Advice for no ENERGY????

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Nebraskagirl
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 12/12/2009 11:30 AM (GMT -6)   
idea Does anyone have advice for having no energy? I am always so tired. Especially on weekends when I need to have energy. I cant go thru STARBUCKS like the average people and get a quick fix!! I know I need to take vitamins. But I just am so tired and want to lay around and sleep all day and on the weekends my kids want to get out and go do something and I dont.
 
Just wondering if anyone had any little SECRETS i could try?
 
Thank You all. Hope your having a good weekend.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14994
   Posted 12/12/2009 11:37 AM (GMT -6)   
I would suggest getting your Vit D and B12 levels checked. They might be low. I started taking an additional 2000 units of Vitamin D a day back in September. It has been a godsend to me. Its help some with the fatigue, but helped even more on the Fibro pains and joints pains. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

LunaBelle
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 12/12/2009 12:46 PM (GMT -6)   
I have the SAME problem and have recently started taking Vit D as well and omega 3. Try those and drink plenty of fluids besides coffee. Vegetable juice is good or gatoraide and pretzels . It takes at least 4-6 weeks before you notice a difference with the Vit D and Omega 3 good luck

Lunabelle
ileostomy for 20yrs

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/12/2009 4:57 PM (GMT -6)   
By all means get your vitamin D level checked (as well as B12 and iron and electrolytes). Vitamin D can be high in some people with Crohn's because the intestinal cells that characterize Crohn's convert the inactive forms of vitamin D in the blood into the active form. Make sure that you are not already high in vitamin D before starting supplements, but you should also be aware that this may be a temporary high level and it can quickly change to low levels of vitamin D.

ladybug0709
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 12/12/2009 5:00 PM (GMT -6)   
A good multi-vitamin/mineral supplement with iron, vitamin D 1000-2000 mg, omega-3, calcium.
Try a little exercise - may be hard a first because your tired but it will help in the long run. Build some muscle. Dont let this disease get you down - enjoy the things you like to do. Go for long walk when its sunny to get some vitamin D from the sun. If your really tired - just rest and dont fee bad about doing it. Also get to bed early and establish good sleeping routines.
Good luck.
Crohns almost 17 years. Surgery April 2009, Currently taking Imuran and Entocort. Also take multivitamin/mineral supplement, omega -3 oil, calcium and vitamin D. Eat lots of yogurt. Limit wheat and gluten as much as I can.


meshuganeh
Regular Member


Date Joined Sep 2003
Total Posts : 42
   Posted 12/12/2009 6:31 PM (GMT -6)   
I used to be so tired that I would sleep from friday night until noon on saturday, get up and eat some food, nap until dinner, eat dinner, go to bed and sleep until noon on sunday, lunch, nap, dinner, and go to bed before getting up for work on Monday.

Are you dealing with any depression? It is VERY common for depression to set in with CD. A few years back I starting seeing a psychiatrist (something I swore I would never do, and thought would not be very helpful) at the urging of a friend who had read how positive results were seen with the use of Prozac to treat CD.

I spent a year in therapy - talking to the psych once a week for an hour. I spent about a month to 6 weeks on Prozac, but it irritated my stomach and I did not find it particularly helpful (I definitely did notice it working, you don't feel sad on it, you just feel kinda flat). However, I found the process of talking through and trying to understand my feelings around the disease (and other various issues in my life) was hugely beneficial. I found that this process enabled me to identify the how and why I was feeling certain ways. Once I was able to identify those feelings, I was able to address them more clearly. On the other side of this experience I find myself with a lot more energy. I attribute that to having dealt with the period of depression I was going through which seemed to be causing fatigue.

Anyways, just something to think about.

As for diet, if I am in a flare, I like to rehydrate with pedialyte (I think the orange is the best). You would be suprised how big of an impact dehydration (and chronic dehydration) can have on how you feel. I also take the vitamin supplement Forvia. I tried an herbal supplement called MaxGXL, it was expensive and I did not notice any real difference. Also, I would recommend eating small meals throughout the day. You want to try to maintain a consistent blood sugar level...something hard to do when you are pooping it all out. I have found that approach to have a bigger impact on how I feel compared to what I actually eat.

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 12/12/2009 8:07 PM (GMT -6)   
All the above adivce is good. Obviously I understand where you are coming from so don't misunderstand my advice. I think getting some exercise might help. If it is possible for you. I think that exercise could help with depression as well as the physical wear. Something fun. Can you swim, play racquetball or dance class or yoga. I also turn on bright white lights when I am home this time of year. It helps me a little. Watch out for those foods that lift you up and then dump you.

In any event I think that you should be tired with kids and crohn's.. Luck
I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.  Give it about ten days.  I am NOT a healthcare professional.   Ask your doctor if this is safe for you. 


snohare
Veteran Member


Date Joined Oct 2004
Total Posts : 2085
   Posted 12/13/2009 7:32 AM (GMT -6)   
yeah It's an old, old story. Search "B12" on the forum and you will see a lot of Cd-ers have the same problem.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/13/2009 8:15 AM (GMT -6)   
All great advise! Sometimes I feel the same way, but I get my butt up and do something and I look back and say to myself I'm glad I did.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


ladybug0709
Regular Member


Date Joined Dec 2008
Total Posts : 60
   Posted 12/13/2009 11:27 AM (GMT -6)   
Also wanted to mention to eat the best diet possible that you can tolerate. Make homemade soups when you have the energy and freeze some so you have it for when you have no energy to cook. If you have more energy in the morning use a crock pot so you have dinner already prepped. Eat a balanced diet with all the food grous (if you are able to tolerate). Aim for at least 3 -4 different foods at each meal and 35 different foods per week. Most people (not only Crohn's) eat the same 10-12 foods per week which can lead to fatigue in anyone. Try different juices: orange, pomagranet, cherry. Sprinkle cinnamon on everything you can and use lots of herbs and spices for the antioxidants in them. Try mixing together different cereals in the morning and adding 2 different kinds of fruits (i.e blueberries and sliced banana.) If you drink ensure - make s smoothie with it by adding banana and other fruits you can tolerate. Hope this helps. Can you tell I ama dietitian?
Crohns almost 17 years. Surgery April 2009, Currently taking Imuran and Entocort. Also take multivitamin/mineral supplement, omega -3 oil, calcium and vitamin D. Eat lots of yogurt. Limit wheat and gluten as much as I can.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/13/2009 5:37 PM (GMT -6)   
One further thought - an overgrowth of gut bacteria can cause a lot of fatigue. It's just like having the flu, without the sore throat, congestion and fever. You can easily test this by fasting for a day and using a laxative. Drink only water or broth and avoid any sugar for the day. If you start to feel better, you have a bacterial overgrowth and need to alter your diet to limit sugars and starches and other carbs. The idea is to avoid feeding them until they stop being so much trouble. You might need to make a low carb diet your norm if adding carbs causes fatigue for you.

meshuganeh
Regular Member


Date Joined Sep 2003
Total Posts : 42
   Posted 12/13/2009 6:49 PM (GMT -6)   
ladybug, I second your advice about diet variety and eating as well as you can tolerate. I feel so much better when I eat a variety of foods. I don't have scientific evidence as to why this is, but it is. Even when I am supplementing with vitamins and eating the few things I know don't cause problems I never feel as well as I do when I can consistently eat a varied diet.

Comment on the B12. I have always tested in the normal B12 range, even at my worst, and on top of that take B12 supplements, and for a period of time was getting B12 injections. I never noticed a difference (which makes sense, since I was never deficient). B12 is crucial, however, my extreme fatigue was present in spite of normal B12 levels. (hence, my advice above related to considering the impact of depression and if it is a factor, treating that).
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