In '92 had my gall bladder removed. Diagnosed in '94 and had ileum valve as well as some small and large intestine re-sectioned in '95. Since then have moved to a very rural area and have to drive 2.5 hours to my GI Dr. Been living with my inability to control BM's because the only sphincter I have left is at my rectum. Not an easy task. Never have had a solid BM since surgery. basically thought I was in remission and not taking any medications for my Crohns. Just Nexium for extreme reflux.
Thought all the arthritic pain in my back and hips was from just turning 50. Thought my hypothyroidism was just mine. Was carrying on with my life on disability caring for my 90 year old grandmother and enjoying life back in my home town. Then symptoms never know before....... Black Tarry Stool(4 days then disappeared), undulating pain in my lower abdomen(pelvis?), extreme nausea. Had to see the Phys. Ass. and they ran blood and stool work ups. Yesterday, called and said my sed rate was 61 and c reactive protein was 13.3. Stool work up came back clean. Nurse said shows active Crohns flare and called in Pentasa. I am not covered for Pentasa on my insurance so she called in the generic of Colazal. Told me it was just as effective!!! Why then would they not prescribe it in the first place? My Upper and Lower scopes are scheduled for early Feb. Now I am suffering from acute D(sometimes I make to the BR), lower abdominal pain, pain in upper stomach area that is different from reflux as well as back pain. I am a mess.