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jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 12/14/2009 8:47 PM (GMT -7)   
Just want to post this as another SCD success story. Stuck with it for close to 9 months now and am completely asymptomatic. 1 bm a day. I think I was successful because I started it less than a year after my diagnosis (as it was progressing pretty quickly anyway). And btw, I did not see improvement the first month, second or third month on it. I did it anyway because it's the only hope I had for a semi-normal life. Glad I did. Peace.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 12/14/2009 8:51 PM (GMT -7)   
thanks for sharing...
                          
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
 
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                                     .....LYN.......
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Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 12/14/2009 8:54 PM (GMT -7)   
Are you still on Remicade?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 12/14/2009 9:41 PM (GMT -7)   
Hi jpn! That's GREAT news! yeah Thanks for sharing it with us!
Mom to 17 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 12/14/2009 10:41 PM (GMT -7)   
I love good news! Thanks for the ray of sunshine.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/15/2009 6:59 AM (GMT -7)   
glad to hear you are doing better...
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/15/2009 7:27 AM (GMT -7)   
I am glad to hear this diet is working well for you. I have found great success and remission on the low residue diet.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 377
   Posted 12/15/2009 8:12 AM (GMT -7)   
jpnutrition-

That's awesome. I have just took the plunge and am starting SCD. I'm hoping to have good results as well. Can I ask you, are you on any meds?

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 12/15/2009 8:14 AM (GMT -7)   
October, he was on Remicade, not sure if he still is.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Southern Lady
Regular Member


Date Joined Dec 2009
Total Posts : 32
   Posted 12/15/2009 8:21 AM (GMT -7)   
New to this. What is SCD?

Octobergirl
Regular Member


Date Joined Aug 2009
Total Posts : 377
   Posted 12/15/2009 8:30 AM (GMT -7)   
Southern Lady, it is the Specific Carbohydrate Diet. Here is a link (though I don't know how to activate it):

http://www.breakingtheviciouscycle.info/

EMom has several links in her signature that discuss the diet.
________________
just activated your link

Post Edited By Moderator (MMMNAVY) : 12/15/2009 8:37:58 AM (GMT-7)


Carnival Huckster
Regular Member


Date Joined Oct 2009
Total Posts : 159
   Posted 12/15/2009 8:56 AM (GMT -7)   
I also had success on the SCD, however, I fell of the wagon for a few years and that is when, I believe, I built up a lot of scar tissue because I was pigging out on all kinds of junk food for about 3 years without taking any meds whatsoever. I am paying the price now with a resection of scar tissue coming up in January. It is best to stay on the strict SCD for at least 2-5 years. 10 years is best to ensure that you are truly OK and you should have the pill cam done to make sure there is no inflammation or scaring is happening behind the scenes. Note: don't read into the pill cam too much -- if they did it on the general population of non-Crohn's people, some percentage would still show abnormalities.

+ 34 year old male
+ Crohn's Disease DX in 1997
+ Recently hospitalized because of ruptured small bowel; docs got it under control but have scheduled resection surgery for January 2010.
+ Taking Cipro (1000mg / day), Flagyl (1500mg / day), and Entocort (9mg / day) until surgery
+ SCD for past 10 years


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 12/15/2009 11:16 AM (GMT -7)   
Jp, which meds and supplements are you taking?
 
On October 28th your signature, copied and pasted below, said you were on Remicade since 6/09:
 
"Crohn's Colitis diagnosed 6/08
SCD since 4/09
Remicade since 6/09
Boswellia + Acidophilus
Remission"
 
Since you started the SCD in April, and the Remicade in June, then the time period you say the effects kicked in (July and beyond) looks like it overlaps with when you started Remicade.
 
So is it possible it is the Remicade that is working and not necessarily the SCD?  How can you tell which really helped?


Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past two years. Recent colonoscopy shows stricture gone but still two spots of inflammation in TI. Used LDN to taper off Entocort. Was on Entocort since April 06. Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 5000IU vit D3, 500 mg calcium, 27 mg iron, monthly B12 shots, daily oral B12 1000. SCD diet modified to include potatoes and rice. 

Post Edited (njmom) : 12/15/2009 11:26:19 AM (GMT-7)


spookyh
Veteran Member


Date Joined Oct 2008
Total Posts : 1342
   Posted 12/15/2009 9:50 PM (GMT -7)   
Congrats! I eat SCD too, 1 year on the first of December :-).
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 12/16/2009 6:23 AM (GMT -7)   
this is what i do right now:

yoga for about 7 minutes in the morning (surya namaskara)
10 drops wild oregano oil 20 minutes before food, twice a day
1 pill Natren's Healthy Trinity probiotic, twice a day
3 pills boswellia, twice a day
1 pill cinnamon, twice a day
1 SCD multiivitamin
2 teaspsoon barlean's fish oil
meditation at night for 10 minutes
+SCD

yes i'm on remicade too so as you can see, i'm doing it all, the natural and medical route and it's working perfectly. Don't really care what is working right now though I suspect it's probably a combination of everything to some degree. I plan to stay on SCD for at least 2 years, maybe more.
Crohn's Colitis diagnosed 6/08
SCD since 4/09
Remicade since 6/09
Boswellia + Acidophilus
Remission

Post Edited (jpnutritionfirst) : 12/16/2009 6:26:37 AM (GMT-7)


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 12/16/2009 8:23 AM (GMT -7)   
JP, thx! 

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/16/2009 9:13 AM (GMT -7)   
I am a big believe in yoga as well and try to do about 30-45 mins a day. Plus I find it helps me not be such a klutz. I wish I could do the natarajasana again.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 12/16/2009 1:05 PM (GMT -7)   
I tried the SCD, Sauted Crawfish Diet , years ago. Gained a lot of weight too, but MMMMMMMMMMMM them little mud bugs are good...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 12/16/2009 2:27 PM (GMT -7)   
lol!
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!

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