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bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted Today 11:08 AM (GMT -7)   
Can crohn's cause any type of serious vision issues?
 
Thank you
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted Today 11:33 AM (GMT -7)   
I think, but not 100% sure, that there is a greater risk for Cataracts or Glacoma.  You should definetely gets your eyes examined every couple of years.

36 yr old Male with Crohn's Disease since '88 - No Surgery yet
 
Been on almost every type of drug with bad results
Remicade since Nov 2009


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted Today 11:35 AM (GMT -7)   
You asked a rather broad question, which is fine, I'll try to answer. wink

I am sure that CD can, and most likely it does cause vision problems, but me personally I blame the medications, and malnutrition more than the CD. As far as blindness, I have not heard of that, and have no answers for you on that one.

I have in the past, not in some time though, noticed my eyeball will get red spots in it, when my CD is active and flaring up on me. I dunno what these are, or what they are called, I can still see ok with them, and they go away on their own, proably something that prednisone heals up.

Prednisone can and does cause glaucoma, and cataracts. It does something strange to the pressure in the eye, which can cause vision problems after many years of prolonged use. It is also not so much dependent upon your dose, if you take 5mg every other day, you are still at risk. Getting routine eye tests done(yearly), where they are dilated and inspected by an eye professional can help catch any of these issues early, should they happen.

Crohn's can and also in many cases does cause malnutrition. What this means is simply that your body may, or may not be getting enough of the vitamins necessary to support good vision.

Example; For me, CD and my meds, pull potassium, magnesium, folic acid, and calcium out of my body. I have to take these vitamins religiously, or else I will suffer. I can still see fine, but my eyelid does tend to twitch, and sometimes it will twitch violently if my potassium is low. I dunno if anyone can see it twitching, but of course my whole world is vibrating up and down when it happens. Smoking too, which I have taken up again recently, pulls potassium out of your body.

Hope this helped.
Humira 2 times a month, Lialda 2 X day, Phenergen PRN, Remeron 30mg day, Pain Meds, Prednisone 20mg Every Other Day
Semi@ridemr2.com -- FaceBook


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted Today 8:09 PM (GMT -7)   
A friend's brother (a young man who I believe is +/- 30 yrs of age) that has crohn's is losing sight in one eye and his physician said it's due to his crohn's...I am trying to get confirmation that crohn's itself can cause serious vision issues for his sister.

Info very helpful thus far; thanks.
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 12/12/2009 3:27 AM (GMT -7)   
Yes, Crohn's disease can be associated with three serious inflammatory eye diseases, uveitis, scleritis, and episcleritis. Of the three, scleritis is by far the most serious, and is the one that can cause blindness.

I am guessing that the young man in question has already tried the standard treatments without success, or at least without full success, since his sister is trying to find out more. If so, I would like to make one suggestion that might be helpful. Total enteral nutrition, complete liquid diet to induce remission, is an old but effective treatment for Crohn's disease that is little used in the US. It might be worth trying. Her brother might wish to show the following reference from the Journal of Clinical Gastroenterology to his doctor: http://www.ncbi.nlm.nih.gov/pubmed/18344883?itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum&ordinalpos=1

This is a case report, published in 2008, of a patient with severe Crohn's who had tried all the usual medications, ultimately was on Remicade for a while, but developed almost complete vision loss from scleritis in spite of the Remicade treatment. Her doctors stopped all medications and put her on total enteral nutrition instead (the Modulen IBD mentioned in the article title is an enteral nutrition product). She went into full remission and her vision returned within three weeks of starting enteral nutrition. Although this is the first reported case of the use of enteral nutrition to reverse severe scleritis, the treatment has been around for years and and its efficacy as a treatment for Crohn's is well documented in dozens of clinical studies, case series, etc.

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 12/12/2009 11:47 AM (GMT -7)   
Thany you for the info Writer.
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.

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