Humira first shot

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isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/15/2009 10:01 AM (GMT -7)   
Well since I cant tolerate Remicade and I am getting more sick by the day, they finally let me start Humira.
I will have my first shot on Friday. Will actually get 4 shots on Friday to begin the treatment.

They gave me this Humira Pens. And well I am afraid that it will hurt :(

So can anyone tell me that it does not hurt hehe :)

And if it does hurt how much ?

And for the people who have been on both humira and remicade. Witch is better ? Not like treatment wise but just like easy to use and stuff like that.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 12/15/2009 10:23 AM (GMT -7)   
They do sting a bit, but do whatever you do for a sore muscle (heat or ice).
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

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Make sure your suffering has meaning…


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 12/15/2009 12:19 PM (GMT -7)   
Congrats on Humira, I really like the stuff myself, but the pens are very tricky at first.

Some tips ;)

1.) Let the Pen reach room temp before you inject it. Let it sit out for a good ten minutes, before you inject it. This will help a GREAT deal with the sting.

2.) Pressure; It's all about pressure. You grab some skin, preferably some fat, push the pen hard against the skin, and hit the button on top. Keep PRESSURE hard and firm on it. I put my back up against the wall, and get in the floor, that way I don't jerk and pull the pen away. I use a leg, you can use the belly if you are ok with that, I am not.

If you jerk and move the pen away, the medicine will go all into the air, and you have a "misfire". Call up Humira, tell them about the "misfire" they will give you a replacement pen. Consider having someone help you the first few times, and tell them to keep firm PRESSURE, don't pull back.

3.) Here is a video for you to watch.

www.humira.com/RheumatoidArthritis/AdministeringHumira/Default.aspx
Humira 2 times a month, Lialda 2 X day, Phenergen PRN, Remeron 30mg day, Pain Meds, Zantac 300mg 2 X day, Prednisone 20mg Every Other Day, Vitamins;
semi@jengland.info -- FaceBook


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 12/15/2009 12:23 PM (GMT -7)   
Im not trying to scare you, but it was probably on my top 5 worst pains experienced in my life. IF it would have helped me I for sure would have sucked it up and continued taking it, the minute I decided it wasn't helping me, I litterally did a happy dance because I would never have to shoot myself with it again.

After my GI and I decided the Humira was a no go, he put me on Remicade. The infusion isn't bad at all, if I was able to choose one or the other I would have def picked the Remicade, no pain makes me smile.  I ended up having an allergic reaction to it though that sent me to the ER with full body hives, and needing 5 shots of Valium before I passed out.


Dianogsed with Crohns: At 16 years old. 22 years old now.
Surgeries:2 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings
Current Meds: Cimzia, Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: Nov. 20th to Take Down Abdominal Fistula!!!
 

Karineb
Regular Member


Date Joined Nov 2005
Total Posts : 319
   Posted 12/15/2009 12:24 PM (GMT -7)   

I find that the shot does burn, while the fluid is going in.  Once it is in it does not hurt.  So you just need to be ready for the burning sensation.

For my first time with the 4 shots a humira nurse actually came over to help me inject.  Expecially the first one as you don't know what to expect.

I personally get my boyfriend to do it as it makes it easier to concentrate on not jerking my leg away...


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 12/15/2009 12:40 PM (GMT -7)   
I LIGHTLY pinch my thigh, place the pen against my leg using LIGHT pressure and hit the button. It stings for a few seconds (like a bee sting) and then it's over. It would probably sting less if I let it warm up a bit more, but I don't want to take any chances with the efficacy of the drug.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


munchkin81
Regular Member


Date Joined Jul 2007
Total Posts : 73
   Posted 12/15/2009 2:16 PM (GMT -7)   
After reading how much people were saying it hurt, I prepared for the worst for the first shot.  It wasn't comfortable, but it was not nearly as terribly as some people make it sound.  I was on Remicade too.  It's a lot easier to take 5 min. to give myself a shot every two week, rather than sit for hours with an infusion.
Munchkin 81
27 year old female.  DX June 2007.
abscess Nov. 2006 - drain and surgery
Resection 11/07
Resection 4/08
on Remicade...off Remicade.  reaction during 4th infusion
on Humira
 


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/15/2009 3:19 PM (GMT -7)   
Thanks for the info and all the great tips.

I will go meet my nurse on Friday and she will teach me how to do this and I am also going to watch the video.

It will probably not hurt as much as having to sting me 10 times to put up an IV for remicade :) well I hope not. And my veins are very tired and sore..


MAG102886 thanks for your honesty if I did not want to know I would not ask ;)
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/15/2009 3:47 PM (GMT -7)   
Rider Fan said...
I LIGHTLY pinch my thigh, place the pen against my leg using LIGHT pressure and hit the button. It stings for a few seconds (like a bee sting) and then it's over. It would probably sting less if I let it warm up a bit more, but I don't want to take any chances with the efficacy of the drug.


they say in the video that you should let it stand for 15-20 minutes to reach room temp.
So it should be okey.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 12/15/2009 5:23 PM (GMT -7)   
It's not as bad as an IV stick for me. Really it doesn't last long, so it's tolerable compared to other things we have to go through. I recommend taking in a big breath before you push the end, and letting the air out really slowly. To me, that's the only way to make it easier. I don't think it matters whether the medicine is room temp or warmer. Also, I WILL NOT ever again use my leg...it hurt so much worse.
Becky

31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/15/2009 5:46 PM (GMT -7)   
Thanks Becky I will try to remember the breathing technique.

I will probably try both the tummy and leg on Friday so I know which place is the best to do it at home..
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


hvacchronie
Regular Member


Date Joined Oct 2009
Total Posts : 43
   Posted 12/15/2009 5:59 PM (GMT -7)   
   I started humara about 2mnths ago and it as done me alot of good. As far as the pain goes, it burns going in at first but the rewards of this shot out way the discomfort and short pain.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 12/15/2009 6:30 PM (GMT -7)   
isergodur said...
Rider Fan said...
I LIGHTLY pinch my thigh, place the pen against my leg using LIGHT pressure and hit the button. It stings for a few seconds (like a bee sting) and then it's over. It would probably sting less if I let it warm up a bit more, but I don't want to take any chances with the efficacy of the drug.


they say in the video that you should let it stand for 15-20 minutes to reach room temp.
So it should be okey.


Yup, should be. Some people wait over an hour.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


Gracie Girl
New Member


Date Joined Jun 2008
Total Posts : 16
   Posted 12/15/2009 6:50 PM (GMT -7)   
I agree with the previous posts...leave the humira out for about 20 minutes and for me what helps the most, is that I ice the injection site for a few minutes and then I inject. I compare the pain to the initial pain of being stung by a bee but the pain does not last nearly as long perhaps 20 seconds to a minute at the most. A minute of pain for decreased diarrhea, no abdominal pain, and no joint pain...I'll take the minute of pain.
35 y.o female
DX- 2/2006
Humira bi-weekly


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/18/2009 4:15 AM (GMT -7)   
Well I just got the 4 shots and...
It was so easy and painfree. It was amazing.
Thanks for all the great advice
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/18/2009 5:11 AM (GMT -7)   
I have a question, before starting Humira what type of blood work or other testing do they do?
 
Thanks
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/18/2009 9:14 AM (GMT -7)   
I just had TB test for the remicade when I started that in January 2009.

They did not do a new test for the Humira.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


amytupelo
Regular Member


Date Joined Nov 2009
Total Posts : 38
   Posted 12/18/2009 2:00 PM (GMT -7)   
i had to have a hepatitis panel drawn and a tb test before starting humira. still waiting on my prior auth....
crohn's terminal ileum - 11 years
pentasa, entocort 3mg, b12, align, canasa
allergies: remicade, imuran, 6-mp, cipro


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/18/2009 4:37 PM (GMT -7)   
Well, I have been approved for Humira, insurance went really well. The nurse said i need to have a blood test for TB. I asked about Hepatitis and she said no I didn't need it. How do I or they know that I don't have Hepatitis. Oh well I should be starting the loading doses in a week or so.
I do have a question. Can you drink alcohol when you are on Humira?
Thanks for the answers.


Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Post Edited (Wolfie40) : 12/18/2009 4:59:06 PM (GMT-7)


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/19/2009 12:23 AM (GMT -7)   
Wolfie40 said...
Well, I have been approved for Humira, insurance went really well. The nurse said i need to have a blood test for TB. I asked about Hepatitis and she said no I didn't need it. How do I or they know that I don't have Hepatitis. Oh well I should be starting the loading doses in a week or so.
I do have a question. Can you drink alcohol when you are on Humira?
Thanks for the answers.


They said nothing about alcohol to me.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 12/19/2009 3:20 PM (GMT -7)   
So I go to Walgreens and they said that the insurance denied my Humira. I told them it was pre-approved. They said they would take care of it and they would order the script and have it bt Monday. The only thing that I can think of is that my nurse had it setup for Medco delivery.
Anybody experience this?
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 12/19/2009 3:32 PM (GMT -7)   
Wolfie40 said...
So I go to Walgreens and they said that the insurance denied my Humira. I told them it was pre-approved. They said they would take care of it and they would order the script and have it bt Monday. The only thing that I can think of is that my nurse had it setup for Medco delivery.
Anybody experience this?


I live in Iceland so I can not answer your question, hopefully someone else has a good answer.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~


dmc24
Regular Member


Date Joined Aug 2007
Total Posts : 37
   Posted 12/21/2009 8:34 AM (GMT -7)   
I leave my shot out for a good 40 mins and that seems to help with the stinging.  Has anyone had any trouble with your skin itching for a few days after?

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 12/21/2009 8:37 AM (GMT -7)   
Yes, sometimes the spot is itchy for a while. I don't think it's a big deal. Anyone else?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


dmc24
Regular Member


Date Joined Aug 2007
Total Posts : 37
   Posted 12/21/2009 8:38 AM (GMT -7)   
I mean like your skin, your face and back etc?
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