Fevers - who gets them?

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Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 12/14/2009 9:01 PM (GMT -6)   
I have Crohn's Colitis and am most likely in a flare - I don't know if my next infusion of Remicade will "fix" this or not.  I was on antibiotics and now have watery D and urgency all the time - I have been eating just brown rice and bananas for the past 2 days to try and calm my insides but have been trying to drink gatorade to stay hydrated.
I woke up today with a fever - it is 99.6, not terrible but I know sometimes they won't give you Remicade if you have a fever, they wait for it to break.  Any idea why?  Do you need to have an infection that is giving you a fever or can you just have Crohn's/Colitis fevers?
Any input would be helpful!  Thanks!!

Regular Member

Date Joined Jun 2006
Total Posts : 321
   Posted 12/14/2009 9:13 PM (GMT -6)   
Sometimes I get low grade fevers when I am flaring, just from the inflammation. They don't like to give Remicade if you have a fever just in case it is an infection. They can do a quick blood test before they give it to you though. I had to get blood work done before my last Cimzia shots because I had a fever. I guess it depends on where you get it done but I get it done at the VA so the lab and everything is right there. Make sure you let them know you've been running a low grade fever if they don't take your temp before you start :)
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann

Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 12/14/2009 10:59 PM (GMT -6)   
This one of my biggest complains about CD! I hate the low grade fevers I typically run 24/7!
It is just enough fever to make you feel like crud isn't it!

I also have fibro and take Ultracet for it which contains Tylenol. If it wasn't for the Ultracet I could not function! The fevers make my fibro feel even worse than it already is!

I would mention it to the Dr. prior to the treatment but it should not stop you from getting it.

Wish I could find an answer to stop the fevers but our bodies are constantly attacking themselves and the fevers are just a natural response to it all.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Nulev, Glucosamine, Multi-Vitamin, Calcium Citrate, Ultracet. Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, kidney stones & peri-menopausal.

Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 12/15/2009 3:49 AM (GMT -6)   
Thank you! My temp is up past 101 so I am calling my GI dr in the morning. I have this fever, chills, body aches and a terrible headache, along with the watery D. The aches could be from my cutting out caffeine cold turkey over the weekend in an attempt to calm my insides -maybe I should have weaned myself off of that! The fever is what is getting me though, and they don't give you your Remicade if you have a fever. I learned that the hard way.

Wish me luck!
32 yr old Female
Crohn's Colitis
DX 12/06
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D

Regular Member

Date Joined Aug 2009
Total Posts : 377
   Posted 12/15/2009 10:28 AM (GMT -6)   
Hey Wednesday,

I'm sorry you're feeling so terrible! I was diagnosed this summer, and during the whole time of my being sick, I had fevers ever day and night. They generally got up to 102. I also had chills and horrible D along with a myriad of other symptoms. I know my case may be a little different, but they started me on Remicade despite my fevers. However, I did have an infectious disease doctor check me out several times when they were trying to diagnose me. For me, I think the fevers were just the inflammation. Once I got the Remicade, they went away. Hopefully they can rule out any infection, and then maybe the Remicade will get rid of the fevers and the flare.

Feel better soon! :)

Regular Member

Date Joined Jan 2003
Total Posts : 224
   Posted 12/15/2009 1:44 PM (GMT -6)   
I have had fevers up to 106 before with my flares. The docs said it is very rare but possible. I also had to have surgery a few months after these fevers started.
20 yr old female, dx'd in 02, struggled for a year with controlling this retarded disease. Finally got on Remicade(miracle drug for me-at the time) was in remission until summer of 09. Remicade stopped working, switched to Humira. Had my first surgery, half the colon and some of the small intestine removed. developed abscesses. it was messy. Currently on no Crohns meds, going to probably start the Humira again soon.

Regular Member

Date Joined Oct 2009
Total Posts : 253
   Posted 12/15/2009 2:36 PM (GMT -6)   
I used to get really bad alternating fever and chills during my worst month last year. I would go from frying to be absolutely chilled to the bone with eight blankets on top of me! This was usually accompanied by really bad nausea and vomiting. I haven't gotten that in a while but I get mild fevers/a red face often. Just goes with the territory I guess!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone, probiotics, calcium w/d, digestive enzymes & prenatal multivitamin

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 12/15/2009 9:39 PM (GMT -6)   
I frequently get low-grade temps. I wake up at around 99.4, though it varies anywhere between there and 100.5. Sometimes I peak out up to 102.4! I tell my doc, but he doesn't seem too worried. They say it's from the inflammation. All I know is that it drives me nuts. It's so hard to have an elevated temp every day and still have to keep up with life!

Hang in there!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Started Cimzia first dose 2/10/09. Dx Osteoporosis 10/08 started Forteo 1/27/09

Regular Member

Date Joined Apr 2009
Total Posts : 47
   Posted 12/15/2009 9:55 PM (GMT -6)   
Just a little input. I was just posting tonight on here that I am a low temp person. Usually 97.6 ect, But I have noticed everytime I start hurting really bad with stomach pain I start running a low grade fever 99.0 ect and when the pain subsides(LOL never) my temp goes back to normal again? I think it's are body fighting against the food and reactions and our body fights it as foriegn. And er-go FEVER(bodies fighting mechanism)
I hope you feel better soon....

Veteran Member

Date Joined Feb 2009
Total Posts : 1810
   Posted 12/15/2009 11:10 PM (GMT -6)   
I get fevers with flares too. I had a fever of 100.8 sunday night after waking up with horrible cramps, diarrhea and blood. I am trying to hang in there until my tests in a few weeks. I hope I make it through the holidays so we can go the mountains. My hubby has been waiting to go for months now. I don't want to ruin his Christmas again this year. Last year, I was sick at this time too. I say this almost with every post. I am so grateful for this forum. this is the only place where people understand what we go through and it makes me feel so much better, like I am not alone in this.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel

Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 12/16/2009 7:36 AM (GMT -6)   
I sometimes get low grade fevers I never worry about it but sometimes I get more tired because of it.

Just talk to the doctor or your nurse and ask them about the remi

good luck
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~

Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 12/16/2009 10:15 AM (GMT -6)   
Thank you everybody!  I am hoping the Remicade will help with the symptoms but I also know my dr won't give me the infusion if I have a fever - he is not a very compassionate dr and would not have a problem making me wait several weeks until we could figure out when was causing the fevers and make them go away.  When I was scheduled to get my first Remmicade I had a fever and my symptoms got go bad I ended up in the hospital.  I am trying to do everything I can to make this fever go away on its own so I can go in for my Remicade and hopefully that helps with everything else.
Thank you all again!! :)

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 12/16/2009 8:20 PM (GMT -6)   
My normal temp runs 96+ to 97+ so 99+ is a low grade fever for me. I've found the medical profession doesn't consider anything under 101 a fever regardless of what you tell them your normal temp range is. And except in cases of something lilke the flu short or Remicade infusion they don't really seem to get in a twit until you hit 102+ or better. Or maybe it is just my docs?

In my case, when I tried an MD turned naturalist or whatever you call them he had me taking my temp 3 x a day, same time every day, with a mercury thermometer, for a solid 7 days and record it so its not just my say so or imagination where my normal temp range is.

I now do the same maybe once a year or so just to see if I remain in that range and so far I do.
I wish you good luck and God bless but I'm thinking that since you've hit 101 you are probably SOL on the Remi. Doctor could really be sticking his neck out okaying the infusion at 101 regardless of any blood work results.

Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Veteran Member

Date Joined Apr 2004
Total Posts : 1052
   Posted 12/16/2009 10:13 PM (GMT -6)   
When I get flaring bad - especially the first year my temps also got up to 104. I still get low grades (99.6-100.5) when flaring. My GI never believed me when I told him that I was having low grade fever and he did not think that this was a symptom of crohns lmoa...thankfully I won't be seeing that guy again, he drove me nuts! I feel for you- fevers are the worst, so draining. Considering you are having a full out flare and this is a symptom of it I hope they give you the treatment...not wait until the flare goes on own .. kind of defeats the purpose.

Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 12/16/2009 10:13 PM (GMT -6)   
Thanks for the input, I guess I was asking what can CAUSE the fevers, like what tests should I be asking for at the dr? I went to my primary care's offce (but had to see another dr since it was last min) and she had no idea what to do with me, other than telling me to "rest and drink plenty of fluids". It was like talking to the medical students who work at the pharmacy. She asked me which tests she should do and I said I didn't know, that's why I was going to see her. Frustrating! I don't have c.diff, I will get any and all bloodwork done but would have been happy if it could have been done yesterday - no one likes getting passed off to the next doctor and staying sick for longer. :(

I am basically not eating anything at this point and drinking as much as I can - that is helping a little bit with the D (less to digest, etc) but have no energy, have been out of work all week so far (stressful!) and just took my temp: 102.7.

What is wrong with me?
32 yr old Female
Crohn's Colitis
DX 12/06
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D

Veteran Member

Date Joined Dec 2006
Total Posts : 559
   Posted 12/17/2009 4:02 AM (GMT -6)   
Back when I first came down with Crohn's (some 20-odd years ago), I started running a low-grade fever that lasted for months. It turned out to be caused by internal fistulas. A bowel resection got rid of the fistulas and an obstruction. Fortunately, neither the fistulas nor the fevers have recurred, though I've had two more bowel resections since then to get rid of subsequent obstructions.

Crohn's since 1988
3 resections

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