Similar Symptoms anyone...?

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Kgarli01
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 12/12/2009 2:20 PM (GMT -7)   
Hi,
 
My boyfriend of 3 years has been dealing with Crohn's Disease since he was 18. He is now 25 and can't seem to get his flare-ups under control. He has been in and out of the hospital for the past year and has been prescribed many different medications. Pentaza, Prednizone, a number of different antibiotics, and Imuran, just to name a few. He just spent the weekend in the hospital for 4 days for a bowel obstruction (while he was on the meds described above). He had the NG tube, IV, catscans, x-rays, and the whole 9 yards.  Just when he started feeling better, they let released him from the hospital and he started having the same symptoms again 5 days later.
 
I've been trying to educate myself more about the disease and it seems like most people with Crohn's have issues with diarrhea and frequent trips to the bathroom. He has the opposite problem. He becomes extremely constipated and has terrible pain in his stomach. His stomach also makes the loudest gurgling noises that I've ever heard! Along with the constipation he is always very sick and vomits every half an hour until he is so sick that nothing is left. We try to keep an eye on his diet to find what foods may trigger a flare up but who knows, it seems to be completely random. He's been really sick lately and can't seem to get better no matter how many steroids and antibiotics he takes. Has anyone had these symptoms? Does anyone have advice for us?
 
His doctor recently mentioned Remicade as an option, but the side effects seem quite scary as well. Any advice will surely help. Thanks in advance.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/12/2009 2:36 PM (GMT -7)   
The constipation and vomiting sounds a lot like a stricture or even a blockage. Have they said anything about surgery? If he is not responding to prednisone, he may have a stricture/blockage that is due to scar tissue and the only treatment for that is to have the scarred section removed. I'm a bit surprised that they let him go on the weekend - a blockage is dangerous.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/13/2009 6:21 AM (GMT -7)   
I agree, it does sound like a blockage due to scar tissue. I would seek a different doctor or hospital.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/13/2009 7:38 AM (GMT -7)   
I third everyone above opinion, I too believe he has a stricture. If the stricture is from inflammation the Remicade may help, but if the stricture is from scar tissue no meds will work and surgery is the only option. I hope and pray his docs get this figured out for him and he gets feeling better soon. Its wonderful when we see loving partners trying to education themselves about our horrible disease. I wouldn't be so frightened about the possibility of surgery, many have gotten long remissions after the surgery. Just make sure that if he does have surgery that he stays on a maintainence med such as the Imuran. Good luck and keep us posted.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 12/13/2009 8:29 AM (GMT -7)   
Hi yep i fourth everyone's opinion above what were the results of the CAT scan and x rays? I would keep on at the Doc's the longer they leave it the worse it will get and he could end up having surgery. Hope they sort him out soon Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)


Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 12/13/2009 10:15 PM (GMT -7)   
I have strictures in the worst kind of way. My doctor said that Remicade might be a bad idea in my case as the rapid healing could actually cause additional scaring and narrowing or occlusion of the strictures (they are currently only 5mm wide.) If your BF has severe strictures (that are caused mostly by scar tissue) then surgery may be the best option.

+ 34 year old male
+ Crohn's Disease DX in 1997
+ Recently hospitalized because of ruptured small bowel; docs got it under control but have scheduled resection surgery for January 2010.
+ Taking Cipro (1000mg / day), Flagyl (1500mg / day), and Entocort (9mg / day) until surgery
+ SCD for past 10 years


canap
New Member


Date Joined Nov 2008
Total Posts : 12
   Posted 12/14/2009 7:42 PM (GMT -7)   
I have been having Remicade infusions for 4 yrs and the only side effects I have are nausea which gravol fixes quickly. I has an obstruction for over 20yrs before they removed it and now I feel better and don't have stomache flares.




I have Fibro but my boyfiend has crohns and wanted to replay to you.
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