again once the antibiotics are stopped. To prevent recurrence, be sure to take plenty of probiotics. Also, the yeast saccharomyces boulardii is thought to fight c-diff. It is sold under the name "Florastor". I would recommend taking those as well as lots of probiotics.

With c-diff, what my husband tolerates (for some definitions of tolerate :-) ), is this: plain rice/pasta, baked chicken (just sprinkled with pepper), chicken noodle soup, plain bagels, eggs, and white bread. Your mileage may vary. Definitely do avoid sugars.

C-diff is a very hardy spore forming bacteria and the spores can survive on surfaces for 8 months or more. You need to use a cleaner with bleach in order to kill the spores. Also, you must use soap and water to rid yourself of the spores and the bacteria; the alcohol based cleansers don't cut it. Another thing I've taken to doing is cycling the washing machine with bleach every so often, to kill the spores.

Thankfully, c-diff is hard to pass on to the generally healthy population - normal hygiene practices should suffice for preventing infection. With the sick, elderly, the very young, and people on antibiotics, you should take extra precautions.

Also, as another poster said, there can be false negatives in the c-diff test. The usual c-diff test done by labs is to test for the toxins in the stool (toxins A & B). The toxins disintegrate quickly if they are not stored properly. So, to give the test the best chance of being accurate, if you cannot take the sample into the lab right away, put the sample on ice. Also, if you get a negative test, and continue to feel poorly, the rule of thumb is to get at least 3 negative tests before ruling out c-diff as a causative agent. But if the test is positive, it is positive - it means you have c-diff.

The antibiotics should do the trick, but if you do have problems, there are people who say they've had great results with fecal transfusions. My husband and I decided not to go this route until we've exhausted other options, but we haven't ruled it out. None of our doctors here will consider doing it, and so, we've left it as a last resort kinda thing.

I hope you get better really quick.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life


PV
Veteran Member


Date Joined May 2006
Total Posts : 1154
   Posted 12/10/2009 12:14 PM (GMT -6)   
Oh, one other thing I failed to mention. c-diff is very harsh on the bowels, and a lot of people end up with post infectious IBS, which should usually go away over time as the bowels heal. The rule of thumb to decide whether to go back to the doc and get re-tested or to see if it is crohn's rearing its ugly head is to give it 3 days. If for 3 consecutive days you have issues, then, it's time for more tests. This last time my husband had c-diff, he had some days after stopping the antibiotics that were iffy - we couldn't really tell if it was c-diff, ibs or crohn's. So, we called the doc, and he said that if it continues for 3 days, we need more tests, otherwise, it's post infectious ibs, and to just give it some time.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life

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