Mumble, Grumble - Colonoscopy Problems

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CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/11/2009 8:30 AM (GMT -7)   
Long story just because I am in a foul mood all of a sudden.
 
I have a "thing" about sedation, anesthesia. I don't like not knowing/remembering what is going on, not having any say in what is being done, what decisions are being made, etc. I have nightmares afterwards the few times I've had either.
 
It didn't help that my gastro and I spent a couple of years arguing about my agreeing to a colonoscopy and her agreeing to do them w/o sedation. FINALLY she agreed to do a scope w/o sedation. EXCEPT when I arrived, was gowned up and in the procedure room and the nurse wanted to set the IV and I asked why and she said for the sedation and I told her I wasn't having any sedation, she said I had to and I said cancel the procedure and climbed off the table. She went running for my gastro who came in and tried to make me change my mind and when I insisted on cancelling she agree to doing the scope w/o sedation. EXCEPT all during the procedure both nurse and gastro kept encouraging me to accept sedation. That was interfering w/my concentration and I finally said "Okay, BUT, JUST a little, I want to watch the monitor". I felt a sting and was out of it. The d*mn nurse hit me w/a full bolus immediately instead of a slow "titration" and I got agitated and then hostile. So much so my husband could hear me way down in the family waiting room threatening to kill them all. Needless to say my gastro removed the scope and it was an incomplete colonoscopy!
 
Altho she insisted I should have a colonoscopy every year due to having had Crohn's for 20 years I kept refusing unless she would do it w/o sedation. I finally let her convince me to agree to a scope w/diprivan (Propofol) but I was an absolute basket case before and actually was waiting for the elevator leaving even my husband sitting unaware in the waiting room when the nurse caught me and convinced me to return to the endoscopy suite. I was in tears by that time. The scope went well and I LOVED that I woke up and was alert so quickly. BUT between the panic beforehand from the time I agreed to the scope w/Propofol and the scope itself and then the nightmares afterwards for almost a week I made it quite clear we would do my scopes w/no sedation or we didn't do any scopes. Pure and simple.
 
I provided her w/the full articles from the following abstracts:
 
Endoscopy 2002 Jun;34(6):435-40
Patient pain during colonoscopy: an analysis using real-time magnetic endoscope imaging.
Shah SG, Brooker JC, Thapar C, Williams CB, Saunders BP.
Wolfson Unit for Endoscopy, St. Mark's Hospital, Harrow, London, United Kingdom.
PMID: 12048623 [PubMed - indexed for MEDLINE]
 
and
 
Gastrointest Endosc 1996 Feb;43(2 Pt 1):124-6
Why is colonoscopy more difficult in women?
Saunders BP, Fukumoto M, Halligan S, Jobling C, Moussa ME, Bartram CI, Williams CB.
Department of Endoscopy, St. Mark's Hospital, London, England.
PMID: 8635705 [PubMed - indexed for MEDLINE]
 
To her credit she actually underwent both an upper endoscopy and a colonoscopy w/o sedation before she finally agreed to do my scopes w/o sedation. And she even admitted that she agreed w/me, the upper endoscopy was worse w/o sedation than the colonoscopy due to the gagging.
 
So we've been doing my scopes w/o sedation every two years *wicked grin*. We've also had our disagreements on what prep to use. Until they took PhosphoSoda off the market that was my preference and I just filed the script for the NuLytely and later the HalfLytely and continued to use PS. I just can NOT do the volume of liquid in such a short time needed for the Lytely products and I am always careful to drink LOTS of fluids over the entire prep day and have always been squeaky clean. Even when I've used Magnesium Citrate instead of the PS. Again, always drinking plenty of liquids the ENTIRE day of the prep. And up until 2 hours prior to the procedure once I read the current literature saying 6 hours prior is not needed and even provides a worse outcome due to dehydration, etc.
 
Anyway, the head nurse of our usual endoscopy department transferred out to radiology and the new head nurse said we could no longer video the monitor during the scopes. So I insisted we switch facilities. We have a brand new facility in town that I really, really like. The staff are all marvelous! Radiology on two floors and endoscopy on one floor. But they don't have an anesthesiologist so can't do Propofol. And we continue to video the monitor.
 
My gastro's office wasn't always the most organized and efficient. But she's remodeled, added on another gastro and more staff and they've seemed to have it all together now. I like my gastro, we've managed to come to a meeting of the minds about scopes, and she is slicker than snot on a doorknob w/those scopes!!!
 
To shorten the story a bit I've developed the confidence in her that I think I can do a colonoscopy w/Propofol IF we can still video the monitor. No video, no Propofol. That means we have to switch facilities again. To the other local hospital I've not had much experience with. I said I would agree IF this hospital would allow us to video the monitor. She said she would check and then she got back to me and said they were agreeable. So the scope is scheduled for today.
 
I even let her convince me to do the HalfLytely bit but to change the times so that I had more time to get that volume of bilge water down. I did the Dulcolax even (which always cramps me up) and then the 4 glasses of 8 ozs of the HalfLytely w/Lemon/Lime flavoring. It wasn't too bad. I didn't get particularly sick or bloated. And I was running clear by the 3rd glass. But dutifully finished the 4th glass at 7:30 PM last night.
 
I'm scheduled for a 4 PM scope, be there at 3 PM. The instructions say to start the last of the HalfLytely at 7 AM. I figured I'd start at 5 AM to give me the needed extra time to get it down. Except I was still running clear at 5 AM so ..... I figured the instructions are for scopes scheduled from 1 to 4 PM - and that is a 3 hour spread. 7 AM to 1 PM is 6 hours. So 10 AM to 4 PM is also 6 hours. So I WAS gonna start the last of the HalfLytely at 10 AM.
 
BUT I had forgotten to call and get pre-registred so I called the endoscopy unit to get pre-registered. And .... to shorten the story a bit more I asked a few questions (trusting soul that I am) and it turns out they have me down for Versed and Demerol and NOT Propofol AND I figured I'd better ask about the video of the monitor .... and was told NO WAY! So I told them to cancel the procedure. Well, lets not cancel just yet, the nurse is going to check into our making a video of the monitor. Scheduling the Propofol instead of the Versed/Demerol shouldn't be a problem. I told them I was willing to do the scope w/o sedation as we have many times before BUT UNLESS they allow us to video the monitor the scope is CANCELLED!
 
So here I sit, burning up w/anger, MORE than anger, I'm absolutely furious and fit to be tied!!! I've done my part and my gastro or her office has screwed up yet again!!! IF I have gone thru this prep for nothing ..... I won't be quiet about my feelings on the matter. NOT AT ALL! I WILL make one big ole billy heck of a stink about it!
 
I'm so sorry I EVER agreed to the Propofol. We would have just routinely done my scope at the new facility where we've been doing them w/all the great staff, we'd video the monitor and I'd have been completely satisfied.
 
Instead, now I am in one FURIOUS twit!!! And still have no idea whether we will be doing the d*mn scope today or not.

Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


KnittingMom
Regular Member


Date Joined Nov 2009
Total Posts : 26
   Posted 12/11/2009 9:02 AM (GMT -7)   
I am so sorry you are going through all this. I hope you get your scope as scheduled! Going through the prep and then getting cancelled would have me livid!
51 year old woman, married 30 years.  27 yr old son married to a wonderful woman.  7 year old grandson with new baby due the end of June!  24 yr old daughter living with her fantastic boyfriend.
Diagnosed with Crohn's in 1990 following resection surgery.  Put on no meds on discharge.
5 years ago put on salofalk.  Early 2009 taken off salofalk put on entocort 3 tab/day, mezavant 2 tabs/2 x's day, methotrexate inj once a week.  Folic, Vit D, calcium, vit c, multi vit, tylenol arthritis.
Will be taken off methotrexate after next dialation (scheduled for asap) and put on IV drugs, just not sure which one yet.
 


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 12/11/2009 9:22 AM (GMT -7)   
This is baffling to me C2 -- as I have posted here before, I have had colonoscopies for many years with NO sedation at all and my GI has been most amenable to that. He tells me I am part of about 1% in his practice that opts for no sedation, and that he wished more would -- and that he even had his own screening scope "bare". I also had an endoscopy center nurse during one scope tell me that most of those who do it without sedation do much better, that the awareness allows them to cope with the minimal discomfort more easily than being awakened from patial sedation and reacting or over-reacting. The simple truth is that for most patients (and I understand this is not true for someone with strictures or bad current inflammation) a colonoscopy is very bearable without any meds at all . . . you can watch the monitor and adjust position and breathing easily to get past the occasional pressure feeling. On a 1-10 discomfort scale the worst I have ever experienced (and then only for 3-5 seconds max) was perhaps a 4. The studies you cite are conclusive -- when offered sedationless scopes, most patients find the experience far less uncomfortable than they expected and probably 9 out of 10 would choose to forgo sedation again. Plus the charges are less . . . C2, I think you are running into rigid adherence to an established protocol at the endoscopy centers, rather than issues with your GI. The fact is that 99% of patients routinely opt for the whole sedation routine, and it has become the process of first resort. Fact is, I would guess that at least 75% of patients could do it bare with little discomfort, less expense and the abiliity to walk right out of the endoscopy suite after the procedure.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/11/2009 9:55 AM (GMT -7)   
I am ticked off for you! I hope the prep was not for naught. You and MikeB are my heros doing scopes with meds, I have stricturing Crohns, so I won't be one without the meds.

Big hugs,
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 12/11/2009 10:55 AM (GMT -7)   
I do them without sedation, and I wouldn't have it any other way.  Searching for a new GI, I quickly eliminate any who won't consider it.
 
I understand people have anatomical and other considerations and need to be sedated, but I'm rather convinced that for most of the population -- all those folks getting a screening colonsocopy --  the sedation masks (and encourages) the scopist's poor skill set and acts an insurance policy, the doc's c-y-a.  If patients are rendered non compos mentis, who can trust anything they say? 
 
I'm further convinced that the strange behaviors I see in other people after a colonoscopy are manifestations of sedation and disorientation rather than the rigors of the procedure.  My father was knocked out for his first screening colonoscopy, and he was a bit spacey for a couple of days and hated it.  On my advice, he's done them since without sedation and is pleased with the results.
 
I had a troublesome nurse once who was absolutely bonkers and refused to believe the doctor would allow me to go unsedated.  "He's going to puncture your colon!"  (How that would be different if I had been sedated, I don't know.)  I was lying totally still, minding my own business and watching the montior, letting the doctor do his job, and she just kept huffing and puffing and laying on top of me and wanted to strap me down.  Finally, I told her, "Get the F! off of me and get out of the room!"  The doc, who had been tuning her out, agreed and she had to leave.  She made a routine procedure stressful with her crazy, ignorant nonsense.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/11/2009 11:23 AM (GMT -7)   
C2..i sure hope they do it and you will let us know right...luvs lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     .....LYN.......
                                Donate to..www..healingwell.com.
                                                    
                                                 
 
                              
 


farfrmnormal
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 12/11/2009 11:33 AM (GMT -7)   
I have a colonoscopy scheduled for next Friday and I am choosing to be sedated as I am extremely inflamed and in pain without anything being in my rectum.

During my colonoscopy last year I was awake through most of it (slightly drowsy but not asleep) and the discomfort I felt was extremely unbearable. They actually gave me more sedation during the procedure to calm me down. I don't remember having any problems the day after the procedure - then again, I came home immediately after the procedure and slept. One thing I am not looking forward to is the 1.5 hour drive home after my colonoscopy next Friday - at least my bowels will be clean and I won't have to make a pit stop :)
- Diagnosed Nov 08' but undiagnosed for 13 years prior with no major problems
- First major flare Aug-Sep 09 - I attribute it to intolerance to meds and crappy GI
- Perianal abscess - EUA with drainage and Seton put in
- Meds: Waiting for Remicade IV to start next month


sickandlucky
Regular Member


Date Joined Oct 2009
Total Posts : 253
   Posted 12/11/2009 11:41 AM (GMT -7)   
I am so impressed by people who choose not to use sedation... for me I'll take any drugs I'm offered! The more of this stupid disease I can sleep through, the better. I'm sure as I get older I'll mature a bit though and maybe be able to handle facing this.
I hope everything works out and they get it right!
female 19, diagnosed crohns december 2008
erythema nodosum
currently taking 40mg prednisone, then imuran or remicade when i taper
feeling scare about side effects but will be happy to feel better :)


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 12/11/2009 1:15 PM (GMT -7)   
I have had them done without sedation, but I don't at all recommend it.

I get what the others are saying though. If you don't have strictures, it is bearable to have the test without drugs. You also get alot of insight into your situation, as you can see what the g.i. doctor sees, and you are somewhat sharp, since you are not doped up, you can remember what you saw.

I remember when I was younger, a teeanger in the mid 80's, they did not give sedation with the test. I have some bad memories of holding onto a pillow being slumped over on a table wide awake while they did that test. I remember when I would flare up at that age I would be petrified with fear, please no, not that test again, anything but that, I will eat, I promise. The tube they used was bigger than the ones they use today, looking back though I doubt it was the size of a firehose as I remember it to be...

These days I take the drugs. Once the drugs come, I forget that I am hungry, I don't worry about being thirsty, it all just sorta becomes ok. Then before I know it, I wake up in recovery, they are handing me a sprite, and I am talking non-stop as I am still quite dopey.
Humira 2 times a month, Lialda 2 X day, Phenergen PRN, Remeron 30mg day, Pain Meds, Prednisone 20mg Every Other Day
Semi@ridemr2.com -- FaceBook


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 12/11/2009 3:04 PM (GMT -7)   
I admire you being able to endure without sedation, and I'm sorry you're having so much trouble with that issue. Keep us updated on how it works out, please!
I couldn't do the procedure without it though. I'm too small in the first place...Everything hurts generally anyway even when I'm well so I have to be under. I do remember struggling in the middle of my colonoscopy, but I cannot imagine how much it would have hurt being aware the entire time.

I guess it's just a matter of the individual. Sounds like Crohn's :)
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 12/11/2009 3:14 PM (GMT -7)   
Ah, the big difference is whether you have a healthy colon or not, which I do. At least as far as no disease there, who can say about polyps until we get the results of the scope?

This scope was NOT fun! The hospital called me back, video and propofol okayed, can I come in early, how soon can I get there? GREAT!!! I'm on my way and am there by 11:50 my time! The staff were great. BUT - I was given WAY TOO MUICH of the drugs. No quick wake up w/the Propofole this time and when I did wake I was as groggy as w/the Versed that first time. PLUS I was nauseous and or dry heaving. I think it was the first time I've been given fentanyl and, man! It made me high as soon as it hit my IV. Maybe it was the fentanyl that made me so nauseous and so "out of it" once I woke up. So far as I know I've always had Demerol as the analgesic. I SHOULD have asked my gastro for a shot of phenergan before I left but the nausea seemed to be passing. HA! I had my hubby stop at what used to be a Med Express on the way home in the hopes of getting a shot of phenergan or something for the nausea - but its now just a doctor's office and outpatient lab for blood draws, etc.

The one time I had Propofol I was down at the desk collating packets (I volunteered at the other hospital) and then we stopped and had a good meal on the way home. I'm going back to no sedation from now on! And I'm gonna go thru all my past paperwork to see if I have ever had fentanyl before or if I was just plain dosed heavier than I needed to be.

So, the scope went fine, except it made me sicker than a dog. Its getting pretty bad when the sedation/analgesia makes you sicker than the prep!!!! Gawd, I'm still queasy!! Even a small sip of water increase the queasies to nausea. And NOTHING to sleep it off with. *sigh*

By the way, I am DELIGHTED to see so many of you agreeing about no sedation for the scopes!!! Our friends here for years always thought I was crazy for insisting on my scopes w/o sedation!!!

Seconder, you are oh so right about sedation being easier on the gastro!!! Little skill needed and saves them a lot of time so they can do more scopes a day. One of the reasons I've stuck w/my gastro thru our disagreements is because she is so good w/the scope.

And dang it!! I forgot to ask for a copy of my still pictures they took!!! And I know they took 2 sets 'cause I saw them. 2 different areas.

Anyway, thank you, Lynn and Nanners and everyone for the empathy, sympathy and support. I made it thru and that's what counts - those this d*mn nausea is wearing mighty darn thin!!! More dry heaves whilst typing this.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/11/2009 4:01 PM (GMT -7)   
Somedays its just doesn't pay to get out of bed. Today obvioiusly is one of those days. Decided to try going to bed in the hopes that maybe I could sleep this nausea off.

Ha! My 02 concentrator is dying. It will run for 3-4 minutes and then start screaming and have to be reset to shut the alarm off. I just wish I could upchuck SOMETHING, ANYTHING so this nause would be overwith.

For a day starting out so good - what a bummer! What's that song? Some days are diamonds, some days are stones??? Yeah, well. Today is definitely a stone!


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 12/11/2009 4:16:21 PM (GMT-7)


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 12/11/2009 4:58 PM (GMT -7)   
Glad to hear things went okay afterall. 
 
I don't envy you the nausea; it's the pits.  Going to bed might be the best option. 
 
I used to have an old-school GI once who only used light sedation (and allowed me to go without).  He felt proprofol was an affront to his skills:  "If I'm going to use proprofol, why don't I just hire a chimp to do the scope?!" 
 
Hope you're feeling better tomorrow.  Today can be a lump of coal.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/11/2009 5:38 PM (GMT -7)   
Awwww Will gravol help at all hun....i do my own im shots when hv severe headache n nausea...works good for me,,,,wish i was more help,,,feel better ,,luvs lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     .....LYN.......
                                Donate to..www..healingwell.com.
                                                    
                                                 
 
                              
 


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/11/2009 10:31 PM (GMT -7)   
Thanks, Lynn and Seconder. Kudos to my DME provider. They had someone out in just under an hour w/a new concentrator!!! I did go to bed to sleep "it" off. No way in h*ll should this happen w/Propofol!!!!
 
And, yeah, I was dreaming about gagging and upchucking and fighting w/people trying to hold me down whilst I upchucked and gagged.

I was given 280 mg (or whatever - the 280 is right) of Propofol and 100 mg (or whatever - the 100 is right) of fentanyl. To my knowledge I've never had fentanyl before and I got high the minute it hit my IV some time before Jose (NICE guy!) put me out w/the Propofol. I suspect this is all the fault of the fentanyl but I will be contacted the hospital Monday where I had my previous scopes to see whether they ever used fentanyl for me.
 
Any way, I slept exactly 4 hours and woke up and am STILL nauseous. I'm dry but a sip of water just puts me into gagging mode.

If I wake up nauseous still tomorrow I AM going to Med Express for SOMETHING for this nausea!!!


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 12/11/2009 10:42:20 PM (GMT-7)


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/11/2009 10:39 PM (GMT -7)   
Oh. And I guess I was at the very least partially at fault about the mixup w/the sedation and the video.

I was originally scheduled at this facility for 18 Dec. Then my gastro's office called to cancel. They tried to schedule me for 15 Dec at my origianl hospital where we can no longer video and I told them 1] I won't use that facility anymore BECAUSE we can't video and 2] I had rescheduled some 18 Dec appointments for the orginally scheduled scope to the 15th. 3] So then they were going to schedule me at the new facility where I like the staff so much but I reminded them that that facility couldn't do the Propofol 4] so they put me on the cancellation list at this facililty I was at today - AND 5] when they called w/the cancellation and scheduling for today I just said YES, I'LL TAKE IT! And didn't mention or remind them about the Propofol and the video.

Sometimes I can be my own worst enemy!!!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/12/2009 9:35 AM (GMT -7)   
C2 Fentanyl is a REALLY strong med and suspect that is what gave you the nausea. It did it to me. Sorry you have no Zofran or Phenergan on hand to help with the pukies. Hope you are feeling better today. Just curious how you are doing today? I always cramp like crazy for a day or two afterwards and am hoping that you don't have that to add to your misery today. Gentle hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/12/2009 11:28 AM (GMT -7)   
Thanks, Nanners. Just the queasies this morning - until I take a sip of water. Blech! Then nausea but no dry heaves. I called our local pharamcy to see if they had any OTC that would help. Hubby went up and picked up some meclizine chewables. It took me a bit to get up enough nerve to try a chewable. But it worked. The pharmacist suggested some of my nausea could be from so long w/o food and that if the meclizine settled my tummy enough I should try eating something bland an hour later. I tried some soda crackers and tea and that went all right. So I just tried a poached egg and toast and some more tea and that's doing all right too so I think I am out of the woods!!! Thank God!

The doses for the propofol and fentanyl were in mcgs, not mgs. Hopefully I'll find out Monday if I've ever had fentanyl for a scope before and at what dose. Either I NEVER want fentanyl again or I want it in a MUCH, MUCH LOWER dosage. I've never found a colonoscopy painful so I'll probably agree to propofol again maybe but w/o any fentanyl at all.

Meanwhile, since I've been so wrapped up in "me" .... how are YOU doing? Any relief for the joint pain?
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/12/2009 9:07 PM (GMT -7)   
You can end this right now. Make a run down to home dumpo and buy your very own scope. They sell two versions. The best has a three foot flex cable. Long enough for you to do your very own scope. No propofol or fentanyl. Just fix yourself a few stiff drinks and your all set. They have a nice camera screen and the controls and look just like the ones the doc uses. Much cheeper too..Hey , if you can look down in a wall, you can look up a ,,ahhhhhh, whatsit.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/12/2009 10:52 PM (GMT -7)   
oh sniper you sweetie...no thanks though lol i will pass..luvs lyn say hi to your better half for me k lol.........C2 i was deathly ill from fentanyl..dry heaves severe nausea.. i could only get small sips of flat ginger ale into me n that still made me queasy but helped with the dry mouth n needing fluids.....i hv it now where it states i am allergic to it as i never want that crud again...feel better...luvs n huggles lyn
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     .....LYN.......
                                Donate to..www..healingwell.com.
                                                    
                                                 
 
                              
 


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 12/13/2009 3:54 AM (GMT -7)   
C2,, too bad it didnt go well for ya.. i have done both with and without... i would never do without again... just going through the rectum kills me.. even with the drugs! i LOVE fentanyl! only im pretty imune to it .. this last scope in november, the nurse gave me the meds, and i was still jabbering at the dr.. he looks over at the nurse and asks how long? she looked at the clock and say like 2 minutes 15 seconds! he tells her to hit me again.. then i slowly relaxed and went by-by.. but it still hurt and i felt it all.. when i had 2 teeth pulled a couple years ago it was the same thing. the oral surgeon pushes in the mix... then a couple minutes later she asks, why are you still talking to me? i told her that i warned her it takes at least double the amount for me.. so she says i can fix that! well let me tell you, i went out and dont remember a thing. just like i like it. my wife even took me to the bank on the way home and i had no clue she told me to withdraw money! :-)... i think it was all the anesthesia from all the ops, and the duragesic patches i did for a year.. built up a tolerance..

as a side note, im actually surprised they would even give you any fentanyl or propofol with your lung issues. they would not for my dad. they always had some type of alternative.
randynoguts 



     http://www.geocities.com/randynogutsweb/


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/13/2009 5:15 AM (GMT -7)   
Thanks, Lynn. Sniper, I think I'll pass on your suggestion!!

Randy, I don't seem to have any problem w/sedation - so far - re my lungs. Thank God! I'm only on 02 supplementation at night w/a bi-level PAP and only during the day if I am really active. Long walks, etc. How bad were your dad's lungs? Was he on 02 round the clock? Do you have any idea what they used instead for your dad?
 
I hear you about needing such heavy doses due to so long on pain meds, etc. God has blessed me w/a good sensitivity to drugs as we have yet to find an oral pain med that doesn't make me nauseous as ole billy heck. Fortunately, it is very seldom that Tylenol Rapid Release doesn't work well for me. Altho that shingles attack I had I did stay on the Vicodin for a couple of weeks despite how nauseous it made me!!! Many meds work well for me at 1/2 dose, such as metronidazole. I couldn't use it at all at full dose due to peripheral neuropathy but 1/2 dose got my gut back under control.
 
I'll NEVER forget the first time they gave me a dose of morphine! It was for the shingles when they admitted me to hospital for pain management. It no sooner hit my IV then I was dry heaving violently! I refused to ever have it again unless they administer phenergan at the same time or BEFORE the morphine!
 
But phenergran makes me very drowsy and thick headed too so I do NOT want them thinking they can just give me phenergan along w/the fentanyl. I think I will just do as Lynn and list fentanyl as an allergy. Thanks for that idea, Lynn!!!


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 12/13/2009 5:23:18 AM (GMT-7)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/13/2009 7:56 AM (GMT -7)   
Hey C2 glad to hear you are on the mend. As for my joint issues they are a tad better since I added extra Vitamin D into my med mix. Got some weird thing going on with my shoulder, just hoping thats from the H1N1 vaccine I got and will get better soon, its been a week already since I got the shot. And she gave the shot to me well, so its not from a bad injection. I'm gonna give it another week, then will see the doc if its not better. Having problems lifting it over my head.

PS: I told my surgeon I never want to be given Fentanyl again. I was on it for about 6 weeks after my liver surgery, and the withdrawals were horrendous.

Big Hugs,
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 12/13/2009 8:54 AM (GMT -7)   
Vitamin D helps w/joint aches and pains? We lowered my Vitamin D close to a year ago now and I've been having some mild (thank God) joint aches. Mostly my shoulders, sometimes my hips, and also usually just on waking in the morning it feels like a wad of cotton under the balls of my feet, mostly the right one. I wonder if raising my D ...... ??
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/13/2009 9:39 AM (GMT -7)   
I found it helps me alot actually. I had alot of foot pain, and that is 100% better with the additional Vit d. Give it a shot, might help. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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