What crohns treatments worked for you?

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Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 12/15/2009 1:12 PM (GMT -6)   
Methotrexate injectable (2 years+)
zofran meltaways
folic acid injectable
b-12 injectable
cipro as needed...
Pred as needed...
Crohns is very individual, so I have some things that did not work for me:
immuran-vomit comet
I tried the makers and SCD diet for about 18 months, but because I am a heavy bleeder they were not successful for me.
What has been your experience with what works and what does not work for you?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

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Regular Member

Date Joined Mar 2009
Total Posts : 452
   Posted 12/15/2009 1:49 PM (GMT -6)   
The only thing that has worked for me is Remicade...and it is still early to say that it is 100% effective. 

Will power (mind over matter) helped for many years but eventually the body won out.
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
Been on almost every type of drug with bad results
Remicade since Nov 2009

Regular Member

Date Joined Nov 2005
Total Posts : 319
   Posted 12/15/2009 2:29 PM (GMT -6)   
So far nothing has worked for me. Going on some sort of trail drug (no idea of name) in January.


Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/15/2009 2:31 PM (GMT -6)   
The mesalamine meds and Pred have been my lifesavers. But the B12 shots, Probiotics and Vitamin D have really helped with my fatigue and fibro like pain. I am currently in remission and maintained solely on Asacol, B12 shots, Vit D, and Probiotics. Also take a Calcium Citrate supplement daily.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Oct 2009
Total Posts : 253
   Posted 12/15/2009 2:33 PM (GMT -6)   
Right now, I'm on prednisone and feeling better than I have since before I got sick. I just started 2 weeks ago tomorrow and am hoping to start to taper. I'm keeping my fingers crossed that I stay feeling so good!
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone, probiotics, calcium w/d, digestive enzymes & prenatal multivitamin

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 12/15/2009 5:19 PM (GMT -6)   
6mp has been the magic one for me -- no side effects, low dose, but then I have what is classified as a mild to moderate case. My GI has told me several times that this is the one condition he treats where he really has to trial and error various meds for different patients, since no two are alike. He does not have any "one drug" he uses in Crohns, has about 25% of his patients on 6mp, another 25% on Remicade and otjers for others.

Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 12/15/2009 7:14 PM (GMT -6)   
Remicade is the only thing that has worked for me..

But I had to stop so now I will see if humira will do the same for me.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ www.poodle.is ~

Veteran Member

Date Joined Nov 2007
Total Posts : 4051
   Posted 12/15/2009 9:31 PM (GMT -6)   
I was on Prednisone for awhile. Now I take Pentasa, probiotics, metamucil and colace. ( I tend toward constipation) When I go the other direction with severe D, a short round of Cipro helps. It's working so far, but I'm keeping my fingers crossed:)
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics

Veteran Member

Date Joined Oct 2009
Total Posts : 1070
   Posted 12/15/2009 11:53 PM (GMT -6)   
Sorry but since you asked: Asacol and Blue Dye. Also: Watching what I eat, fish oil, tumeric, Vitamin D, and PB-8.  I had succes with prednisone but it has it's side effects and lost potency for me.  Rowasa helped in the past as did cort-enema.  Immuran worked but OMG my poor pancreas..........

I use FD&C Blue dye number 1 and it really seems to help me.  There is SCIENCE behind this.  Just ask me and I will explain it to you.  U/C and Crohn's for 34 years.  Blue dye for one month and I am feeling pretty good!  I am so excited by this but I need others to try it with their doctor's permission.  Simple food coloring!!  BLUE1.  
I can't make money on this, it's already in your kitchen.  I just want to help.
I do 2 drops in 6 ounces of water when I get up, 2 or 3 drops in 16 or 20 ounces of water that I sip all day and then 2 drops in 6 ounces of water at bedtime.   Max of 7 drops a day.  Give it about ten days.  I am NOT a healthcare professional.   Ask your doctor if this is safe for you. 

Veteran Member

Date Joined Oct 2008
Total Posts : 1342
   Posted 12/15/2009 11:56 PM (GMT -6)   
Humira was the only drug that really worked for me (without making me feel like crap). Eating SCD helps even more then Humira, and I also supplement with things like fish oil (see signature). I'm about to start LDN, and in conjuction with SCD and Pentasa, hope it keeps me from needing surgery ever again.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

Veteran Member

Date Joined Jan 2006
Total Posts : 3129
   Posted 12/16/2009 8:34 AM (GMT -6)   
Pentasa for many years (works better when i actually take it). B12 injections, Vitamin D and folic acid are what make the every day pains more tolerable and the tiredness less invasive. I have had a few rounds of pred, but nothing too long term. Going to give probiotics another try in January.
I have not gone into any of the "bigger" meds because I feel my quality of life is good enough to not risk the side effects or reactions I might have---I tend to react oddly to meds.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Regular Member

Date Joined Aug 2007
Total Posts : 37
   Posted 12/16/2009 9:39 AM (GMT -6)   
I just started Humira, what systems did you get that showed up for Lupus?

Regular Member

Date Joined Oct 2005
Total Posts : 428
   Posted 12/16/2009 7:24 PM (GMT -6)   
Remicade has worked for me in the past and now I'm on it again and it seems to be working. Steroids worked and I'm on entocort right now too. Humira didn't work for me and I was on it when I had my latest worse flare ever :( Good luck to you in finding something that works.

Veteran Member

Date Joined Apr 2004
Total Posts : 1052
   Posted 12/16/2009 10:17 PM (GMT -6)   
Entocort and Methotrexate slowly over a year put me to a place that was much better along with sticking to safe foods and positive thinking.
Pentasa -allergic
Imuran -pancreatitis
refused pred
cipro/flagyl made me sicker than the crohns

Regular Member

Date Joined Nov 2003
Total Posts : 351
   Posted 12/17/2009 6:35 AM (GMT -6)   
Initially pred "worked" for me but once I was weened off the drug it was just a matter of time before I flared and was back on it. Over the years I think pred just masked the problem and in the meantime I was building up scar tissue from flaring in between. Entocort helped for awhile but even that is starting to subside in effectiveness. Now I'm on Humira and am feeling better but I only started a couple weeks ago so we'll see where this takes me.
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