UPDATE- had endoscopy and have questions

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annod
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Date Joined Apr 2004
Total Posts : 1052
   Posted 12/13/2009 3:12 PM (GMT -7)   
Hi! I don't know if there is anyone around who still remembers me.  I was very ill starting in 2003 and I was off work for 2 years...  well time goes by and I did end up in remission and had another baby who is now 2 years old.  Still suffer with flares, just not as bad as during the 2 years - and they only end of lasting around 5 days vs months. 
 
I just wanted to let you all know that through the years I have thought of you often and have been extremely helpful of your support- I don't know if I could have made it through my worst times without you.  I often wonder how you are all doing.
 
I am back as i have been suffering with the worst esophageal spasms ever! I never had this before so it was / is scary.  I ended up in emerg yesterday.  My whole upper chest and back was/is so inflammed.  Everytime I swallowed I got a huge spasm right through to my back.  Today I am doing a little better and am able to feel that my esophagus is inflammed..  I didn't see this coming on or I would have started doubling up on my losec.  I am a little scared though that something horrible is going on in there...
 
Emerg really didn't do any tests or give any meds, just suggested that I go see my GI and have a scope done.  Well...that process may take a while as I haven't been in contact with my GI in many years
 
Anyway- just wanted to say hello :)
Donna

Post Edited (annod) : 1/5/2010 5:59:01 PM (GMT-7)


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 12/13/2009 5:12 PM (GMT -7)   
Keep us informed, please. My neighbor was Dx'd w/esophageal spasms and never could get any relief from it, except to some degree finally w/Lyrica. She says hers feels like a rope tied around her chest that tightens and tightens and tightens. Sometimes it will drive her into severe coughing spells.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/14/2009 8:56 AM (GMT -7)   
Did they give you a GI cocktail? That really helps with mine. I keep some in my fridge.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/14/2009 9:00 AM (GMT -7)   
Navy whats a GI cocktail?
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/14/2009 9:08 AM (GMT -7)   
Mine got ulcerated so the oral ladocaine (this is rx only but it REALLY helps me) helps the spasms and karafate with the bleeding.

this is the info for gi cocktail
http://en.wikipedia.org/wiki/GI_Cocktail

pink magic has helped some in the past


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 12/14/2009 9:11:25 AM (GMT-7)


annod
Veteran Member


Date Joined Apr 2004
Total Posts : 1052
   Posted 12/16/2009 7:56 PM (GMT -7)   
The only thing they gave me was the "pink lady" a mixture of maalox and a numbing agent- I forget what it is called. It numbed and took the edge off for a couple of minutes but that was it. It was more of a diagnostic tool for them to see if the pain was coming from the stomach/esophagus...which I told them it was but anyway lol. It has been 5 days since the extreme pain and today is the first day with only a few spasms. Esophagus still feels pretty inflammed but getting a little better everyday. I will continue taking double dose of losec until no symptoms and then I will go down to the one pill a day.

Can severe esophageal spasms do any damage ? felt like it was going to tear up! I need to get re referred to a specialist as its been way over a year since I have seen him- gonna be a while until I get a scope.
Donna


annod
Veteran Member


Date Joined Apr 2004
Total Posts : 1052
   Posted 1/5/2010 4:31 PM (GMT -7)   
Had endoscopy yesterday. He found inflamation mid chest area- biopsied it. I will see him in office in a week or two. He said my stomach was fine..I was too drugged up to ask all the questions I wanted to. I am wondering if you guys think it could be the crohn's settling in that area or if it is the reflux that got it.... thing is you would think irritation or inflamation would be from stomach up in that case vs this situation. I felt like I was starting to heal after the 3 weeks of bland diet, doubling losec and ex strength maalox in between and went down to 1/4 cup coffee / day. However, I am struggling now cause since the endoscopy that area is worse again...not spasming like at the beginning but it hurts- feels like food is scrapping it on the way down...what are your thoughts?
Donna

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