Humira 5 day Window

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Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 12/11/2009 1:29 PM (GMT -7)   
I was talking with an Abbott nurse about Humira a few weeks ago, she told me something I wanted to pass along.

She said that with Humira you have a 5 day window. This is only when you are on the maintenace dose, 2 shots per month, one injection every 2 weeks.

In other words, if you are scheduled to have an injection on December 12, and you forget, it is ok. You are actually safe all the way up until December 17 to do that injection. You would have to change things up a bit, and do your next injection 2 weeks aka 14 days from December 17, or whenever you did the shot.
Humira 2 times a month, Lialda 2 X day, Phenergen PRN, Remeron 30mg day, Pain Meds, Prednisone 20mg Every Other Day
Semi@ridemr2.com -- FaceBook


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 12/11/2009 2:02 PM (GMT -7)   
Thanks homeboy - handy to know things like this :)
How is the Humira working for you?
Have you managed to drop the pred down at all?
I have my 2nd maintenance dose next week and I have found it works wonders for my CD but has yet to start helping my AS - might take a bit longer for that. I have also dropped the pred down from 20mg to 10 mg and will be doing a very slow taper from herein.
Hope its doing its magic for you.
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 12/11/2009 5:24 PM (GMT -7)   
At first it was great, and I want to say it still helps, but I just dunno at this point. At first, it worked very well, and I was able to get off of prednisone completely for about 2 weeks. Yep, 2 weeks after a taper, and no prednisone, NONE, it was amazing. At least I know my body can do without prednisone, I am not completely trapped by it, there is hope.

I had surgery recently, had a stricture removed. That thing was a major source of my troubles. I really think that by having that stricture, I had little chance of actually staying in remission.

I can't say if I am doing better at this point, since I am still in recovery from the operation, alot of things are numb, muscles sore, and healing.

Also with Humira, IF you call them they will send you a free sharps container for your used pens/syringes. It comes with a shipping label, and a nice box, you just package it back up well, put the shipping label on it, and drop it off at a post office, no charge.

Good Luck with Humira, post about your progess, keep everyone updated.

:)
Humira 2 times a month, Lialda 2 X day, Phenergen PRN, Remeron 30mg day, Pain Meds, Prednisone 20mg Every Other Day
Semi@ridemr2.com -- FaceBook


SydneyJo
Veteran Member


Date Joined Mar 2006
Total Posts : 1354
   Posted 12/12/2009 3:03 PM (GMT -7)   
Homeboy - hopefully after you recover from your surgery the Humira will do its magic for you.
Thanks for the suggestion re: the syringe container.
Keep us updated too on how you progress.
Jo
Crohn's Disease, Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07
 
Forum Moderator - Rheumatoid Arthritis


MyCrohn's
New Member


Date Joined Dec 2009
Total Posts : 2
   Posted 12/12/2009 3:32 PM (GMT -7)   
Hello all!
I have recently was discharged from the hospital after being in there for over 2 months. I was diagnosed with Fistual Crohn's Disease. 70% of my small intestines were removed. I now have a colostomy bag and iliostomy bag. It was a sever case of Crohn's. Prior to being diagnosed, I had never heard of the disease, so all this is quite overwhelming.
I was put on Prednisone, starting at 30 mg and lowering dosage by 5mg each week. I just had my final week, so no more Prednisone. YAY!
I also take Pentasa and 6MP (Mercaptopurine). Remicade was advised the whole time in the hospital and I just saw a specialist GI Dr. at Cedars. He confirmed and thinks strongly that I DON'T need the Remicade right now.
I will have a follow up surgery, which I am ready for now. This surgery will reconnect everything and remove the bags. Aiming for January. However, We may do it in two surgeries, removing one bag at a time. Not so happy about that, but at least the whole thing is temporary.
Since the surgery, i have not had any "flare-ups". Really relieved that i don't need the Remicade.
But...scared of what may happen after the surgery. Has anyone had colostomy bags and had surgery to remove?
Any advise with this disease will greatly be appreciated, I am a newby!!!
Looking forward to hearing from you soon!
Best wishes to all!

Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 12/12/2009 4:50 PM (GMT -7)   
MyCrohn's;

Wow, sorry you have went through so much. You do seem to have a good attitude about things, and that will help you out alot.

I had one surgery done when I was young, age 15, I am currently 36. They removed part of my small and large intestines. I too had a temporary illestomy, just the one. It was an ordeal, it always leaked on me, every morning I had a mess to clean up. I would think they are better made these days, I dunno.

I went back one month later, after the first surgery above, and they hooked things back up, I had no trouble, or complications with the surgery.

You may get more replies if you start up your own new post.

Welcome to the forums. smilewinkgrin
Humira 2 times a month, Lialda 2 X day, Phenergen PRN, Remeron 30mg day, Pain Meds, Zantac 300mg 2 X day, Prednisone 20mg Every Other Day, Vitamins;
semi@jengland.info -- FaceBook


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 12/13/2009 2:54 AM (GMT -7)   
Thanks for the info.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.


MyCrohn's
New Member


Date Joined Dec 2009
Total Posts : 2
   Posted 12/13/2009 10:05 AM (GMT -7)   
dear homeboy,

thanks so much for responding and sharing your experience and welcoming me to the forums.

Yes! I am too familiar now with the leaking. Nothing comes out of the colostomy bag, but mucus here and there. Everything comes out of the iliostomy and I have now what's referred to as a "shrunken" stoma. I do have to use special convex bags and they leak quite frequently. Problem is that my skin is so badly irritated underneath, all burned, equivalent to a 2nd degree burn. It's just pure raw and moist, therefore the bags don't stick as they should, causing it to leak more often. Thanksgiving day was not fun at all for me. I had to change my bag 10 times in one day. It was awful. I do have an ostomy specialist nurse that comes to the house twice a week to monitor the skin..It's not getting any worse, but not any better either. I don't mind the bags, especially as they are temporary. However, the constant leakage and emptying out the bag SEVERAL times a day is a nuisance.

I do try to remain positive. It is what it is. Seems like my Crohn's isn't leaving me, so i must be good to it to prevent any flare ups. I do feel much better though since my surgery. I was never able to eat the way i do right now. Anything I would eat, i would feel nauseous right afterwards. A little before my surgery was where it was at its worse, causing me to throw up all the time. I lost too much weight, i had no energy, i had stomach pains all the time. It was pure agony. Now I eat and knock on wood, no pain yet. I of course have to stay away from the foods i am not supposed to eat.

Really not please with having 2 surgeries to remove 1 bag at a time, but...my surgeon has been there since day 1 in the ER room and he has the best interest at heart. The GI specialist thought i can have 1 surgery but now my surgeon convinced him otherwise. Afraid that i will chronic diarrhea with 1 surgery, causing too much pressure and pain on the anus. With 2, it will slow down process and just be better off. We'll see...

Does anyone have frequent flare ups? what are they like? they say they want to save the Remicade in case i get flare ups after i am reconnected....as my Crohn's is basically in a jar currently.
What foods do you have to stay away from?

Hope all is well and again, thanks so much for sharing your story...

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 12/13/2009 7:06 PM (GMT -7)   
Homeboy--
 
Did you have the same experience as me? The first 4 loading doses, the next moring I was %110. I felt AMAZING for about 3 weeks, I was having one NORMAL bowel movement a day, then it all went back to the usual and didn't help me at all.
Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings
Current Meds: Cimzia, Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: Nov. 20th to Take Down Abdominal Fistula!!!
 

Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 12/13/2009 7:55 PM (GMT -7)   
Took me about one full month, and I was feeling the stuff work really well.
Humira 2 times a month, Lialda 2 X day, Phenergen PRN, Remeron 30mg day, Pain Meds, Zantac 300mg 2 X day, Prednisone 20mg Every Other Day, Vitamins;
semi@jengland.info -- FaceBook

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